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Back Into Hell

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Back Into Hell
jiml Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 47,972
Threads: 357
Joined: Oct 2013
Gender: Male
Location: Norwich England
Psoriasis Score: 3
Treatment: Skilarence 5x120mg a day
#311
Mon-15-06-2015, 05:59 AM
(Mon-15-06-2015, 05:40 AM)Brighteyes Wrote: It's been a crappy couple of weeks folks.
Recurring throat infections, terribly sore, bleeding gums.
Had to chase up my meds AGAIN!!!  Angry
Had to pay for a new front door (long story, will tell it later, but quite funny really).
Been sleep deprived which has led back to anxiety.
Still losing weight.
Feet not getting any worse but still not getting me mobile to the point where cyclosporine did.
Feeling  Wall
So not a good couple of weeks then  Confused  I think sleep deprivation and tiredness make everything seem worse. Throat infections as well make you feel wretched . I can relate to both of those.
Positives are you're losing weight and your feet are no worse.  Big Grin  and you have a new front door  Wink  
I hope you feel better soon. Have the driving lessons started yet , I only ask so I know when to stay off the roads
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D Foster Offline
“You only live once, but if you do it right, once is enough.”

100 + Member I Just Cant Stop !
Posts: 25,164
Threads: 17
Joined: Dec 2014
Gender: Male
Location: East Yorkshire
Treatment: Stelara 90mg and G&T
#312
Mon-15-06-2015, 09:57 AM
(Mon-15-06-2015, 05:59 AM)jiml Wrote:
(Mon-15-06-2015, 05:40 AM)Brighteyes Wrote: It's been a crappy couple of weeks folks.
Recurring throat infections, terribly sore, bleeding gums.
Had to chase up my meds AGAIN!!!  Angry
Had to pay for a new front door (long story, will tell it later, but quite funny really).
Been sleep deprived which has led back to anxiety.
Still losing weight.
Feet not getting any worse but still not getting me mobile to the point where cyclosporine did.
Feeling  Wall
So not a good couple of weeks then  Confused  I think sleep deprivation and tiredness make everything seem worse. Throat infections as well make you feel wretched . I can relate to both of those.
Positives are you're losing weight and your feet are no worse.  Big Grin  and you have a new front door  Wink  
I hope you feel better soon. Have the driving lessons started yet , I only ask so I know when to stay off the roads

Lot of throat problems going around at the moment, can't get rid of mine, don't like losing sleep as it makes things much worse , as Jim says at least some positives !! . Have you decided what you are learning to drive in yet ?
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Fred Offline
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 66,958
Threads: 3,888
Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#313
Mon-15-06-2015, 11:25 AM
Yep agree with that loosing sleep is not good, especially when you get in the circle of psoriasis getting worse, sleep getting worse and on it goes.  Angry

Oh well you could make a nice table for your patio from the old door, depending where the letter box was you could shove the pole of your sunshade in it.  Thumb
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Brighteyes Offline Author
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 286
Threads: 15
Joined: May 2013
Gender: Female
Location: York
Psoriasis Score: 9
Treatment: MTX
#314
Mon-15-06-2015, 13:40 PM
(Mon-15-06-2015, 11:25 AM)Fred Wrote: Yep agree with that loosing sleep is not good, especially when you get in the circle of psoriasis getting worse, sleep getting worse and on it goes.  Angry

Oh well you could make a nice table for your patio from the old door, depending where the letter box was you could shove the pole of your sunshade in it.  Thumb

Now this made me laugh. Clap
Big Grin
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Brighteyes Offline Author
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 286
Threads: 15
Joined: May 2013
Gender: Female
Location: York
Psoriasis Score: 9
Treatment: MTX
#315
Mon-15-06-2015, 13:51 PM
Going to send off for my provisional next month then book to start after the big school holidays.
Would have been sooner had I not had to pay out for a new door. Big Grin

