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Psoriasis Club › HealthHealth Boards › Prescribed Treatments For Psoriasis v
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Enstilar

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Enstilar
jiml Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 47,972
Threads: 357
Joined: Oct 2013
Gender: Male
Location: Norwich England
Psoriasis Score: 3
Treatment: Skilarence 5x120mg a day
#41
Fri-21-10-2016, 11:59 AM
That's good information to know  .... thanks for posting it ....as it is important not to use it like a moisturiser   Thumb
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Fred Offline
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 66,930
Threads: 3,887
Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#42
Fri-21-10-2016, 12:02 PM
(Fri-21-10-2016, 11:59 AM)jiml Wrote: That's good information to know  .... thanks for posting it ....as it is important not to use it like a moisturiser    Thumb

Yes we have to be careful not to get carried away with it as it is after all a form of Dovobet.
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Khonsu Offline
Member


Posts: 15
Threads: 1
Joined: Sep 2016
Gender: Male
Location: North Wales
Treatment: Enstilar
#43
Fri-21-10-2016, 13:01 PM
I had been prescribed a 4 week dose by my doctor, so seven cans in total. However, one can was lasting me 3 weeks (I'm covering about 30% of my body but I don't pile it on). I went back to see her and asked about the maximum dosage criteria, is it that you shouldn't expose yourself to more that 4 x 60mg per treatment course, that your shouldn't put it on your skin in any dosage for more than a 4 week time period, or a combination of both? I also asked about treatment 'holidays' - how long after I had finished one course would I have to wait before I started another one once required (I know this isn't a cure)?

She explained, as I have read elsewhere, that doctors are a little less scared of steroid treatments these days, and are more willing to let the treatment have some time to take effect. Her opinion (and I'm sure other opinions are available) is that it shouldn't be a problem to spread the maximum 4 week dose over a longer period. In my case this will be about 5 months. At the end of my last can she said I would have to wait at least 2 months before embarking on another course (if and when required). The idea is to move over to using an emollient, probably Diprobase, at the end of the treatment and see how long it will hold the psoriasis at bay.

I also agreed with her that I would only be using Enstilar 5 days a week, Monday to Friday. This has two effects - firstly it gives my skin a mini-break from the treatment. Yes it probably reduces the effectiveness but not to the point were I'm regressing. Secondly, and most importantly for me, I get the weekend with normal feeling skin. My clothes aren't sticking to me and I'm not leaving a trail of flakes behind me - that's quite a thing after 30 years of living with one or the other, or both!!

I'm keeping my fingers crossed for the future, I know this might all fall apart eventually, but for the moment, as Ronald says, "I'm lovin' it" Smile
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Fred Offline
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 66,930
Threads: 3,887
Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#44
Fri-21-10-2016, 13:05 PM
(Fri-21-10-2016, 13:01 PM)Khonsu Wrote: I had been prescribed a 4 week dose by my doctor, so seven cans in total. However, one can was lasting me 3 weeks (I'm covering about 30% of my body but I don't pile it on). I went back to see her and asked about the maximum dosage criteria, is it that you shouldn't expose yourself to more that 4 x 60mg per treatment course, that your shouldn't put it on your skin in any dosage for more than a 4 week time period, or a combination of both? I also asked about treatment 'holidays' - how long after I had finished one course would I have to wait before I started another one once required (I know this isn't a cure)?

She explained, as I have read elsewhere, that doctors are a little less scared of steroid treatments these days, and are more willing to let the treatment have some time to take effect. Her opinion (and I'm sure other opinions are available) is that it shouldn't be a problem to spread the maximum 4 week dose over a longer period. In my case this will be about 5 months. At the end of my last can she said I would have to wait at least 2 months before embarking on another course (if and when required). The idea is to move over to using an emollient, probably Diprobase, at the end of the treatment and see how long it will hold the psoriasis at bay.

I also agreed with her that I would only be using Enstilar 5 days a week, Monday to Friday. This has two effects - firstly it gives my skin a mini-break from the treatment. Yes it probably reduces the effectiveness but not to the point were I'm regressing. Secondly, and most importantly for me, I get the weekend with normal feeling skin. My clothes aren't sticking to me and I'm not leaving a trail of flakes behind me - that's quite a thing after 30 years of living with one or the other, or both!!

I'm keeping my fingers crossed for the future, I know this might all fall apart eventually, but for the moment, as Ronald says,  "I'm lovin' it" Smile

Thank you for that. I was wondering if your dermatologist may have recommended the dose. At least you are being monitored with it unlike the old days of GPs keep throwing Dovobet at people.
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BobD Offline
Novice


Posts: 7
Threads: 1
Joined: Nov 2016
Gender: Male
Location: NH
Treatment: Calcipotriene, Betameth Dipro
#45
Sat-26-11-2016, 17:13 PM
Enstilar has the same formulation as Taclonex.
I found the aerosol inconvenient.  Applying it to the back requires contortions beyond me.  I have to spray the stuff onto fingertips, and then rub it where needed.
At my local pharmacy, the U&C for Taclonex 60 grams is $634.  Enstilar 60 grams is $900.
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Caroline Offline
You must hurry if you ever want to catch a chicken...
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Forum Helper
Posts: 26,503
Threads: 113
Joined: Nov 2011
Gender: Female
Location: In between the tulips
Psoriasis Score: 3
Psoriatic Arthritis Score: 3
PQOLS: 4
Treatment: Got back to DMF slow release
#46
Sat-26-11-2016, 21:15 PM
(Sat-26-11-2016, 17:13 PM)BobD Wrote: Enstilar has the same formulation as Taclonex.
I found the aerosol inconvenient.  Applying it to the back requires contortions beyond me.  I have to spray the stuff onto fingertips, and then rub it where needed.
At my local pharmacy, the U&C for Taclonex 60 grams is $634.  Enstilar 60 grams is $900.

Hi Bob,
Welcome to Psoriasis Club.
Thanks for your info.

If you like you can introduce yourself in the Introductions part of the Forum.

Wave
Caroline
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jiml Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 47,972
Threads: 357
Joined: Oct 2013
Gender: Male
Location: Norwich England
Psoriasis Score: 3
Treatment: Skilarence 5x120mg a day
#47
Sat-26-11-2016, 23:43 PM
(Sat-26-11-2016, 17:13 PM)BobD Wrote: Enstilar has the same formulation as Taclonex.
I found the aerosol inconvenient.  Applying it to the back requires contortions beyond me.  I have to spray the stuff onto fingertips, and then rub it where needed.
At my local pharmacy, the U&C for Taclonex 60 grams is $634.  Enstilar 60 grams is $900.

Hi Bob and welcome  Welcome to the Club ..hope you enjoy being with us, and thank you for the information about the cost if the Taclonex and Enstilar ...I'm glad we in the Uk only pay a small amount for our prescriptions £8.40 an item or a three monthly prepayment certificate for £29.10

It's always difficult doing your back ...you need an assistant  Smile


Have a good browse through the threads and if you have any questions  ask away and a good way to stay in touch here is to subscribe to the monthly newsletter where you will get to read all the latest news from members and latest drug news Newsletter
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