Posts: 19
Threads: 2
Joined: Mar 2017
Gender: Female
Location: Scotland glasgow
Treatment: Otezla (newbie)
Hi Phil I'm sleeping from abt 10pm till abt 12:30 then that's me wide awake all night and I do a 10hr shift at work so I'm struggling big time doc gave me sleeping pills but only 7!!! I've to try and fall off to sleep myself lol yeh no bother cause that's easy pppfft lol I spoke to my consultant who said to take evening tablet abt 4pm and hopefully I would find it easier to sleep or come of for them all together so She wasn't much help either I'm just trying to stay positive with them and percivere with it xx
Posts: 40
Threads: 2
Joined: Oct 2014
Gender: Male
Location: west sussex
Treatment: fumaderm
(Thu-20-04-2017, 10:26 AM)Tracey Wrote: [To see links please register here]
Hi Phil I'm sleeping from abt 10pm till abt 12:30 then that's me wide awake all night and I do a 10hr shift at work so I'm struggling big time doc gave me sleeping pills but only 7!!! I've to try and fall off to sleep myself lol yeh no bother cause that's easy pppfft lol I spoke to my consultant who said to take evening tablet abt 4pm and hopefully I would find it easier to sleep or come of for them all together so She wasn't much help either I'm just trying to stay positive with them and percivere with it xx
will try taking my second tablet at 4 pm and see what happens.
my next appointment is in a few weeks time so will see what they have to say.
Phil
Posts: 47,972
Threads: 357
Joined: Oct 2013
Gender: Male
Location: Norwich England
Psoriasis Score: 3
Treatment: Skilarence 5x120mg a day
Hi Tracey it's been a while and I was wondering if you are still on otezla, and if it's working well and you are getting more sleep ?
Posts: 19
Threads: 2
Joined: Mar 2017
Gender: Female
Location: Scotland glasgow
Treatment: Otezla (newbie)
Hi Jim it's been slow down to 1 a day that's maybe why new patches breaking out so think it's back to the drawing board for me lol how's yerself doing hope alls well with you T x
Posts: 47,972
Threads: 357
Joined: Oct 2013
Gender: Male
Location: Norwich England
Psoriasis Score: 3
Treatment: Skilarence 5x120mg a day
(Fri-15-09-2017, 07:42 AM)Tracey Wrote: [To see links please register here]
Hi Jim it's been slow down to 1 a day that's maybe why new patches breaking out so think it's back to the drawing board for me lol how's yerself doing hope alls well with you T x
Ohhhhh nooooo Tracey I was hoping it was working well ... what went wrong ? Was it just reducing the dose ? Or was it as much to do with the insomnia it caused.
Where will you go from here will it be increase the dose or move to something else like Fumaderm ?? Or a biological drug .
Whatever it is I wish you luck
Jim
Posts: 19
Threads: 2
Joined: Mar 2017
Gender: Female
Location: Scotland glasgow
Treatment: Otezla (newbie)
I think it's to do with dripping the dose I'm sleeping better not taking night one but still not a lot of appetite go back in October and see consultant see what she says don't have a clue what's next there not keen to do biologicals thanks for asking how's you well I hope x T x
Posts: 47,972
Threads: 357
Joined: Oct 2013
Gender: Male
Location: Norwich England
Psoriasis Score: 3
Treatment: Skilarence 5x120mg a day
Fri-15-09-2017, 13:43 PM
(This post was last modified: Tue-02-01-2018, 12:01 PM by jiml.)
(Fri-15-09-2017, 12:41 PM)Tracey Wrote: [To see links please register here]
I think it's to do with dropping the dose I'm sleeping better not taking night one but still not a lot of appetite go back in October and see consultant see what she says don't have a clue what's next there not keen to do biologicals thanks for asking how's you well I hope x T x
Yes I'm fine and have had around six years clear on Fumaderm ....with virtually no adverse side effects after the initial adjustment to the drug ....so after around 45 years struggling with various treatments most of which at best helped a bit ...I have enjoyed my best health in my life .....I just wish that Fumaderm (DMF) was prescribed more ....hopefully with Skilarence (DMF) being approved perhaps more people will get the kind of clearance I have enjoyed without going on to biological drugs
I would say if you get the opportunity to try it ....give it a go....there's lots of support here if needed
Posts: 60
Threads: 4
Joined: Jan 2017
Gender: Male
Location: York, Yorkshire.
Psoriasis Score: 21
Treatment: Acitretin. (2nd time)
Sorry to hear Tracey of your problem with sleep.
I am due to start the Otezla next week? Attending Dermatology Clinic on the 10th January to find out results of the Blood Tests and Chest X-Ray.
Have been on Biological Drugs for last 6 years = Humira, Cosentyx and Stelara (twice on Stelara) and after a period of time they just stop working. (Have been on Methotrexate and Acitretin before starting the Biologicals)
I am interested to know about Otezla and it's effect.
Take Care.
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