Hey Everyone!

[Caroline]

Do also think of the coconut oil, Bob, there are many on the forum that use it to relieve itching and scaling.

By the way, hello   , and welcome.

Hi Caroline, thanks in what sense? Using it to cook food with or applying to the affected areas?

Most of them over here apply it on the affected area's. It is moisturising and softening. And above all, harmless.
I am not sure if anyone uses it for cooking.  

[Bob-Carcass]

Do also think of the coconut oil, Bob, there are many on the forum that use it to relieve itching and scaling.

By the way, hello   , and welcome.

Hi Caroline, thanks in what sense? Using it to cook food with or applying to the affected areas?

Most of them over here apply it on the affected area's. It is moisturising and softening. And above all, harmless.
I am not sure if anyone uses it for cooking.  

Great thanks, I''ll give it a go 

[AmandaL]

Hi Bob and welcome to the Psoriasis club! I too suffered ppp on hands and feet for a few months a couple of years ago which was triggered by a reaction of another treatment. Cyclosporine helped to clear up the pustules for me, might be worth asking your dermatologist for this? You should also ask for some steroid cream and bandages from them and use coconut oil as others suggested.

If you get the steroid cream, be very wary with it as it shouldn't be used on a long term basis and also very sparingly! I completely sympathise with you though. The itchiness and pain walking on it is something I wouldnt wish on my worst enemy!

[Bob-Carcass]

Hi Bob and welcome to the Psoriasis club!  I too suffered ppp on hands and feet for a few months a couple of years ago which was triggered by a reaction of another treatment.   Cyclosporine helped to clear up the pustules for me,  might be worth asking your dermatologist for this?  You should also ask for some steroid cream and bandages from them and use coconut oil as others suggested.  

If you get the steroid cream,  be very wary with it as it shouldn't be used on a long term basis and also very sparingly!   I completely sympathise with you though.   The itchiness and pain walking on it is something I wouldnt wish on my worst enemy!

Hi Amanda, thanks. Do you think it's possible it could be a short term thing for me too? I have the steroid cream and some bandages that I got from the dermatologist, did you used to wrap your whole foot in a bandage and if so was it a particular type?

Yes I was told to just use it for two weeks and see how it goes, I'm not very optimistic about it at the moment to be honest. Thanks again for the advice 

[Turnedlight]

Hi there! Nice to meet you Bob..

I haven't had personal experience of bandaging but I have used thin cotton gloves which are good for keeping the cream on. I used to tape them around the wrist to stop me pulling them off. I don't know if it's an acceptable alternative but it sounds easier than bandages..

[Bob-Carcass]

Hi there! Nice to meet you Bob..

I haven't had personal experience of bandaging but I have used thin cotton gloves which are good for keeping the cream on. I used to tape them around the wrist to stop me pulling them off. I don't know if it's an acceptable alternative but it sounds easier than bandages..

Hi Turnedlight, 

I think Amanda was talking about bandages for the feet, I do have to pick up some cotton gloves to wear while I sleep with the cream on though thanks for reminding me!

[AmandaL]

Hi Bob and welcome to the Psoriasis club!  I too suffered ppp on hands and feet for a few months a couple of years ago which was triggered by a reaction of another treatment.   Cyclosporine helped to clear up the pustules for me,  might be worth asking your dermatologist for this?  You should also ask for some steroid cream and bandages from them and use coconut oil as others suggested.  

If you get the steroid cream,  be very wary with it as it shouldn't be used on a long term basis and also very sparingly!   I completely sympathise with you though.   The itchiness and pain walking on it is something I wouldnt wish on my worst enemy!

Hi Amanda, thanks. Do you think it's possible it could be a short term thing for me too? I have the steroid cream and some bandages that I got from the dermatologist, did you used to wrap your whole foot in a bandage and if so was it a particular type?

Yes I was told to just use it for two weeks and see how it goes, I'm not very optimistic about it at the moment to be honest. Thanks again for the advice 

Its hard to know unfortunately if it's short or long term (not very helpful I'm afraid) I just wrapped the bits affected. Where abouts on your foot is the pustules?

[Bob-Carcass]

Hi Bob and welcome to the Psoriasis club!  I too suffered ppp on hands and feet for a few months a couple of years ago which was triggered by a reaction of another treatment.   Cyclosporine helped to clear up the pustules for me,  might be worth asking your dermatologist for this?  You should also ask for some steroid cream and bandages from them and use coconut oil as others suggested.  

If you get the steroid cream,  be very wary with it as it shouldn't be used on a long term basis and also very sparingly!   I completely sympathise with you though.   The itchiness and pain walking on it is something I wouldnt wish on my worst enemy!

Hi Amanda, thanks. Do you think it's possible it could be a short term thing for me too? I have the steroid cream and some bandages that I got from the dermatologist, did you used to wrap your whole foot in a bandage and if so was it a particular type?

Yes I was told to just use it for two weeks and see how it goes, I'm not very optimistic about it at the moment to be honest. Thanks again for the advice 

Its hard to know unfortunately if it's short or long term (not very helpful I'm afraid)  I just wrapped the bits affected.   Where abouts on your foot is the pustules?

Aye, I was just being hopeful I know i'll most likely have this for good. Funny thing is I don't have any pustules, only lacerations, bad ones though. Mostly on the sole and the toes.

[dyorke]

Hi Bob

Welcome to the club  -  I am a PPP sufferer - it came on almost overnight back in October 2015.

It took a while to get referred but once I saw the Dermo things started to get better.  I am on a drug called Acitretin and the effects were really good, the pain went, the pustules disappeared and all I have now is dry  flaky/peeling skin.

However I still can't walk too far without my feet getting sore and I cant do things like play golf, use an iron or vacuum cleaner as gripping can be a bit painful.

I use pure unrefined coconut oil as an overnight moisturiser and Dermol 500 for the daytime.
And in between I have Dermovate and Epiderm ointments (soak feet in warm water for 15 mins then apply and wrap in cling film for a couple of hours)
I am about to embark on a 6 week course of UV light treatment - first appt is December 21st.

Hope this is helpful to you -  everyone is different but I am sure your Dermo will find the right treatment for you

Good luck and keep us posted.

Tink x

[Bob-Carcass]

Hi Bob

Welcome to the club  -  I am a PPP sufferer - it came on almost overnight back in October 2015.

It took a while to get referred but once I saw the Dermo things started to get better.  I am on a drug called Acitretin and the effects were really good, the pain went, the pustules disappeared and all I have now is dry  flaky/peeling skin.

However I still can't walk too far without my feet getting sore and I cant do things like play golf, use an iron or vacuum cleaner as gripping can be a bit painful.

I use pure unrefined coconut oil as an overnight moisturiser and Dermol 500 for the daytime.
And in between I have Dermovate and Epiderm ointments (soak feet in warm water for 15 mins then apply and wrap in cling film for a couple of hours)
I am about to embark on a 6 week course of UV light treatment - first appt is December 21st.

Hope this is helpful to you -  everyone is different but I am sure your Dermo will find the right treatment for you

Good luck and keep us posted.

Tink x

Hi Dyorke,

Thanks! It is always good to hear what other people are doing to treat it. I'm literally just using silcocks base at the moment but all of my symptoms are slowly disappearing. 

My hands are nearly 100% clear now apart from my nails and my feet are on the mend. Perhaps this was just a bad flare up? Have you had it consistently since you were diagnosed?