Health Boards
Wed-17-09-2014, 18:33 PM
Hi,
I just registered here. I have had psoriasis for 10 years and got psoriatic arthritis in my first year. In fact, the psoriasis hit the same month I hit menopause, and the arthritis 4 months later. I had some plaque, but mainly my psoriasis type is guttate.
I did feel that when I lost my periods, I gained this disease. It was like I had a way to release my own toxins until then.
For 4 years I tried to fight off the psoriasis with a naturopath's help. I did see some clearing, but the arthritis was awful and nearly crippling. I had it in most of my large joints, but my fingers and toes was worst.
At that point, I finally went to a teaching college where they had tested the biologics. My new derm got me on Enbrel. The following day, I did not need my naproxen pain pills. Within several weeks I noticed a huge difference in my skin. But 4 months later, the skin problems came back. Luckily, 5 years later, I am still in remission from the arthritis.
In spring of 2013, my specialists decided my skin was so bad that I should be put on methotrexate. But I also have a liver condition, so I wasn't happy about methotrexate. I visited my naturopath and she suggested I try LDN or low dose naltrexone. The other doctors were going to start the methotrexate in the fall, so I felt like I had a few months to try the LDN.
Long story short, I responded very well on LDN. I've had one PASI score of 0 and another of 6...but my skin is actually the same (just different doctors). I have pictures and will gladly share them. I have been 90% clear for more than a year. I take 4 mg naltrexone each night before bed. I had no side effects. This has been the most wonderful experience. I am still on Enbrel.
Oddly, I tried to search here for LDN, and the search feature wants 4 letter phrases or more. I then searched for naltrexone, and couldn't find that either.
I have been on the Inspire Psoriasis Foundation Forum for years, and I have learned to hate it because of advertising and being steered by the foundation with all their impersonal emails. Also, I am appalled by the people who attack folks for trying alternative therapies.
I hope I can share my good news and find a place where people aren't locked into the medical/pharmaceutical field's dictates. As we all know, there is no therapy that works for all of us and we have to advocate for ourselves and be willing to try different paths.
Personally, I believe we all share symptoms, not always the same cause. But I believe that the liver and proper digestion/absorption is the key to healthy skin.
I'm looking forward to meeting folks here.
Dulane
I just registered here. I have had psoriasis for 10 years and got psoriatic arthritis in my first year. In fact, the psoriasis hit the same month I hit menopause, and the arthritis 4 months later. I had some plaque, but mainly my psoriasis type is guttate.
I did feel that when I lost my periods, I gained this disease. It was like I had a way to release my own toxins until then.
For 4 years I tried to fight off the psoriasis with a naturopath's help. I did see some clearing, but the arthritis was awful and nearly crippling. I had it in most of my large joints, but my fingers and toes was worst.
At that point, I finally went to a teaching college where they had tested the biologics. My new derm got me on Enbrel. The following day, I did not need my naproxen pain pills. Within several weeks I noticed a huge difference in my skin. But 4 months later, the skin problems came back. Luckily, 5 years later, I am still in remission from the arthritis.
In spring of 2013, my specialists decided my skin was so bad that I should be put on methotrexate. But I also have a liver condition, so I wasn't happy about methotrexate. I visited my naturopath and she suggested I try LDN or low dose naltrexone. The other doctors were going to start the methotrexate in the fall, so I felt like I had a few months to try the LDN.
Long story short, I responded very well on LDN. I've had one PASI score of 0 and another of 6...but my skin is actually the same (just different doctors). I have pictures and will gladly share them. I have been 90% clear for more than a year. I take 4 mg naltrexone each night before bed. I had no side effects. This has been the most wonderful experience. I am still on Enbrel.
Oddly, I tried to search here for LDN, and the search feature wants 4 letter phrases or more. I then searched for naltrexone, and couldn't find that either.
I have been on the Inspire Psoriasis Foundation Forum for years, and I have learned to hate it because of advertising and being steered by the foundation with all their impersonal emails. Also, I am appalled by the people who attack folks for trying alternative therapies.
I hope I can share my good news and find a place where people aren't locked into the medical/pharmaceutical field's dictates. As we all know, there is no therapy that works for all of us and we have to advocate for ourselves and be willing to try different paths.
Personally, I believe we all share symptoms, not always the same cause. But I believe that the liver and proper digestion/absorption is the key to healthy skin.
I'm looking forward to meeting folks here.
Dulane