Hello

[Justin-UK]

Hi, my name is justin I'm 27 from the uk.

Have had psoriasis that long I can't remember not having it. Usually just had plaque on my elbows and knees..... Until it disappeared for months on end..... Happy day!

It is now back with vengeance and around 50% of my body is covered! I hide away from my wife, can no longer take the kids swimming. Had a little cry about it.

This is my first time seeking outside help but feel pretty low and desperate.

Thanks for listening

[jiml]

Hi, my name is justin I'm 27 from the uk.

Have had psoriasis that long I can't remember not having it. Usually just had plaque on my elbows and knees..... Until it disappeared for months on end..... Happy day!

It is now back with vengeance and around 50% of my body is covered! I hide away from my wife, can no longer take the kids swimming. Had a little cry about it.

This is my first time seeking outside help but feel pretty low and desperate.

Thanks for listening

hi Justin and your story reminds me of my own I well know the despair when the kids want to go swimming and you are unwilling to uncover when my girls were young I used to dread going to the beach and sitting there covered up when every one else was in swim wear.
Photo therapy used to work well for me and in the winter it was nice to have a tan . Are you.using any creams as well as photo therapy?
I have since those days been on Methotrexate tablets but found them good but side effects not good, I have now been on Fumaderm tablets for over a year and since starting them have not had a flare up.
Here you will find a friendly bunch all with the same problem and all very supportive. keep your chin up there is a solution out there to suit you keep in touch

[Justin-UK]

My dermatologist told me to just moisturise all the time, I have some dovebet gel that seems to work on my scalp.

Yeah it's pretty shit, usually I'm really outgoing but finding myself talking to less and less people, to the point I don't really have any friends.

It's not so much having psoriasis that's the problem, I can deal with the constant itch and soreness.....I think it's how I feel everyone looks at me, hear then talking etc. feel like a lepper! That's what really gets me down, I feel so unattractive to my wife I can't even remember when the last time she saw my psoriasis.

So these tablets? Can anyone get them? Lol, defo better than lubing myself everyday for hours.

How long have you had it? And what's your thought on going out in public in a T-shirt? Does it bother you?

Ps. Do you have a shorthand way of writing psoriasis lol sick of writing it now ha ha

[jiml]

My dermatologist told me to just moisturise all the time, I have some dovebet gel that seems to work on my scalp.

Yeah it's pretty shit, usually I'm really outgoing but finding myself talking to less and less people, to the point I don't really have any friends.

It's not so much having psoriasis that's the problem, I can deal with the constant itch and soreness.....I think it's how I feel everyone looks at me, hear then talking etc. feel like a lepper! That's what really gets me down, I feel so unattractive to my wife I can't even remember when the last time she saw my psoriasis.

So these tablets? Can anyone get them? Lol, defo better than lubing myself everyday for hours.

How long have you had it? And what's your thought on going out in public in a T-shirt? Does it bother you?

Ps. Do you have a shorthand way of writing psoriasis lol sick of writing it now ha ha

Hi again I have had P since I was a teenager I am now at retirement point. I have been through most treatments and you are right it is a shitty condition I would always wear long sleeves to cover up ,but it's not so easy covering your face. Ask your dermatologist about methotrexate which is very effective although the day after taking the tablets I used to feel awful. I would mention Fumaderm to them they are not available from your GP

The last 3 or 4 years have been great for me the methotrexate worked brilliantly and apart from the transition from methotrexate to Fumaderm I have been able to enjoy swimming and beach life like never before. The hoovering has been cut to normal, I am now able to wear dark shirts and jackets without looking like I had just come in from a snow storm.

I think the tabs are now becoming more available in the UK worth a chat with dermatologist. Tell them of your despair most of them realise that the psychological side of the condition is as important as treating the symptoms. I used to go to the hospital training school to show students what p looked like and tell them about the impact it had on life. I was able to get good advice from the tutors and one of them pointed me towards Fumaderm . Now when they ask me to go I have refuse as I have nothing to show. Hope to chat more.
Jim

[Justin-UK]

Hi sue, everyone seems nice here, I've said more on here than I've ever told anyone... In fact I've never really spoke about how I feel to anyone.

So your the flirt then lol, how long you been with your new bf? I only ask as wonder how he feels towards the P? I want to ask my wife but scared for the answer

[Justin-UK]

Needed 1 more post for PM

[Fred]

My dermatologist told me to just moisturise all the time, I have some dovebet gel that seems to work on my scalp.

Hello Justin to Psoriasis Club.

Your dermatologist is right "Moisturise, Moisturise, Moisturise, and throw some more on just for luck. I'm a great fan of Coconut Oil
Re Dovobet. Have a read of this thread and be careful with it: Dovobet And Dovonex (What's the difference ?)

Yeah it's pretty shit, usually I'm really outgoing but finding myself talking to less and less people, to the point I don't really have any friends.

It's not so much having psoriasis that's the problem, I can deal with the constant itch and soreness.....I think it's how I feel everyone looks at me, hear then talking etc. feel like a lepper! That's what really gets me down, I feel so unattractive to my wife I can't even remember when the last time she saw my psoriasis.

Friends who knock you for having psoriasis are not friends and not worth the bother, psoriasis can strike anyone at any time and they could be next.

Talk with your wife about it, it's important to have someone close who you can talk with. Show her the Psoriasis Club forum and get her to read through some of the threads, the more you talk about it the easier it gets. I think if you ask most on here they will tell you having an understanding partner is a huge help, and if your wife doesn't know or you hide it from her how can she help?  

So these tablets? Can anyone get them? Lol, defo better than lubing myself everyday for hours.

Don't go rushing into things. What works for some may not work for others, like Jim said talk with your dermatologist and mention it is affecting your quality of life they are better suited at finding something that works for you. Has your dermatologist done a Dermatology Life Quality Index (DLQI) ? you can find more about it here: Dermatology Life Quality Index (DLQI)

How long have you had it? And what's your thought on going out in public in a T-shirt? Does it bother you?

Me about 35 years now and though like you I didn't like showing it, I found out that people don't notice as much as you think. And no it doesn't bother me now because if someone made a nasty comment I would tell them to sod off and get a life.  

Ps. Do you have a shorthand way of writing psoriasis lol sick of writing it now ha ha

P Though to be honest I prefer to spell it out as it helps me live with it. Psoriasis is what it is and Psoriasis is what I've got. That's life.

Justin these are just my thoughts and we all have different ways of coping, but now you have found us just jump on in. You will find a small but friendly bunch who understand and are always willing to offer support.

Oh and nothing wrong with having a little cry about it, we've all been there mate.

Regards.

Fred.

[Justin-UK]

Cheers Fred, got myself a profile pic now as feel I'm going to be a permanent user. Still trying to work out the site though.

[Fred]

Cheers Fred, got myself a profile pic now as feel I'm going to be a permanent user. Still trying to work out the site though.

Yes just answered your post about Profile Pic

That would be nice if you became permanent you will soon find you are helping others which in turn will make you feel good.

If you get stuck on the forum just shout out, someone will find you. Or have a look through the Help using the forum for some tips.

[jiml]

Cheers Fred, got myself a profile pic now as feel I'm going to be a permanent user. Still trying to work out the site though.

If you work it out let me know I'm still scratching my head ( no snowstorm )