Sat-17-05-2014, 21:05 PM
(Sat-17-05-2014, 20:50 PM)Caroline Wrote: Apart from us normal people there are a number of very vague institutions in Europe that must be crowded with people who decide over our well being. That is weird and scary as "WE" are the real professionals on psoriasis... Aren't we?
If you read, or try to read, this article [web]https://www.clinicaltrialsregister.eu/ctr-search/trial/2012-000055-13/DE[/web] you will get an idea of what I mean.
Lots of people are involved in trials which concern our health, but of which we don't have a clue of what is happening there.
This case is about DMF and Fumaderm.
Rumours say that Almiral, the producer of Fumaderm, is close to a European wide registration of Fumaderm.
Psorinovo is far behind in this process, while it's characteristics may even be better and the working substances are equal.
Also Rumours are that biogen is trying to interfere in some way in the DMF market.
Overall interest in DMF is rising quickly. In my opinion due to the fact that biog** has seen and opportunity to earn a lot of money with it over the backs of the MS patients.
I feel compelled to reply as we usually agree.
#1 How do you define normal? is it me, you, or the rest of the world.
#2 Someone needs to decide, are we the real professionals? I'm not sure, yes I know how I feel but I could never have invented the treatments I'm on.
#3 I can't read the article as it's Saturday evening, and I've had to much wine. Remind me to look another day.
#4 You always do this to me, when you say Biog** do you mean Biocon or Biogen ?
#5 Sorry I will head off to the private Psoriasis Club Gym that only certain members can see and do 3 press-ups.