Hey from CC66

[CC66]

Good morning folks

Just saying hi as I've just joined.

I have has PSA for a number of years now, I take naproxen for the pain and sulphasalazine.. but seeing the specialist in 2 weeks for review and maybe changing to methotrexate.

Looking forward to chatting to you all
Chris

[Caroline]

Good morning Chris,

You are an early bird. Most of the members are still asleep, or pretend to ...

Welcome to Psoriasisclub.
I had to take a look where Bilston is, but I see it is close to Birmingham.

Hopefully the PsA did not damage your joints yet. Where do you have it the most?
What kind of specialist are you seeing?

You will find, in the coming comments of the members, that not so much people are in favor of methotrexate. I am one of them, I hate the stuff, also mainly because nowadays there are much better treatments with way less bad side effects for your body.
If I were you I would try to aim for something better. Studies show that it is much better to immediately use a very good medication in order to push the PsA back into its cage for a while.

I am sure that some other members will soon welcome you.

In the mean time enjoy. If you have questions, just ask them and we will point you to relevant information.
Besides from the Psoriasis boards we also have a large Off-Topic section, where you can talk about anything if you want to forget about Psoriasis for a moment.

Cheers,
Caroline

[CC66]

Thanks Caroline.

yes, i am an early riser, i'm too scared something will happen and i'll miss it 

Bilston.. between Wolverhampton and Birmingham. but i'm only here temporarily after the demise of a relationship, just holed up deciding where i should go next 

I have had PSA for a while, and basically my shoulders and RH thumb are shot. i have been seeing various rheumatologists over the years and the latest is no better really. my markers were still way up so he increased the sulfasalazine dose and wanted to see me in 3 months to review. that was 8 months ago and i'm finally seeing him again in 2 weeks. since then, mobility is definitely worse. initially, it took a long time to get referred to a rheumy, as i was in my late 20's and in the words of my GP... too young to have arthritis !! as a consequence, i was diagnosed very late. i have only had a firm diagnosis in the last 5 years, some 20 years after my first (and pointless) GP visit.
as you may get the impression, i don't have much confidence in the medical proffession. 
as well as PSA, i also have mild RA and OA

In all honesty, i'm willing to take anything that will help. i'm not one to give in to it and i refuse to let it rule me, i still get out on the motorbike but suffer for it later, but it's better than giving in.

I'd be happy for suggestions off everyone for alternative treatments that i can suggest to the rheumy, who knows eh? 

Right, time to get on with some work

Chris

[jiml]

Good morning folks

Just saying hi as I've just joined.

I have has PSA for a number of years now, I take naproxen for the pain and sulphasalazine.. but seeing the specialist in 2 weeks for review and maybe changing to methotrexate.

Looking forward to chatting to you all
Chris

Hi Chris and a big   to the club, I'm glad you found your way here, and I hope you will enjoy meeting the members, Sorry to hear you are suffering with psoriatic arthritis, I guess the sulfasalazine is failing you and they are moving you on, Methotrexate does tend to work well on the arthritis, but many get difficult side effects ( not everyone) but I did, I know these days they offer injections on it so it may be what you will get

You will probably have to fail on Methotrexate before they consider anything else, I hope it works well for you and gives you relief
As Caroline has said have a good look around the forum and see what others are using , we are a very friendly club and are happy to answer any questions you may have, or if you can't find something just shout .....I hope you will join us in the off topic section some time where we talk about anything but psoriasis

We have a free monthly newsletter which you can subscribe to here Groups

[CC66]

Hi Chris and a big   to the club, I'm glad you found your way here, and I hope you will enjoy meeting the members, Sorry to hear you are suffering with psoriatic arthritis, I guess the sulfasalazine is failing you and they are moving you on, Methotrexate does tend to work well on the arthritis, but many get difficult side effects ( not everyone) but I did, I know these days they offer injections on it so it may be what you will get

You will probably have to fail on Methotrexate before they consider anything else, I hope it works well for you and gives you relief
As Caroline has said have a good look around the forum and see what others are using , we are a very friendly club and are happy to answer any questions you may have, or if you can't find something just shout .....I hope you will join us in the off topic section some time where we talk about anything but psoriasis

We have a free monthly newsletter which you can subscribe to here Groups

Cheers
 i did look into the side effects when Methotrexate was first mentioned to me, i think i have been lucky with meds and not suffered with side effects so far, so hopefully it will be the same. I'm sure many of you will appreciate, the constant ache does get me down sometimes and i long for some decent relief. 
On the Psoriasis side, i think i'm quite lucky... only mild in my scalp, but it has in the last few months started to appear in a very personal area which is not a great place to have skin dry out, the cracking can be very painful 

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Edit by Fred: Made quote work.

[Fred]

Hello Chris   to Psoriasis Club.

I too hate Methotrexate too, but like Jim said you will have to fail before being offered something else.

You can find more on the other options here:

Oral Treatments For Psoriasis

Biological Treatments For Psoriasis

*I changed your subject heading to "Hey from CC66" by the way to save on duplicate content. If you would rather have a different heading let me know.

Regards.

Fred.

[Turnedlight]

Hi there nice to meet you!

[CC66]

Hello Chris   to Psoriasis Club.

I too hate Methotrexate too, but like Jim said you will have to fail before being offered something else.

You can find more on the other options here:

Oral Treatments For Psoriasis

Biological Treatments For Psoriasis

*I changed your subject heading to "Hey from CC66" by the way to save on duplicate content. If you would rather have a different heading let me know.

Regards.

Fred.

Great info, cheers

[mataribot]

Hello. If you have RA, then you will be significantly better off with MTX, if you tolerate it.

[D Foster]

Welcome to the club Chris. not been to your neck of the woods for a very long time.
This is a great place to be and Fred has done us proud with the help of Jim we have s superb P/PsA forum that has more information on it than any other place that I have found.
Sorry to hear that you have PsA , I used Naproxen and it gave me stomach ulcers so the side effects from that was not good, I was on MTX for over nine years, six on oral and just over three years on the injections. It worked very well but the side effects built up to the point where I had to change to injections but then it built up again and I had to stop altogether. Most of my really bad side effects were stomach problems and I often wondered if the previous problems that I had with the Naproxen did not help at all and were a contributory factor.
I works very well for the PsA and it did work up to around 80% for the P , I am on Stelara at the moment which is great for the P but not very good for the PsA and in fact my dermatologist is hopefully changing me over to another bio in fact the same one as Fred which seems to be better for P and PsA.
I have been fine on Stelara but in the last week I have read a survey showing an increase in cancer of people using Stelara so after 5 years ish on it I think that the time has come to change, the survey may or may not be good that they have done but !!!!.
I know that MTX has got a bad name on here with some people but I think that people are prejudice against it just by hearsay as one thing I have learnt is that what works for one does not necessarily give the same results for someone else and that goes for side effects.
All the best have a good look around and don't mind the inmates as most of them are barmy.