Health Boards
Fri-19-05-2017, 11:46 AM
Nice to hear you feel welcome. It means a lot to us to know Psoriasis Club is helping it's members. 
Yes it is scary to know you will have it for the rest of your life, but it can be managed and can sometimes go into remission. (But it will always pop up to say hello just when you don't want it) So it's best to accept it and get a treatment that works for you.
As for your husband finding it difficult. We have to try and look at it from the other side and although it's bad enough for us, our partners have to go through it not knowing the best way to approach us. So we need to help them understand and at the same time try not to burden them with the way it makes us feel. You can make a start by telling him to come here and read through some threads (He is also welcome to join if he wants to as we help family and friends too)
#1 Point him to these threads to start with:
Is Psoriasis Contagious?
Psoriasis Myths and History
#2 Keeping a solid relationship is important for both of you and it something we often get asked, here are few threads that others have written which may be of interest. (There are many more on the subject, if you have a specific problem put it in the Search or shout out and we will soon find something for you.
Helping your family cope with your psoriasis
Psoriasis, My Fiancé and Me
Psoriasis and Intimacy
#3 Next the good part: Get yourself a good quality virgin Coconut Oil and start using it twice daily your skin will soon start to feel smoother to touch. Then start getting your husband involved by asking him to rub some say on your back, if he's not keen to rub it on the psoriasis get him to rub it on a part where there is no psoriasis. You will find once he starts touching the psoriasis and noticing the effect it is having he will feel much more comfortable. Use your imagination, he may like a Coconut Oil massage too.
As for having concerns about the treatments, that is understandable but the risk with nearly all the treatments is minimal and stopping will usually not leave any lasting damage. For me I went onto the Bio treatments as my life had become hell, it didn't bother me one bit about the possible problems as I thought my life couldn't be any worse. I did have some problems with my first tries and ended up in hospital with a reaction but they soon sorted me out and thanks to the Bio's I now have a brand new life and it's great.
Only you can make the choice and all treatments carry a risk of some sort (even natural treatments can cause problems) but is the slight risk of a regulated treatment better or worse than your and your husbands quality of life?
I say have look at these threads and go and discus your choice with your dermatologist.
Oral Treatments For Psoriasis
Biological Treatments For Psoriasis
Get your life back, it's worth it.
Yes it is scary to know you will have it for the rest of your life, but it can be managed and can sometimes go into remission. (But it will always pop up to say hello just when you don't want it) So it's best to accept it and get a treatment that works for you.
As for your husband finding it difficult. We have to try and look at it from the other side and although it's bad enough for us, our partners have to go through it not knowing the best way to approach us. So we need to help them understand and at the same time try not to burden them with the way it makes us feel. You can make a start by telling him to come here and read through some threads (He is also welcome to join if he wants to as we help family and friends too)
#1 Point him to these threads to start with:
Is Psoriasis Contagious?
Psoriasis Myths and History
#2 Keeping a solid relationship is important for both of you and it something we often get asked, here are few threads that others have written which may be of interest. (There are many more on the subject, if you have a specific problem put it in the Search or shout out and we will soon find something for you.
Helping your family cope with your psoriasis
Psoriasis, My Fiancé and Me
Psoriasis and Intimacy
#3 Next the good part: Get yourself a good quality virgin Coconut Oil and start using it twice daily your skin will soon start to feel smoother to touch. Then start getting your husband involved by asking him to rub some say on your back, if he's not keen to rub it on the psoriasis get him to rub it on a part where there is no psoriasis. You will find once he starts touching the psoriasis and noticing the effect it is having he will feel much more comfortable. Use your imagination, he may like a Coconut Oil massage too.
As for having concerns about the treatments, that is understandable but the risk with nearly all the treatments is minimal and stopping will usually not leave any lasting damage. For me I went onto the Bio treatments as my life had become hell, it didn't bother me one bit about the possible problems as I thought my life couldn't be any worse. I did have some problems with my first tries and ended up in hospital with a reaction but they soon sorted me out and thanks to the Bio's I now have a brand new life and it's great.
Only you can make the choice and all treatments carry a risk of some sort (even natural treatments can cause problems) but is the slight risk of a regulated treatment better or worse than your and your husbands quality of life?
I say have look at these threads and go and discus your choice with your dermatologist.
Oral Treatments For Psoriasis
Biological Treatments For Psoriasis
Get your life back, it's worth it.