Health Boards
Wed-29-05-2013, 20:20 PM
Hi Micky,
I'm based in the north east and recently decided steroid cream was not working and the P finally got to me.
I was basically told that on the NHS they start with cheaper options due to cost of biologicals and I accepted that as I was happy there was any alternative to steroid creams.
I went on mtx and lasted 2 doses, was run down, sick, got a cold at same time asy husbnd and his cleared in under a week and I was still unwell 6 weeks on and usually resilant to germs. My first week's blood work was off too. I struggle to swallow tablets and on that basis I was told ciclosporin were massive and that was enough for me not to have to try them! Was also told if I was planning a family I could t have them either.
I do believe in the NHS as a whole but the sucess rate of bio's versus tablets seems to make cost unimportant but its easy to say that when you suffer from P. Pretty sure the person who makes financial decision will just see it as a bit of dry skin!
My consultant says he has about 60 patients on bio's and I get my first injection tomorrow. I have agreed to meet with my his research person as there is an ongoing study. Figure considering cost giving up a few hours of my time is least I can do!
Was also told on the quiet that nausea can't be tested for but is enough to abort use of either mtx or ciclosporin - hope this helps and good luck!
I'm based in the north east and recently decided steroid cream was not working and the P finally got to me.
I was basically told that on the NHS they start with cheaper options due to cost of biologicals and I accepted that as I was happy there was any alternative to steroid creams.
I went on mtx and lasted 2 doses, was run down, sick, got a cold at same time asy husbnd and his cleared in under a week and I was still unwell 6 weeks on and usually resilant to germs. My first week's blood work was off too. I struggle to swallow tablets and on that basis I was told ciclosporin were massive and that was enough for me not to have to try them! Was also told if I was planning a family I could t have them either.
I do believe in the NHS as a whole but the sucess rate of bio's versus tablets seems to make cost unimportant but its easy to say that when you suffer from P. Pretty sure the person who makes financial decision will just see it as a bit of dry skin!
My consultant says he has about 60 patients on bio's and I get my first injection tomorrow. I have agreed to meet with my his research person as there is an ongoing study. Figure considering cost giving up a few hours of my time is least I can do!
Was also told on the quiet that nausea can't be tested for but is enough to abort use of either mtx or ciclosporin - hope this helps and good luck!