What happened was:
I went to collect Alex from school & it was a glorious day. A friend told me she was having people round with their children for a spontaneous party and I should come. So I jumped at the chance (well, walked slowly to be precise).
It was fab. Alex rarely gets to socialise but he was having a blast on the trampoline and in the pool with half a dozen other kids.
We adults sat back with wine, party food and some music just relaxing and chatting, as you do.
I texted Nick at some point just to let him know as he was at work.
Well......after getting a taxi home (not realising it was gone 11pm) I discovered two police officers in my house. Confused
Unbeknown to me my O/H had not taken his phone or key out with him, couldn't get in and had been worried sick as to where we were.
Of course, to get in and check the house they had knocked a door panel through. Hence, a new door.
Talk about embarrassing. Blush
Anyway, we can laugh about it now. Big Grin
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Fred Offline
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 66,958
Threads: 3,888
Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#316
Mon-15-06-2015, 19:05 PM
(Mon-15-06-2015, 13:51 PM)Brighteyes Wrote: Going to send off for my provisional next month then book to start after the big school holidays.
Would have been sooner had I not had to pay out for a new door.  Big Grin

What happened was:
I went to collect Alex from school & it was a glorious day. A friend told me she was having people round with their children for a spontaneous party and I should come. So I jumped at the chance (well, walked slowly to be precise).
It was fab. Alex rarely gets to socialise but he was having a blast on the trampoline and in the pool with half a dozen other kids.
We adults sat back with wine, party food and some music just relaxing and chatting, as you do.
I texted Nick at some point just to let him know as he was at work.
Well......after getting a taxi home (not realising it was gone 11pm) I discovered two police officers in my house.  Confused
Unbeknown to me my O/H had not taken his phone or key out with him, couldn't get in and had been worried sick as to where we were.
Of course, to get in and check the house they had knocked a door panel through. Hence, a new door.
Talk about embarrassing.  Blush
Anyway, we can laugh about it now.  Big Grin

In the old days it wouldn't have been a problem, everyone had a spare key hanging on a piece of string just had to reach through the letter box to grab it. Bit pointless locking it really when you think about it. Big Grin
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Brighteyes Offline Author
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 286
Threads: 15
Joined: May 2013
Gender: Female
Location: York
Psoriasis Score: 9
Treatment: MTX
#317
Sat-04-07-2015, 13:11 PM
Well.......a few weeks on and everything changes.
Seems that my liver does not like the MTX and I've been ordered off it.
On the one hand I am relieved as I had reservations about it anyway.
But that leaves me in the wilderness somewhat.
What next?
In the meantime, a relapse is inevitable whilst my body flushes out the drug.
Haven't I been here before???
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Brighteyes Offline Author
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 286
Threads: 15
Joined: May 2013
Gender: Female
Location: York
Psoriasis Score: 9
Treatment: MTX
#318
Sat-04-07-2015, 13:28 PM
On the downside:

Depending on my skin situation, I may not make it to Scotland in a few weeks. But I've told my O/H I will NOT cancel it. Don't see why he and Alex should miss out on a break.
Tomato plants didn't make it.
Driving lessons/volunteering on hold until I know what the next step will be.


On the plus side:

We didn't need a new door. A nice, professional guy replaced the panel for £30. Smile
Alex had an amazing school report. Miles better than last year. So proud. Heart
Sent off for my provisional ( ever the optimist ). Wink
Got a tax rebate. Big Grin

Oh.....and my eldest daughters trip to America went well.
Sneaky little mare got MARRIED to her American/Italian lover in Las Vegas!!!
Told myself and her Dad when she got back.
She's such a free spirit, you've just got to love her. Big Grin
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Fred Offline
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 66,958
Threads: 3,888
Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#319
Sat-04-07-2015, 15:07 PM
(Sat-04-07-2015, 13:28 PM)Brighteyes Wrote: She's such a free spirit, you've just got to love her.  Big Grin

I wonder where she gets it from. Whistle

Have they mentioned any of the Bio treatments to you ?
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Brighteyes Offline Author
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 286
Threads: 15
Joined: May 2013
Gender: Female
Location: York
Psoriasis Score: 9
Treatment: MTX
#320
Sat-04-07-2015, 16:13 PM
(Sat-04-07-2015, 15:07 PM)Fred Wrote:
(Sat-04-07-2015, 13:28 PM)Brighteyes Wrote: She's such a free spirit, you've just got to love her.  Big Grin

I wonder where she gets it from.  Whistle

Have they mentioned any of the Bio treatments to you ?

Not yet.
Another blood test on Monday
Next appointment on the 22nd
Supposed to be going away on the 27th
Wall
Swotting up on Bio's as we speak.
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