just diagnosed

[Grizzly Bear]

Bonjur sp.

Let's hope that the dermatologist you see is good and most importantly, you get treatment svp.

I'm sure I can speak on behalf of us all on here, you're in our thoughts svp

I know it's easy to say this and I know that you're new to psoriasis but try not to worry to much, the treatment will help you so much, honestly svp.

Be brave svp

[svp3058]

Hi, nice to meet you! Sorry psoriasis has come as a shock, it can be hard to accept but you do get used to the idea in the end.
I hope you can overcome your fears of people seeing it, mine is all over my arms and legs and I just wear what I want, I have given up caring what people think. I don't think they are really looking as much as we feel they are. If you get the chance and feel brave enough you should try exposing it to a bit of sun as it might help to clear your skin up.
It's great that your boss is being kind, hopefully you can get things under control soon.

For now - no chance for me to go to the beach, it looks so bad on my legs, hands and arms and torso and continue to spread :((( I planned X-Mas vacations for us, but i can't even think normally now, just frustrated  and depressed looking at myself.
And my favorite beta blocker that made my mornings acceptable more or less - are in the list that not good to take with PS, so I can't stop to vibrate and not able to drive being on very high level of anxiety ( I have it for years and beta blocker helped me to go thru the morning and bring myself to work in one piece) and PS just added more anxiety :((
It is a shock...:((((
How is your PS doing? What helps you?
Thanks!

[svp3058]

Thank you all, i still have troubles to reply in forum - never did before, new expiriance...
So I reply to all who wrote to - lots of thanks for your kind well-wishing.
I will post tomorrow my updates after seeing a doc...
But at least you all gave me a hope and the feeling that the life is not ended

[Turnedlight]

Hi, nice to meet you! Sorry psoriasis has come as a shock, it can be hard to accept but you do get used to the idea in the end.
I hope you can overcome your fears of people seeing it, mine is all over my arms and legs and I just wear what I want, I have given up caring what people think. I don't think they are really looking as much as we feel they are. If you get the chance and feel brave enough you should try exposing it to a bit of sun as it might help to clear your skin up.
It's great that your boss is being kind, hopefully you can get things under control soon.

For now - no chance for me to go to the beach, it looks so bad on my legs, hands and arms and torso and continue to spread :((( I planned X-Mas vacations for us, but i can't even think normally now, just frustrated  and depressed looking at myself.
And my favorite beta blocker that made my mornings acceptable more or less - are in the list that not good to take with PS, so I can't stop to vibrate and not able to drive being on very high level of anxiety ( I have it for years and beta blocker helped me to go thru the morning and bring myself to work in one piece) and PS just added more anxiety :((
It is a shock...:((((
How is your PS doing? What helps you?
Thanks!

Interesting you have a list of drugs to avoid with psoriasis - I don't know if we have that here in uk
I guess you run it as an experiment, if coming off them doesn't seem to change your skin then maybe you will end up taking them again.
My ps is quite extensive right now, it's on my back, my front, my arms and my legs, and starting up my chest and neck which I don't like. But I'm not so bothered about how it looks, it's more the itching, flaking and soreness that bothers me.. I'm not sure what helps, I think warmer weather but direct sun and uvb are no good. Less stress would probably help too - unfortunately that's not possible with all that's going on in my life right now lol!

[Caroline]

Hi, nice to meet you! Sorry psoriasis has come as a shock, it can be hard to accept but you do get used to the idea in the end.
I hope you can overcome your fears of people seeing it, mine is all over my arms and legs and I just wear what I want, I have given up caring what people think. I don't think they are really looking as much as we feel they are. If you get the chance and feel brave enough you should try exposing it to a bit of sun as it might help to clear your skin up.
It's great that your boss is being kind, hopefully you can get things under control soon.

