Cosentyx for psoriatic arthritis Fred's journey

[Bill]

Have you tried a topical other than a steroid or coconut oil with Cosentyx, Fred? I like your optimism for biologicals, but they still aren't the whole package (unlike DMF).

[Maryam]

oh no, that sounds horrible Fred, if you don´t want to switch maybe try Enstilar or some other topical. There are also creams with the vitamin D derivate only (silkis is the brand I believe).

[JohnB]

So the creams aren't working, welcome to my world.  As Diprobase sounds like a steroid, it may not be wise to jump onto Enstilar too quickly.
Would it be worth going on a non bio as well as the Cosentyx? I know MTX is out but there is still Acitretin or  a DMF derivative - it might just help?

[jiml]

Fred I’m sorry to hear that cosentyx alone isn’t tackling the Psoriasis and you are going through a flare .
I would try the  enstilar if they will prescribe it as moisturisers like coconut oil and diprobase are just moisturisers and it certainly sounds as if the cosentyx needs help with your skin

Probably then when stress levels are better cosentyx may cope on its own

[Fred]

Thank you all for the support, it's appreciated.

Is it possible to go back to the Stelara even if it's just until you have the P under control Fred, I have decided to stay on the Stelara for the time being as I remember when the P was really bad and it's a toss up which is worst P or PsA  but I think the P Has it.

It is possible to go back ot Stelara Dave, but I don't want to. For me the psoriatic arthritis is the one I must control, and Cosentyx is doing that. I have never been this good and I have zero pain. So I'm not happy to stop the Cosentyx even just to get the psoriasis down, plus Stelarta had already failed at that anyway.  

Have you tried a topical other than a steroid or coconut oil with Cosentyx, Fred? I like your optimism for biologicals, but they still aren't the whole package (unlike DMF).

I was thinking of asking for some Dovonex, but it never really done a lot last time I tried it. I agree Bill the Bio's are still not the whole package, I don't think anything is not even your DMF but anyway I won't be using it even if it was available from my dermatologist which it is not.

oh no, that sounds horrible Fred, if you don´t want to switch maybe try Enstilar or some other topical. There are also creams with the vitamin D derivate only (silkis is the brand I believe).

Thank you Maryam, I do still have some Silkis I may look at the date and see if it's worth a go. As for Enstilar unfortunately it's not yet available in France for reimbursement so not an option.

So the creams aren't working, welcome to my world.  As Diprobase sounds like a steroid, it may not be wise to jump onto Enstilar too quickly.
Would it be worth going on a non bio as well as the Cosentyx? I know MTX is out but there is still Acitretin or  a DMF derivative - it might just help?

Yes you are right John the creams never did do much, I was just hoping to get it down and stop the flare-up. As for using something with Cosentyx, the only one they will run along side is Methotrexate. That aint gonna happen.

---

I tanked myself up with Merlot last night and turned in early after covering it in Calamine Lotion and managed to get a good sleep which has helped. I was surprised to see my legs were still covered in the white chalky stuff and I must have put a lot on as it took a while to get it off in the shower.

I was also pleasantly surprised to find that my legs didn't sting anywhere near as much as they had been. When patting the area dry I managed to get a few flakes off without damaging the skin, and it looked like it had calmed down a bit. So I have plastered my legs again with more Calamine Lotion and I'm keeping off my feet as I found walking around was splitting the skin on my shins. So far so good. It's calmed down a hell of a lot and I think I am going to wait till Monday before I decide to phone the dermatologist.

This flare-up has been slowly creeping up on me but this past few days it had gone mental. I guess I had forgotten how sore this damn psoriasis can be since being almost free of it for almost 10 years.  

I'm working hard to keep positive, and I'm pleased to say I still have zero psoriatic arthritis.  

[Fred]

Fred I’m sorry to hear that cosentyx alone isn’t tackling the Psoriasis and you are going through a flare .
I would try the  enstilar if they will prescribe it as moisturisers like coconut oil and diprobase are just moisturisers and it certainly sounds as if the cosentyx needs help with your skin

Probably then when stress levels are better cosentyx may cope on its own

Sorry Jim I missed your post. Double Bubble  

Yes it does look like Cosentyx is going to need some help. I'm hesitating calling my dermatologist as I'm afraid she may pull me off it as I won't take Methotrexate.

I can see I have a lot of thinking to do before my next appointment in January.  

[jiml]

I’m glad you are feeling better this morning and the calamine lotion calmed it down
I have just read that you say enstilar is not available to you yet in France so ignore my last post apart from the bit

[Fred]

[artemie]

not fair.... can't think of else anything that would help you, as you're already taking Cosentyx of course and reading your replies here . But for the soles of your feet, maybe a home UVB thing that you can plant your feet on?

[Fred]

not fair.... can't think of else anything that would help you, as you're already taking Cosentyx of course and reading your replies here . But for the soles of your feet, maybe a home UVB thing that you can plant your feet on?

No the soles of my feet are fine Artemie. When I was saying about it being difficult to walk it was because every time I moved the psoriasis was splitting on my shins.

But if you're offering a foot massage, I'll give it a try.