biologics or meds

[glenda grant]

"cl""cmy name is glenda and i have had psoriasis and psoriatic arthritis.I have had the psoriasis for about 15 yrs and didn't know i had it.Thought i had dandriff and dry skin on my ears.Then 9yrs ago my knees started swelling i was sent to a Rhemmy Dr he diagnosed me as having psoriatic arthritis.Tried so many medications none worked.So i was put on Remicade and had some adverse effects.So i am now waiting on a new drug Simponi Aura.The place where i got my infusion has not gotten back to my Dr.I am so miserable i am covered in plaques or scales.I went to see my Dermotologist and she suggested Stelara.I am going to have to get some help somewhere.I also have scalp psoriasis.No matter what i use nothing helps.

[slm]

Hi Glenda. I too have has psoriasis and PsA for years. I have been on Simponi as a monthly injection for over a year. It helped me greatly for my arthritic pain. My skin has slowly changed. I am also taking Vit D. I hope you are able to find something that helps. I look forward to hearing good news. I am gradually getting better with my diet too. Bless you.

[jiml]

Hi Glenda and to the forum, I can imagine your distress with the disease when you are waiting for a drug, If its getting you down waiting for it, I would go with the Stelara, it's a very good tried and tested drug, giving good results.
You have come to a place where you will be among fellow sufferers who can empathise with your plight, as fellow sufferers we can share our experience and offer support. I hope you get some relief soon, have you been offered any pain relief and topical treatments while waiting for the Simponi or any idea when the stuff may be available?
Thanks for joining the club, you will find us a small but friendly group of sufferers
Jim

[Fred]

Hello Glenda to Psoriasis Club.

Your poll is a difficult one, as what works for some may not work for others. It's more a matter of finding what is best for the individual.

I too had a reaction to Remicade as I did Humira, Enbrel was the best for me but it just stopped working. Stelara however has totaly given me my life back, I've now been on it for over 4 years and I have a thread about it here if you want to have a look: Stelara round two

So in answer to your poll For Me Bio is the way to go.

You can also find out more about the Bio treatments here: Biological Treatments For Psoriasis

Good luck and please feel free to start your own thread in Prescribed Treatments For Psoriasis and update it with your progress as it may help others.

Regards.

Fred.

[glenda grant]

Hello Glenda to Psoriasis Club.

Your poll is a difficult one, as what works for some may not work for others. It's more a matter of finding what is best for the individual.

I too had a reaction to Remicade as I did Humira, Enbrel was the best for me but it just stopped working. Stelara however has totaly given me my life back, I've now been on it for over 4 years and I have a thread about it here if you want to have a look: Stelara round two

So in answer to your poll For Me Bio is the way to go.

You can also find out more about the Bio treatments here: Biological Treatments For Psoriasis

Good luck and please feel free to start your own thread in Prescribed Treatments For Psoriasis and update it with your progress as it may help others.

Regards.

Fred.

[glenda grant]

Thanks all for the valuable information,so thankful for people who understand and are going thru some of the same things that i am.I have been calling my Rhemmy to find out if he had gotten in touch with my treatment center.He had called several times and they have not called him back.So tomorrow after i go to the Soc.Sec. Office to apply for Disability,which they will probably deny me.Then i'll get a Lawyer i can't work it takes me an hour to get going in the morning.Every day it keeps getting worse.So i will see if my Dr. can find me another place to get my infusion.Also i'll check into Stelara someone has to help me.I'll keep in touch to let you know what goes on with me.God be with you!!!

[glenda grant]

Hi Glenda. I too have has psoriasis and PsA for years. I have been on Simponi as a monthly injection for over a year. It helped me greatly for my arthritic pain. My skin has slowly changed. I am also taking Vit D. I hope you are able to find something that helps. I look forward to hearing good news. I am gradually getting better with my diet too. Bless you.

I didn't know it came in injection i was told i would get a half hour infusion.But a shot would work for me.I am taking Vit D 2000mg a day i can't take pain meds due to high liver count.Never drank alcohol,no drug use and i have liver and kidney issues.I can never have dye injected in my body.The kidney was damaged from a blood pressure med.Just can't seem to get ahead.I'll keep in touch thank for caring.We are all in this together my new friend. GOD bless!!!!!

[mataribot]

None of the available DMARDs in the US have shown much of any efficacy in preventing joint damage in PsA/SpA. So sadly, your only real choice is a biologic. However, today's biologics typically work better for axial symptoms and slower moving for joints like hands. Whatever your choice in biologics is, I'd give it 4 to 6 months before changing medications. Biologics take time to work and still having benefits for the skin and I have been on Stelara over 1.5 years.

[glenda grant]

I finally got news about my new biologic Semponi Aura the treatment site where i got Remicade doesn't do my new one.Took them almost 2 months to let me know.Actually i had to go to the office and demand an answer.Called my Rheumatologist and he is going to give me the treatment at his office.I feel much better cause at the other infusion center i was in the Hosp. 3 times due to a bad reaction(hives) and they never checked on me.It's all about money in the long-run.But my Dr. has been so good to me.When i didn't have insurance he only charged me $35 for my visit.I'll let you know when i get my treatment and how it turns out.

[jiml]

I finally got news about my new biologic Semponi Aura the treatment site where i got Remicade doesn't do my new one.Took them almost 2 months to let me know.Actually i had to go to the office and demand an answer.Called my Rheumatologist and he is going to give me the treatment at his office.I feel much better cause at the other infusion center i was in the Hosp. 3 times due to a bad reaction(hives) and they never checked on me.It's all about money in the long-run.But my Dr. has been so good to me.When i didn't have insurance he only charged me $35 for my visit.I'll let you know when i get my treatment and how it turns out.

Two months to tell you they can't do it !!!! How dare they mess with people's lives like that. They should have to suffer! Perhaps then they would be more caring.
Sounds like you have a good rheumatologist, let's hope you get the infusion soon and can start getting some relief........
So are they just waiting for delivery of the Semponi Aura are they, or are you going on Stelara?