UVB question

[Christopher Hendriks]

Hi all,

I have suffered with P for over 25 years now and have been using all kinds of treatment, most of my P has been pretty low and i have never had a bad case of it until now.

For some strange reason i had a massive flare up never like i have seen before so i went to my local GP and went through all kinds of new ointments of which none of them worked so they sent me to see a specialist at my local hospital.

Once there they said to me i have Guttate P and they advised me to have UVA treatment 3 times a week.

Due to how far the hospital is i could not afford cab/taxi fares and i cannot use local transport....buses/trains (long story due to mental health, crowded places is not my best friend).

I told them i could not do UVA due to costs and they gave me some other new cream, tried it for over 6 weeks and all it done was made it worse

I spoke again to the hospital about this and they said there is nothing they can do right now unless you do UVA treatment so i quit seeing the hospital.

At present the only way i am controlling it is by using the following:

Dovobet for skin
Capasal for shampoo
Dermol for shower moisturizer
Betacap for scalp

Also tried Dovonex but had very little effect.

The only way i can describe what my P looks like is that it's like loads of small blisters but without anything inside, they come and reach a point of size and after 4 weeks they seem to dry out and fade away.

To be honest i don't think Dovobet has any effect on them    i think they just go away on their own.

Anyway onto the question, i have been reading a lot about UVB treatment and the UVB beds out their.....most of them way way out of my price range.

I have been thinking long term that maybe after some saving was to buy a small one for use at home.

The one i was thinking of was this:

72W Lamp for Vitiligo, Psoriasis, Eczema, Acne, Neurodermatitis + TESTER MED!

LINK REMOVED

It seems to conform to all the UK specifications, i.e bulbs.

So i am wondering is it something you's have done and has it worked? or is it somerthing you's would say for me to stay away and not buy it?

I am asking due to me struggling a lot now with P and feel i am getting nowhere, i am at a point of hating waking up.

Look forward to hearing your thoughts.

All the best

JayKay

Hi jayKay.....i have been on both UVA and UVB ....am currently on UVA + Psoralen tablets, Guttate P is a distinct sign that our immune system is infected on a higher level now. i had it cover 80% of my body. Becareful verrrrrrry careful of using tooo much dovobet..its a strong steroid that can cause your P to come back with vengeance if administered for far to long. 

i hate to say this but the doctor is right, phototherapy is your next best bet....and combined with a good immune suppressant (Methoraxate or Acitretin - need to just check your bloods first) + topical steroid. Dont try to mess around with your own innovation at home, i did and it messed me up. You should see a dermatologist to get the correct advice on dosage and exposure times. So far am using UVA + Psoralen tablets , on my 13th treatment and showing great results. I have been suffering for 17 years now. Everyone's body is different, you might respond to UVA and not UVB or vice versa. 

NB# UV light can be dangerous if not used properly. Seek dermatologist first. 
NB# Cut down red meat and sugar and get enough intake of carrot juice