Psoriasis Club
  • Forum
  • Home
  • Portal
  • Member List
  • Psoriasis Score
  • PQOLS
  • What is psoriasis
  • Search
  • Help
Hello Guest, Welcome To The Psoriasis Club Forum. We are a self funded friendly group of people who understand.
Never be alone with psoriasis, come and join us. (Members see a lot more than you)
wave
Login Register
Login
Username:
Password:
Lost Password?
 
Psoriasis Club › HealthHealth Boards › Psoriasis And Psoriatic Arthritis Topics v
« Previous 1 … 9 10 11 12 13 … 24 Next »

Back Into Hell

Pages (37): « Previous 1 … 9 10 11 12 13 … 37 Next »
Jump to page 
Threaded Mode
Back Into Hell
Brighteyes Offline Author
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 286
Threads: 15
Joined: May 2013
Gender: Female
Location: York
Psoriasis Score: 9
Treatment: MTX
#101
Thu-12-02-2015, 15:21 PM
Been a long time since I dipped my finger into Erotics Fred. Big Grin
May have to reacquaint myself, keep my hand in, so to speak. Whistle
Quote
Fred Online
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 66,965
Threads: 3,888
Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#102
Thu-12-02-2015, 15:31 PM
(Thu-12-02-2015, 15:21 PM)Brighteyes Wrote: Been a long time since I dipped my finger into Erotics Fred.  Big Grin
May have to reacquaint myself, keep my hand in, so to speak.  Whistle

I asked for that one didn't I  Doh
Quote
Caroline Offline
You must hurry if you ever want to catch a chicken...
*
Forum Helper
Posts: 26,518
Threads: 113
Joined: Nov 2011
Gender: Female
Location: In between the tulips
Psoriasis Score: 3
Psoriatic Arthritis Score: 3
PQOLS: 4
Treatment: Got back to DMF slow release
#103
Thu-12-02-2015, 18:44 PM
(Thu-12-02-2015, 15:10 PM)Brighteyes Wrote: Thank you people.  Heart

Yes it has been a crazy year. I never dreamt I would get back to working full time. It was tiring and required some stress management but I did enjoy it. Can't see me getting back there any time soon though. :(

I also found my daughters......living 30 miles away. Their Dad has finally relented and given me his address and I now have updated pictures. The Girls and I are slowly re-building bridges.  Bigarm

Ooh....and I just ordered some funky, shocking green crutches. I don't intend to sit around too much and get depressed this time ( I hope ). At least I know what's coming ( although I will most likely need to release a rant and a few expletives ). XXX

Ok, welcome back Brighteyes. Smile
Let's get a bit on track, you apparantly have two daughters? From an earlier marriage? Which means that O/H is apparantly your friend or new husband. I have always thought that he was your hubby.
Have you yourself asked your new consultant for the why he wanted you to stop with cyclosporin? Did he know what he was doing? What kind of trouble you would get in?
Did he discuss the why? Which blood measurements were wrong and why?
Indeed now changing to MTX doesn't solve a thing.
Did you already confront him with the results of his actions on you?

I am really feeling a bit pissed on the apparant ease with which he seems to have gotten you off this medication.
Now I am busy writing I immediately want to ask you I why you don't go for Fumaderm? It seems an option you did not try before. And I think that Jim also would want to suggest it.

Anyway, great to have you back and great that you see your daughters again. Big Grin
Quote
Kat Offline
Take my advice; I don't use it anyway.
*
Forum Helper
Posts: 9,829
Threads: 84
Joined: Aug 2014
Gender: Female
Location: GA
Psoriasis Score: 3
Treatment: Clobetasol Topical
#104
Thu-12-02-2015, 18:51 PM
Wave Hello and nice to meet you! Sorry to hear things with your psoriasis aren't going well. Hope things improve for you soon.
Quote
jiml Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 47,972
Threads: 357
Joined: Oct 2013
Gender: Male
Location: Norwich England
Psoriasis Score: 3
Treatment: Skilarence 5x120mg a day
#105
Thu-12-02-2015, 18:53 PM (This post was last modified: Thu-12-02-2015, 18:54 PM by jiml.)
@Caroline
Yes I would love to suggest Fumaderm but I have my doubts as to whether it's available for PSA it's strangely only approved  for plaque psoriasis ... But I agree Caroline it would be a good option if she could get it
Quote
Caroline Offline
You must hurry if you ever want to catch a chicken...
*
Forum Helper
Posts: 26,518
Threads: 113
Joined: Nov 2011
Gender: Female
Location: In between the tulips
Psoriasis Score: 3
Psoriatic Arthritis Score: 3
PQOLS: 4
Treatment: Got back to DMF slow release
#106
Thu-12-02-2015, 19:52 PM
(Thu-12-02-2015, 18:53 PM)jiml Wrote: @Caroline
Yes I would love to suggest Fumaderm but I have my doubts as to whether it's available for PSA it's strangely only approved  for plaque psoriasis ... But I agree Caroline it would be a good option if she could get it

Who cares Jim, just fool the derm.... For Brighteyes it just doesn't matter, she has all types of psoriasis as far as I can read.
And.... Put more pressure on the dermatologist. They are no saints. Whip
Quote
jiml Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 47,972
Threads: 357
Joined: Oct 2013
Gender: Male
Location: Norwich England
Psoriasis Score: 3
Treatment: Skilarence 5x120mg a day
#107
Sad  Thu-12-02-2015, 20:01 PM
(Thu-12-02-2015, 19:52 PM)Caroline Wrote:
(Thu-12-02-2015, 18:53 PM)jiml Wrote: @Caroline
Yes I would love to suggest Fumaderm but I have my doubts as to whether it's available for PSA it's strangely only approved  for plaque psoriasis ... But I agree Caroline it would be a good option if she could get it

