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Inverse psoriasis

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Inverse psoriasis
Lorraine Offline
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#1
Wed-09-03-2016, 17:40 PM
My boyfriend has been suffering from inverse psoriasis for about five months now, he has suffered from small patches of plaque before, currently they have improved however and are not a concern, but the patch of inverse he is suffering from is really taking a toll on what he feels he is able to do as he loves cycling and being active and the places he feels he is able to go, and therefore affecting how he is generally feeling. 

A beach holiday we had seemed to trigger the psoriasis, which in the beginning seemed to be infected as well, but doesn't seem to be any longer as there isn't really any itching, but the skin does split quite frequently. 

I'm trying to do as much as I can to help, but it's hard when there isn't a complete solution, he currently uses Butt paste and Sudocrem which seem to help somewhat. But considering he feels like he has to rely on these creams he's worried about going abroad, especially to hot places, with sand etc, even though this would improve plague, it would cause him a lot of discomfort. 

In terms of holidaying, what do you do in terms of medicating and swimming and what ways have you found to decrease the discomfort so you are able to continue doing your normal activities? 

Any advice would be greatly appreciated.
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Fred Online
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Treatment: Bimzelx / Coconut Oil
#2
Wed-09-03-2016, 17:54 PM
Hello Lorraine  Welcome to Psoriasis Club.

Is he seeing a GP about it? If he is then ask for a referral to a dermatologist. If not then he needs to see a GP first. A GP will probably prescribe Dovobet or Dovonex you can read more about them here: Dovobet And Dovonex (What's the difference ?) Those are usually the first step and they can help but it's not going to be a long term fix but it could be enough to be able to get on the beach and go swimming depending how bad the psoriasis is.

Unfortunately until he has tried the creams he may not get anything else, though it may be worth asking about light treatment (don't be tempted to go it alone on this as it's important to get it right) from his GP / Dermatologist. As he is an outdoor type that could be the best way to go in my opinion.

Others may have some other suggestions. But the sooner he gets to see a dermatologist the sooner he will be able to find something to manage it. *But there is no cure so tell him not to waste his money on any scams, there are a lot out there and they will only empty his wallet.

Fred.
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jiml Offline
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Psoriasis Score: 3
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#3
Wed-09-03-2016, 17:58 PM
(Wed-09-03-2016, 17:40 PM)Lorraine Wrote: My boyfriend has been suffering from inverse psoriasis for about five months now, he has suffered from small patches of plaque before, currently they have improved however and are not a concern, but the patch of inverse he is suffering from is really taking a toll on what he feels he is able to do as he loves cycling and being active and the places he feels he is able to go, and therefore affecting how he is generally feeling. 

A beach holiday we had seemed to trigger the psoriasis, which in the beginning seemed to be infected as well, but doesn't seem to be any longer as there isn't really any itching, but the skin does split quite frequently. 

I'm trying to do as much as I can to help, but it's hard when there isn't a complete solution, he currently uses Butt paste and Sudocrem which seem to help somewhat. But considering he feels like he has to rely on these creams he's worried about going abroad, especially to hot places, with sand etc, even though this would improve plague, it would cause him a lot of discomfort. 

In terms of holidaying, what do you do in terms of medicating and swimming and what ways have you found to decrease the discomfort so you are able to continue doing your normal activities? 

Any advice would be greatly appreciated.

Hi Lorraine and welcome  Welcome to the forum. I admire you for looking for answers for your boyfriend, I wish I could offer some advice ,but I would get him to see his doctor and get a referral to a dermatologist who has lots of things to offer to help him

He needs to be aware that there is nothing to cure him but control is possible and should see a dermatologist and tell him how it's affecting his quality of life

My medications are tablets so aren't affected by holidaying. When I was on creams I used to take them on holiday with me and use them sparingly in the evening

Good luck,and I hope you are successful helping him

Jim  Thumb
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Lorraine Offline Author
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#4
Wed-09-03-2016, 18:10 PM
Thank you for getting back to me so quickly, he has seen the GP a couple of times for the inverse, and he has been prescribed with, I think two different types of steroid cream, I should've said in my first post, but he's very reluctant to use them because of the long term possibility of thinning the skin, as the psoriasis is between the buttocks. I know he was using one for a couple of weeks like the doctor recommended and as soon as he stopped it came straight back. 

But I think a dermatologist would be the next step in trying to find something to control it a bit better. 
It's just horrible to see it impacting him so much, and to not seeing him do what he loves.
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Fred Online
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#5
Wed-09-03-2016, 18:21 PM
(Wed-09-03-2016, 18:10 PM)Lorraine Wrote: Thank you for getting back to me so quickly, he has seen the GP a couple of times for the inverse, and he has been prescribed with, I think two different types of steroid cream, I should've said in my first post, but he's very reluctant to use them because of the long term possibility of thinning the skin, as the psoriasis is between the buttocks. I know he was using one for a couple of weeks like the doctor recommended and as soon as he stopped it came straight back. 

But I think a dermatologist would be the next step in trying to find something to control it a bit better. 
It's just horrible to see it impacting him so much, and to not seeing him do what he loves.

Yes it will thin the skin and when you stop it usually will come back, but you can't stay on it for ever. OK so now he has seen a GP and tried the creams he needs to go back and ask for a referral to a dermatologist. This can sometimes be difficult but tell him to lay it on a bit and explain that it making his quality of life unbearable and he no longer wants to go out socialising.

Have a look at these two threads they may help:

Dermatology Life Quality Index (DLQI)
NICE Quality Standards for Psoriasis

Also get him to try Coconut Oil between his buttocks. But yes it's dermatology time.

EDIT: For some reason I put Guilty of life. Obviously it should be Quality. Big Grin
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Caroline Offline
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#6
Wed-09-03-2016, 18:23 PM
Lorraine,

Welcome to psoriasisclub.
If it is really severe this inverse psoriasis, and not treatable with creams, indeed take care not to thin the skin too much,  then there is finally no way to avoid systemic treatment, that is pills.

There is one other option he can try in the mean time and that is a change of diet. My doctor states that the paleo diet, the diet human beings had before we grew the land and made bread, is the better diet.

So avoid, potatoes, bread, pasta, anything made of wheat, no roasted peanuts so no peanut butter  Big Grin . Eat many vegetables, salads, fish, meat, etc.
I don't know if it works, but there are people who are able to get rid of psoriasis only by diet. We have a section on this over here in the forum, see the natural treaments on this.

Cheers,
Caroline.
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mataribot Offline
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#7
Wed-09-03-2016, 18:33 PM (This post was last modified: Wed-09-03-2016, 18:34 PM by mataribot.)
The problem wih inverse psoriasis is that typically coexist with yeast. The use of steroid creams typically helps both initially, but comes back worse. I don't like using steroids on them because of that. Both methotrexate (mtx), Cell Cept, and Cyclosporine seem to work well for my inverse, but all of them have serious side effects. Just my experience with them.
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Caroline Offline
You must hurry if you ever want to catch a chicken...
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#8
Wed-09-03-2016, 18:36 PM
Against yeast miconazol powder may be of use. This jumps just in my memory because of the post of mataribot.
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Turnedlight Offline
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#9
Wed-09-03-2016, 23:06 PM (This post was last modified: Wed-09-03-2016, 23:09 PM by Turnedlight.)
Yes I was going to say they often prescribe something with anti fungal in it for inverse, like fucibet. Nope sorry that's an antibacterial one. But I'm pretty sure I've been given that for inverse.
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mataribot Offline
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#10
Thu-10-03-2016, 01:22 AM
My dermatologist recommends typical baby butt paste, but just makes mine worse.
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