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Psoriasis since 4 and having a good life living with it.

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Psoriasis since 4 and having a good life living with it.
Rose883 Offline
Novice


Posts: 5
Threads: 1
Joined: Sep 2014
Gender: Female
Location: Idaho
Treatment: diet, exercise, simple handmade lotions
#1
Thu-04-09-2014, 18:32 PM
I have had psoriasis since I was 4 years old (yup, not usual...the Dr.s had fun studying me in the sixties). It has been quite a journey going from doctor's office to doctor's office. I used tar and cortizone and anthralin and psoralin and methytrexate and light boxes and sea water. My mother tried every remedy going from shark, seal, whale oil to white turkey meat only to butter from New Zealand to....you get the idea. I drank this kind of drink or that which was supposed to have some healing property. She brought me to this healer and that. The only thing I got from it was the profound feeling that I was defective and not human. Bless her for caring, but the best thing I have found is to simply accept myself with my anomalies.

As I have done so, I have altered my diet and activity. I have gained understanding and compassion for others coping with difficulties. I have also learned to pay attention to my skin as an indicator of the need to balance and improve my life better. It is a great meter for how much stress I am under.

I have found that eating a good diet (including lots of fish - I have gained fishing as a hobby now) helps keep my skin under control. I avoid all stimulants (no chocolate, caffeine, etc.), I avoid nightshades, only fish and nuts for protein (although I have not learned to avoid cheese that well yet), no fried foods, no sugar (I do use raw honey), whole grains only, few or no processed foods. Menopause caused a flareup, but I am getting things back in order by living the healthy eating principles more strictly. I also make sure that I am outside as much as possible being active in the sunshine (I walk 3-5 miles a day). The side effect of a diet like this is lots of energy, and not being able to eat out at fast food restaurants very much.

I am careful to study all that is given to me by anyone now. I have learned that most natural oils help with the lesions but do not remove it. I have also learned that some remedies have a backlash effect, meaning that the psoriasis comes back worse than ever if you do not increase the dosage or usage (some drugs and remedies will do this and will cause any number of side effects from being sick all the time to sending the individual on an emotional rollercoaster in addition to causing birth defects if you are the child-bearing type). Do your own homework and decide about the risks you will take. I am currently trying out a Vitamin D.

I guess that's it for now. Thank you for this forum where no one is trying to sell me anymore snake oil! I am grateful I get to hear and explore some of the more natural ways of living and being healthy with my skin.
jiml Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 47,972
Threads: 357
Joined: Oct 2013
Gender: Male
Location: Norwich England
Psoriasis Score: 3
Treatment: Skilarence 5x120mg a day
#2
Thu-04-09-2014, 18:53 PM
Hi Rose ( I'm guessing that's your name) a big Welcome to the club . You've come to a good place where we are all psoriasis sufferers some worse than others some with PSA but we all realise how normal life limiting it is. We offer and are glad to exchange our experiences and support each other when things go wrong.
I see you have already noticed that no one will try to sell you a cure in here, we just discuss what's working for us.
We are kept up to date on the latest drug testing. Fred ( who runs the site) is constantly adding new posts on the latest research

I wish I had the willpower to change my lifestyle but I fear it would just make me miserable, but I admire anyone who can keep to a strict diet , but not for me I fear.

I can't offer any advice reference vitamin d but I believe you can overdose and people are told to cut back in the summer as you should be able to get your vitamin d from the sun just be wary
Vitamin d toxicity can cause serious problems

I wish you much luck and hope you keep us updated with your progress
Jim Thumb
Caroline Offline
You must hurry if you ever want to catch a chicken...
*
Forum Helper
Posts: 26,500
Threads: 113
Joined: Nov 2011
Gender: Female
Location: In between the tulips
Psoriasis Score: 3
Psoriatic Arthritis Score: 3
PQOLS: 4
Treatment: Got back to DMF slow release
#3
Thu-04-09-2014, 19:18 PM
Welcome Rose !

You make quite an entrance in the forum with your personal story on how you cope with psoriasis, I've already passed on your post to Elvi, for whom your information can be valuable.
So that is a more than welcome with so much information on one go.

