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Psoriasis Club › HealthHealth Boards › Introductions v
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Looking for support

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Looking for support
Snowowl Offline
Newbie


Posts: 2
Threads: 2
Joined: Oct 2016
Gender: Female
Location: Western USA
Treatment: Tried Methrotrexate. Preparing to start Humira
#1
Thu-06-10-2016, 11:22 AM
All I want is real people to converse/interact with who have a similar condition. I hate feeling judged on my outside appearance for plaque psoriasis. I have this 'joke' I tell the people who try to understand me when most people treat me badly. I say God made my outsides match my insides- calloused. That is not true. But its something to say that they will try to understand. That's why I'm giving this site a try. If this doesn't work... then, yeah... I really am as alone as I feel.
Fred Online
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 66,984
Threads: 3,889
Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#2
Thu-06-10-2016, 11:33 AM
(Thu-06-10-2016, 11:22 AM)Snowowl Wrote: All I want is real people to converse/interact with who have a similar condition. I hate feeling judged on my outside appearance for plaque psoriasis. I have this 'joke' I tell the people who try to understand me when most people treat me badly. I say God made my outsides match my insides- calloused. That is not true. But its something to say that they will try to understand. That's why I'm giving this site a try. If this doesn't work... then, yeah... I really am as alone as I feel.

Well I don't think you feel alone here. We have a good mix of people always willing to share and support. Every one of us has psoriasis of one form or another, and all of us effected in different way.

We are also the only fully independent psoriasis website you will find. We have no advertising, sponsorship or donations, whereas others are money driven in one way or another whether it be to keep their advertisers/sponsors happy or to raise money for their websites/offices etc.

Here we are just a bunch of people like yourself, so if you feel Psoriasis Club is not working for you please do let us know as we genuinely do want to help others.
jiml Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 47,972
Threads: 357
Joined: Oct 2013
Gender: Male
Location: Norwich England
Psoriasis Score: 3
Treatment: Skilarence 5x120mg a day
#3
Thu-06-10-2016, 11:44 AM
(Thu-06-10-2016, 11:22 AM)Snowowl Wrote: All I want is real people to converse/interact with who have a similar condition. I hate feeling judged on my outside appearance for plaque psoriasis. I have this 'joke' I tell the people who try to understand me when most people treat me badly. I say God made my outsides match my insides- calloused. That is not true. But its something to say that they will try to understand. That's why I'm giving this site a try. If this doesn't work... then, yeah... I really am as alone as I feel.

Great you have found us. There is never a need to feel alone or misunderstood here, we are a small active group of fellow sufferers  who will always answer posts and we will always be friendly ..... thats the ethos of the site... we don't tolerate any unpleasantness ......

So join in and be comfortable here if you encounter any negativity just contact Fred or one of the forum helpers .... Thumb

Jim

Grizzly Bear Offline
I’m a born again lesbian & proud of it !

100 + Member I Just Cant Stop !
Posts: 10,064
Threads: 108
Joined: Dec 2014
Gender: Male
Location: Exmoor
Psoriasis Score: E = mc²
Psoriatic Arthritis Score: A = mc²
PQOLS: 69
Treatment: Carbolic Acid & Neat Bleach
#4
Thu-06-10-2016, 14:04 PM
[Image: m0152.gif][Image: m0152.gif][Image: m0152.gif]   [Image: m1277.gif]   Snowowl   [Image: m1253.gif]   [Image: m0152.gif][Image: m0152.gif][Image: m0152.gif]

Nice to see you Hedwig Snowy, how's Harry Potter these day's ?  Tongue

I'm the insane one on here, you'll find me down the corridor, 3rd padded cell on the left  Big Grin

You never have to be alone with P Snowy, we're all in the same boat.  Thumb

So, pop in, have a cup of tea & a chat when your ready but most of all, enjoy yourself & ask anything about our nasty skin disease, we will do our best to answer you  Bigarm

GB GB


By the way, is this you...........................

[Image: nWAdsZc.jpg]
JohnB Offline
I wanted to be an Engineer when I grew up, but was told I could'nt do both

100 + Member I Just Cant Stop !
Posts: 4,725
Threads: 36
Joined: Jan 2016
Gender: Male
Location: Lancashire UK
Psoriasis Score: 10
Psoriatic Arthritis Score: Hmm Maybe
PQOLS: 5
Treatment: Otezla/Apremilast & Enstilar occasionally.
#5
Thu-06-10-2016, 14:58 PM
Hi Snowowl and a very warm welcome to our select bunch. Wave 
There are the odd one or two people who have joined in lieu of partners, but on the whole we all suffer from this confounded disease one way or another. Please dont be afraid to ask anything, there is no such thing as a dumb question on here, but you can guarantee you will get an honest answer but please remember we are not health professionals. If you haven't done so already I would strongly recommend you get referred to a Dermatologist and get the ball rolling on some treatment. You don't have to suffer in silence. The disease is manageable with various lotions and potions. Take a good wander through the forum there is a wealth of info here . . . .   .  and we may even see you in the bar
Turnedlight Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 6,116
Threads: 62
Joined: Apr 2015
Gender: Female
Location: Uk
Treatment: Skyrizi
#6
Thu-06-10-2016, 15:43 PM
Aww no - you're not alone, there's quite a few of us with the same skin as you. I feel that if everyone with psoriasis had it on display, everyone would know what it was and wouldn't look twice because its pretty common. But sadly many people don't seem to have heard of it.
Welcome and I hope you feel at home here, the inmates are a bit crazy though.. Tongue

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