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Inverse Genital Psoriasis

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Inverse Genital Psoriasis
Simonwarner42 Offline
Novice


Posts: 5
Threads: 2
Joined: Jan 2017
Gender: Male
Location: Florida
Treatment: Xtracs Laser
#1
Sun-08-01-2017, 20:09 PM
Hey all – I have inverse genital psoriasis. I have tried everything under the sun on it. Tea Tree oil, coconut oil, hydrocortisone, steroid creams, etc. I’ve been getting the Xtracs laser treatment for at least four months and no major changes. I have huge flare ups and it even bleeds and crust over. My Xtracs technician thought it could be infected most recently.  It is very painful and embarrassing when you are trying to be intimate.  I’ve been using the condom idea also (filling it up with ointment). Any thoughts? Anyone else used the Xtracs laser and had any luck? Anybody have any luck with anything working???
Caroline Offline
You must hurry if you ever want to catch a chicken...
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Posts: 26,560
Threads: 113
Joined: Nov 2011
Gender: Female
Location: In between the tulips
Psoriasis Score: 3
Psoriatic Arthritis Score: 3
PQOLS: 4
Treatment: Got back to DMF slow release
#2
Sun-08-01-2017, 20:16 PM
Hi Simon,

First of all welcome to Psoriasisclub. A group of people with all kinds of psoriasis, so maybe there is someone who has an opinion on your problem.

I don't know anything about your laser treatment, unfortunately.
For me it seems that you are still on the track of ointments, and it appears to me that you are bound to take the next step to systemics or even to biologicals. This in order to attack the psoriasis from the inside instead of from the outside.

Caroline
Simonwarner42 Offline Author
Novice


Posts: 5
Threads: 2
Joined: Jan 2017
Gender: Male
Location: Florida
Treatment: Xtracs Laser
#3
Sun-08-01-2017, 20:17 PM
What do you suggest as my next step?  Are you talking about diet or something like that?
jiml Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 47,972
Threads: 357
Joined: Oct 2013
Gender: Male
Location: Norwich England
Psoriasis Score: 3
Treatment: Skilarence 5x120mg a day
#4
Sun-08-01-2017, 20:25 PM (This post was last modified: Sun-08-01-2017, 20:26 PM by jiml.)
Hi Simon  Welcome to the club, I think that Caroline is right it's time to give up trying to treat it from the outside, I think a good dermatologist would probably get you on to the next level of treatment which is likely to be one of the oral systemic treatments that will start to tackle the root of the problem,

I would say be careful with the ointment in intimate areas particularly if they are steroid ointments, they can damage your skin badly
Caroline Offline
You must hurry if you ever want to catch a chicken...
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Posts: 26,560
Threads: 113
Joined: Nov 2011
Gender: Female
Location: In between the tulips
Psoriasis Score: 3
Psoriatic Arthritis Score: 3
PQOLS: 4
Treatment: Got back to DMF slow release
#5
Sun-08-01-2017, 20:27 PM
I think you should go to your dermatologist and discusse the next options, as on the current ones you do not seem to have any effect anymore.

There are more possible ways yes.
You have the diet approach, we have several threads on that, e.g. alan540 has a good tread on that How I Cured My Psoriasis By Diet.

There are the systemics, chemicals that adjust your immune system like, Ciclosprorine, Acetretin, Dimethylfumarate or Methotrexate (avoid this last one).

And there are the biologicals, that block specific adapters on cells, like humire, Stelara, Cosentyx. The biologicals are quite new, expensive, but work very fast.

On this forum you can read and discuss on these possibilities. Most members use some of these and have results on them.
mataribot Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 1,340
Threads: 38
Joined: Jun 2013
Gender: Male
Location: USA
Treatment: >_<
#6
Mon-09-01-2017, 07:57 AM
Inverse psoriasis is hard to treat. Ointments are not going to get job done. Pills or injectable meds is the next step.
Fred Offline
I Wanted To Change the World But Got Up Far Too Late.
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Posts: 67,108
Threads: 3,898
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Gender: Male
Location: France
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#7
Mon-09-01-2017, 10:46 AM
Hello Simon  Welcome to Psoriasis Club.

Yes I'm with the others you should be seeing a dermatologist, they will work with you to find something suitable.

My guess would be that they would try you on one of the oral treatments first, you can read more about them here: Oral Treatments For Psoriasis

Regards.

Fred.
Kat Offline
Take my advice; I don't use it anyway.
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Location: GA
Psoriasis Score: 3
Treatment: Clobetasol Topical
#8
Mon-09-01-2017, 21:14 PM
Hello Simon and welcome! As others have said, sounds like you need to see a dermatologist and look for a treatment that works for you. Lots of info on this forum so it's a good place to learn about the different treatments.
Spot On Offline
Member


Posts: 59
Threads: 13
Joined: Sep 2016
Gender: Male
Location: Canada
Treatment: NB UVB, Dovonex
#9
Tue-10-01-2017, 15:09 PM
What about narrow band uvb?
D Foster Offline
“You only live once, but if you do it right, once is enough.”

100 + Member I Just Cant Stop !
Posts: 25,273
Threads: 17
Joined: Dec 2014
Gender: Male
Location: East Yorkshire
Treatment: Stelara 90mg and G&T
#10
Wed-11-01-2017, 09:36 AM
From what I understand the laser is a consecrated narrow band UV that is designed to change the T cell's , I agree that you need to attack the P from the inside with oral or injections such as MTX or biological drugs , this has less damage than UV in sensitive areas and works better potentially. Welcome to the club Simon have a good look around and ask any questions you need to, we will always try to answer from the position of fellow sufferers. Good luck .
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