As Jim said, this is a fellow psoriasis site. We all have the same and share our experiences, have discussion, give advice and warnings.

When we are done with the serious stuff, we go to the off-topic section, for a drink or a chat.
We are from all over the world, that makes it very nice.

Have fun!
Caroline
Kat Offline
Take my advice; I don't use it anyway.
*
Forum Helper
Posts: 9,829
Threads: 84
Joined: Aug 2014
Gender: Female
Location: GA
Psoriasis Score: 3
Treatment: Clobetasol Topical
#4
Thu-04-09-2014, 19:19 PM
Welcome Rose. What I love about this forum is that there are people who try naturally, those who use different medicines and methods but we all support each other while finding what works for us. Wave
Fred Offline
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 66,918
Threads: 3,887
Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#5
Thu-04-09-2014, 19:26 PM
Hello Rose Welcome to Psoriasis Club.

(Thu-04-09-2014, 18:32 PM)Rose883 Wrote: The best thing I have found is to simply accept myself with my anomalies.

Wise words indeed.


(Thu-04-09-2014, 18:32 PM)Rose883 Wrote: Do your own homework and decide about the risks you will take.

More wise words. Thumb


(Thu-04-09-2014, 18:32 PM)Rose883 Wrote: Thank you for this forum where no one is trying to sell me anymore snake oil! I am grateful I get to hear and explore some of the more natural ways of living and being healthy with my skin.

Yes you can be sure no one will try to sell you snake oil here, in fact no one will try to sell you anything at Psoriasis Club. If they do please don't hesitate to let me know and they will be shown the door followed by a big boot. Smile

I see you have found your way around so will leave you to it, but please shout out if you need any help. We are a small group, but you will find us all very friendly.

Regards.

Fred.
slm Offline
Member


Posts: 30
Threads: 2
Joined: May 2014
Gender: Female
Location: Australia
Psoriasis Score: 32
Treatment: creams
#6
Thu-04-09-2014, 23:25 PM
Hi Rose. Great to read your wisdom and experience. I hope to be as wise and sensible as you. Thank you for your message.
Elvi Offline
Member


Posts: 11
Threads: 1
Joined: Sep 2014
Gender: Female
Location: England
Psoriasis Score: 21
Treatment: Dithranol
#7
Fri-05-09-2014, 08:08 AM
(Thu-04-09-2014, 18:32 PM)Rose883 Wrote: I have found that eating a good diet (including lots of fish - I have gained fishing as a hobby now) helps keep my skin under control. I avoid all stimulants (no chocolate, caffeine, etc.), I avoid nightshades, only fish and nuts for protein (although I have not learned to avoid cheese that well yet), no fried foods, no sugar (I do use raw honey), whole grains only, few or no processed foods. Menopause caused a flareup, but I am getting things back in order by living the healthy eating principles more strictly. I also make sure that I am outside as much as possible being active in the sunshine (I walk 3-5 miles a day). The side effect of a diet like this is lots of energy, and not being able to eat out at fast food restaurants very much.

Good Morning Rose!

Welcome to this forum!

I am very interested in this natural and healthy eating habit you have taken up! Tell me have you found any foods or herbs (especially) that make a particular difference? I am a keen gardener and would be very interested in being able to grow something that might help!
leopardless Offline
leopardless


Posts: 77
Threads: 9
Joined: Oct 2011
Gender: Female
Location: Forest near mountains NY
Treatment: Variety of treatments
#8
Sat-20-09-2014, 04:11 AM
Hello Rose,

Welcome
Troll Offline
I can see you in the dark.

100 + Member I Just Cant Stop !
Posts: 527
Threads: 12
Joined: Sep 2011
Gender: Female
Location: On the fence
Psoriasis Score: 32
Treatment: Sandpaper
#9
Mon-22-09-2014, 14:27 PM
Belated hello Rose Wave

*This thread is closed. All introductions are closed after 90 days to save confusion.
You are welcome to start new threads in any other sections of your choice.
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