Wed-29-06-2016, 10:25 AM
(Wed-29-06-2016, 09:22 AM)Bill Wrote: At least I have not killed myself. What I dont understand is the assumption that my treatment is inherently bad. Is my disease not controlled? Are there better treatments available for my disease? Have I been forced to take less than ideal treatments by reason of economy? Have I had to wait long periods to access treatment? Is my treatment expensive? Can my treatment be customised to maximise the benefit for me? Have I suffered adverse effects and am I being adequately monitored? Surely outcome is a more important consideration than provenance? Can a medication costing $10 a year not be more effective than a medication costing $2000 a year or $20,000 a year?
ps. I am looking forward to my next dose so I can see if two grams of cysteine taken half an hour before the DMF reduces my side effects. This could be useful information.
I don't think your treatment is in any way bad, and yes to all your points. I couldn't agree more that what you are doing is right for you and maybe other brave sufferers.
But it has to be done with caution and careful dosing.....you are an inspiration, but with the best will in the world I could not put my hand on my heart and suggest to another sufferer that they should go down your route
I'm glad you keep us updated and give hope to others that haven't got access to Fumaderm or regular DMF treatments