Who cares Jim, just fool the derm.... For Brighteyes it just doesn't matter, she has all types of psoriasis as far as I can read.
And.... Put more pressure on the dermatologist. They are no saints.  Whip

Well there's no doubt in my mind if she could get it it would give long term remission.... if the side effects don't get too bad .. There are several members on here now who have succeeded with it for instance [Group Specific]
There are now several on here that have posted about Fumaderm .. So BRIGHTEYES if you want a list let me know  Thumb
Quote
Brighteyes Offline Author
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 286
Threads: 15
Joined: May 2013
Gender: Female
Location: York
Psoriasis Score: 9
Treatment: MTX
#108
Sat-14-02-2015, 16:26 PM
(Thu-12-02-2015, 18:44 PM)Caroline Wrote:
(Thu-12-02-2015, 15:10 PM)Brighteyes Wrote: Thank you people.  Heart

Yes it has been a crazy year. I never dreamt I would get back to working full time. It was tiring and required some stress management but I did enjoy it. Can't see me getting back there any time soon though. :(

I also found my daughters......living 30 miles away. Their Dad has finally relented and given me his address and I now have updated pictures. The Girls and I are slowly re-building bridges.  Bigarm

Ooh....and I just ordered some funky, shocking green crutches. I don't intend to sit around too much and get depressed this time ( I hope ). At least I know what's coming ( although I will most likely need to release a rant and a few expletives ). XXX

Ok, welcome back Brighteyes. Smile
Let's get a bit on track, you apparantly have two daughters?  From an earlier marriage? Which means that O/H is apparantly your friend or new husband. I have  always thought that he was your hubby.
Have you yourself asked your new consultant for the why he wanted you to stop with cyclosporin? Did he know what he was doing?  What kind of trouble you would get in?
Did he discuss the why? Which blood measurements were wrong and why?
Indeed now changing to MTX doesn't solve a thing.
Did you already confront him with the results of his actions on you?

I am really feeling a bit pissed on the apparant ease with which he seems to have gotten you off this medication.
Now I am busy writing I immediately want to ask you I why you don't go for Fumaderm? It seems an option you did not try before. And I think that Jim also would want to suggest it.

Anyway, great to have you back and great that you see your daughters again. Big Grin

Just to clarify.
I have a fiancé ( been together almost 10 years ) and we have an 8 year old son.
My ex-husband is the one who went AWOL with my daughters to him ( now aged 16 and 12 ).
My new Derm has not discussed anything in depth with me at all. I will be back in clinic on the 19th and I want to compile a list of questions. Any input would be appreciated. Smile
Quote
Brighteyes Offline Author
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 286
Threads: 15
Joined: May 2013
Gender: Female
Location: York
Psoriasis Score: 9
Treatment: MTX
#109
Sat-14-02-2015, 16:29 PM
(Thu-12-02-2015, 18:51 PM)Kat Wrote: Wave   Hello and nice to meet you!  Sorry to hear things with your psoriasis aren't going well.  Hope things improve for you soon.

Hi Kat,

thanks for the wave and kind words.

Much appreciated.

Bigarm
Quote
Brighteyes Offline Author
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 286
Threads: 15
Joined: May 2013
Gender: Female
Location: York
Psoriasis Score: 9
Treatment: MTX
#110
Sat-14-02-2015, 16:32 PM
(Thu-12-02-2015, 20:01 PM)jiml Wrote:
(Thu-12-02-2015, 19:52 PM)Caroline Wrote:
(Thu-12-02-2015, 18:53 PM)jiml Wrote: @Caroline
Yes I would love to suggest Fumaderm but I have my doubts as to whether it's available for PSA it's strangely only approved  for plaque psoriasis ... But I agree Caroline it would be a good option if she could get it

Who cares Jim, just fool the derm.... For Brighteyes it just doesn't matter, she has all types of psoriasis as far as I can read.
And.... Put more pressure on the dermatologist. They are no saints.  Whip

Well there's no doubt in my mind if she could get it it would give long term remission....  if the side effects don't get too bad .. There are several members on here now who have succeeded with it for instance [Group Specific]
There are now several on here that have posted about Fumaderm .. So BRIGHTEYES if you want a list let me know  Thumb

Hmmmm. I think the speed of this change (coupled with my physical and mental exhaustion) has caught me off guard.
Thank goodness I logged back on.
I need to be asking this new broom dermatologist exactly what's going on.
Yep....I am guilty of putting blind trust in people with white coats. I need to ask a lot of questions next Thursday.
Quote
« Next Oldest | Next Newest »
Pages (37): « Previous 1 … 9 10 11 12 13 … 37 Next »
Jump to page 


Possibly Related Threads…
Thread Author Replies Views Last Post
  Question about psoriasis on back of my hands Kentpatient 7 9,997 Tue-08-05-2018, 17:56 PM
Last Post: jiml
  Does Psoriasis come back? Lookingforhelp 16 21,776 Wed-29-06-2016, 04:48 AM
Last Post: Lookingforhelp
  Creative ideas for hard to reach plaques on back? kh924 10 14,585 Sun-27-07-2014, 20:41 PM
Last Post: jiml



Users browsing this thread: 2 Guest(s)
    About | Contact us | Login | Register | Home | Cookies/GDPR | RSS Syndication | Portal | Types Of Psoriasis | Psoriasis Score | Members Only Boards
    Copyright © 2010 - 2025 Psoriasis Club | All Rights Reserved | Founded May 2010 | Psoriasis Club Is Self Funded Without Sponsors Or Donations | Software by MyBB | Social
Linear Mode
Threaded Mode