Health Boards
Welcome Paddy.
Please post some before and after pics as it is of interest to yourself and other sufferers. Keeping a journal of your progress is even better. I am glad to see some fellow Aussies getting proper treatment instead of inquiring about the merits of banana peels, but I still think the system in Australia is abysmal for leaving people like you without effective treatment for a year. You also face the prospect of waiting several years without effective treatment if three biologics fail you. What do you think about that?
Now before you go calling me a whinging welfare bludger and a public health system parasite I will have you know that I have been self-medicating very effectively without any publicly subsidised medication for nearly 4 1/2 years at a drug cost of less than $20 a year. In contrast, the management of psoriasis, psoriatic arthropathy and ankylosing spondylitis (I have all three-lucky me) with biologics cost Aussie taxpayers about $200 million last year, or about $20,000 a patient, and the cost is increasing by about $20 million annually.
What disgusts me is how much better my self-treatment has been than that which could be provided by the health system in Australia. It took me less than two weeks to get my drugs. I had no requirement to endure inferior and dangerous medications and wait at least six months with a severe and unmanaged illness (I really dont know how you could meet this requirement without becoming an invalid or destitute.). I had a ~90% reduction of disease within a few months of starting treatment, and I have almost no disease now. My last ESR was 2. I am a guinea pig, so I have experimented with doses and supplements, but I seem to have found a safer and more effective treatment that has not lost its efficacy by doing this. I am hopeful that my ongoing experimentation will further improve my treatment.
Sorry to be so full on. The last Aussie on Secukinumab here straight out attacked me then disappeared like a fart in the breeze. Admittedly he was from Sydney, so I should expect that sort of moronic rudeness from those southern cockroaches, but it still made me bloody angry. As Jim said, Fred has set up the best psoriasis website here. You will find very kind and helpful people. Fortunately none are quite as bonkers as me.
Cheers,
Bill
Please post some before and after pics as it is of interest to yourself and other sufferers. Keeping a journal of your progress is even better. I am glad to see some fellow Aussies getting proper treatment instead of inquiring about the merits of banana peels, but I still think the system in Australia is abysmal for leaving people like you without effective treatment for a year. You also face the prospect of waiting several years without effective treatment if three biologics fail you. What do you think about that?
Now before you go calling me a whinging welfare bludger and a public health system parasite I will have you know that I have been self-medicating very effectively without any publicly subsidised medication for nearly 4 1/2 years at a drug cost of less than $20 a year. In contrast, the management of psoriasis, psoriatic arthropathy and ankylosing spondylitis (I have all three-lucky me) with biologics cost Aussie taxpayers about $200 million last year, or about $20,000 a patient, and the cost is increasing by about $20 million annually.
What disgusts me is how much better my self-treatment has been than that which could be provided by the health system in Australia. It took me less than two weeks to get my drugs. I had no requirement to endure inferior and dangerous medications and wait at least six months with a severe and unmanaged illness (I really dont know how you could meet this requirement without becoming an invalid or destitute.). I had a ~90% reduction of disease within a few months of starting treatment, and I have almost no disease now. My last ESR was 2. I am a guinea pig, so I have experimented with doses and supplements, but I seem to have found a safer and more effective treatment that has not lost its efficacy by doing this. I am hopeful that my ongoing experimentation will further improve my treatment.
Sorry to be so full on. The last Aussie on Secukinumab here straight out attacked me then disappeared like a fart in the breeze. Admittedly he was from Sydney, so I should expect that sort of moronic rudeness from those southern cockroaches, but it still made me bloody angry. As Jim said, Fred has set up the best psoriasis website here. You will find very kind and helpful people. Fortunately none are quite as bonkers as me.
Cheers,
Bill