About to start Fumaderm

[Caroline]

So just thought I'd pop in with what will probably be my final update on Skilarence. Been on it for 3 months now and have been on the maximum dose for 5 weeks and there hasn't been any improvement, not even slightly. So Fumaderm unfortunately hasn't worked for me. I guess not having any side effects whatsoever turned out to be a bad thing and was a sign it wasn't being absorbed by my body in the best way for it to work?

Anyway, can't pretend I'm not gutted cause it definitely seems like the best drug for psoriasis around if it works but got to keep positive. Got my next dermatology appointment on the 17th and think I'll need to try one more drug at this tier before I'm considered for a biologic. Think I'll give cyclosporine a go as the results seem good even if it isn't a drug you can be on too long. But perhaps by the time it comes to stop taking it there will be something new on the market I can try.

Very sad that it doesn't work. It may be that your body does not see it in the way others see it.
Can you perhaps ask to increase? Is there a reason for them not to increase?

Too bad you cannot use Psorinovo, that has no max dose. DMF anyway has no max dose. Over here there are many of Psorinovo users that had to go to 8x120 (or even higher) before it started working. Then often they can lower the dose over a while, although I know there are patients still on a higher dose.

Indeed I agree it is one of the best medications up to now, if.... it works for you. It is non toxic, has a proven record of at least 35 years, the only thing you have to keep an eye on are the lymphocytes. And the advantage is that it "moderates" the cells, where biologicals totally block receptors on cells.

But if it doesn't work for you, then you will have to start searching for a next step. There are many possibilities.