Sat-10-03-2018, 22:05 PM
well, so i went to a minor med today operated by a different hospital system. said i needed help getting into a rheumatologist and they put a call into the their referral center for an urgent referral.something the ED didn't do.
he also advised i take a topical steroid... i was looking at my predisone prescription before i dropped it off. 47 pills to be taken in 10 days!!!! i'm terrified of a dose that high. i have severe type 1 diabetes.
unfortunately he could not give me a diuretic for swelling but gave me ace wraps and advice and told me NOT to take baths because could increase my risk of infection.
in 30 minutes, the minor med did more for me than the ED did. I may still take the predisone, but not at the dose he told me to last night: 6 pills a day for 5 days? the minor med dr said they do because if i got into ketoacidsosis, where will I return? The ER. i said "Do you advise I try it at all?" he said he refused to comment.
this sucks. i have two awful autoimmune diseases and the best treatments for one put my life at risk with the other. but i will say that minor med dr did the no 1 thing I needed, which was help fast track me to a specialist. so glad i went and that i went to that one. problems are still here, but i'm going to pick up my scrips, come home, lay down for a hour and then wrap up my feet to help with edema. worse comes to worst with the swelling, a friend of mine has diuretics I've taken before he can spare a few of.
sucks. but i am so glad i have a group of folks to talk to about this. i never tried before for shame, etc. but when my health is drastically threatened... my job cannot tell me i can't go a specialist if an ER and a minor med visit in one weekend led to an urgent referral to one. so steps being taken... hopefully....
he also mentioned tar could help. anyone have any experience using tar? where do you get it in the states? etc.
thanks for all your help, suggestions and support....
he also advised i take a topical steroid... i was looking at my predisone prescription before i dropped it off. 47 pills to be taken in 10 days!!!! i'm terrified of a dose that high. i have severe type 1 diabetes.
unfortunately he could not give me a diuretic for swelling but gave me ace wraps and advice and told me NOT to take baths because could increase my risk of infection.
in 30 minutes, the minor med did more for me than the ED did. I may still take the predisone, but not at the dose he told me to last night: 6 pills a day for 5 days? the minor med dr said they do because if i got into ketoacidsosis, where will I return? The ER. i said "Do you advise I try it at all?" he said he refused to comment.
this sucks. i have two awful autoimmune diseases and the best treatments for one put my life at risk with the other. but i will say that minor med dr did the no 1 thing I needed, which was help fast track me to a specialist. so glad i went and that i went to that one. problems are still here, but i'm going to pick up my scrips, come home, lay down for a hour and then wrap up my feet to help with edema. worse comes to worst with the swelling, a friend of mine has diuretics I've taken before he can spare a few of.
sucks. but i am so glad i have a group of folks to talk to about this. i never tried before for shame, etc. but when my health is drastically threatened... my job cannot tell me i can't go a specialist if an ER and a minor med visit in one weekend led to an urgent referral to one. so steps being taken... hopefully....
he also mentioned tar could help. anyone have any experience using tar? where do you get it in the states? etc.
thanks for all your help, suggestions and support....