For now - no chance for me to go to the beach, it looks so bad on my legs, hands and arms and torso and continue to spread :((( I planned X-Mas vacations for us, but i can't even think normally now, just frustrated  and depressed looking at myself.
And my favorite beta blocker that made my mornings acceptable more or less - are in the list that not good to take with PS, so I can't stop to vibrate and not able to drive being on very high level of anxiety ( I have it for years and beta blocker helped me to go thru the morning and bring myself to work in one piece) and PS just added more anxiety :((
It is a shock...:((((
How is your PS doing? What helps you?
Thanks!

Interesting you have a list of drugs to avoid with psoriasis - I don't know if we have that here in uk
I guess you run it as an experiment, if coming off them doesn't seem to change your skin then maybe you will end up taking them again.
My ps is quite extensive right now, it's on my back, my front, my arms and my legs, and starting up my chest and neck which I don't like. But I'm not so bothered about how it looks, it's more the itching, flaking and soreness that bothers me.. I'm not sure what helps, I think warmer weather but direct sun and uvb are no good. Less stress would probably help too - unfortunately that's not possible with all that's going on in my life right now lol!

Yes, TL, there are things to avoid when you have psoriasis. There is also a list of food to avoid, did you know that ?
An example below in Dutch, I can translate for you if you want to, but no time right now, this is a quicky.


TE VERMIJDEN VOEDINGSMIDDELEN zijn de volgende omdat deze pyrodruivenzuur ofwel pyruvaat bevatten. Deze stof zit in (de schil van) bepaalde VRUCHTEN zoals druiven en citrusvruchten, dus ook voedingsmiddelen en vloeistoffen die hiervan afgeleid zijn, in OOSTERSE KRUIDEN met inbegrip van peper en paprika (Hongaars voor peper) en in bepaalde NOTEN.
VRUCHTEN:
Schillen van druiven en citrus, dus ook machinaal bereide sappen en alcoholische dranken waarin deze verwerkt zijn zoals:
WIJN:
Alle soorten.
DRANKEN:
Brandewijn, cognac, champagne, sekt, samos, vermout, sherry, malaga, port en oranjelikeur.
OOSTERSE KRUIDEN en SPECERIJEN:
Peper, nootmuskaat, kruidnagel, mosterd, kummel, anijs, kaneel, paprikapoeder en alles waarin deze zijn verwerkt, zoals kant-en-klaar specerijen, worst, paté, soep uit blik of uit pakjes, bouillonblokjes, kerrie, sausjes, mayonaise en dergelijke.
NOTEN:
Pinda’s (en dus ook pindasaus en pindakaas) en alle met pindaolie (arachideolie) bewerkte en gebrande noten zoals cashewnoten, pistachenoten, en ook slaolie.

[Bob-Carcass]

Hi, nice to meet you! Sorry psoriasis has come as a shock, it can be hard to accept but you do get used to the idea in the end.
I hope you can overcome your fears of people seeing it, mine is all over my arms and legs and I just wear what I want, I have given up caring what people think. I don't think they are really looking as much as we feel they are. If you get the chance and feel brave enough you should try exposing it to a bit of sun as it might help to clear your skin up.
It's great that your boss is being kind, hopefully you can get things under control soon.

For now - no chance for me to go to the beach, it looks so bad on my legs, hands and arms and torso and continue to spread :((( I planned X-Mas vacations for us, but i can't even think normally now, just frustrated  and depressed looking at myself.
And my favorite beta blocker that made my mornings acceptable more or less - are in the list that not good to take with PS, so I can't stop to vibrate and not able to drive being on very high level of anxiety ( I have it for years and beta blocker helped me to go thru the morning and bring myself to work in one piece) and PS just added more anxiety :((
It is a shock...:((((
How is your PS doing? What helps you?
Thanks!

Interesting you have a list of drugs to avoid with psoriasis - I don't know if we have that here in uk
I guess you run it as an experiment, if coming off them doesn't seem to change your skin then maybe you will end up taking them again.
My ps is quite extensive right now, it's on my back, my front, my arms and my legs, and starting up my chest and neck which I don't like. But I'm not so bothered about how it looks, it's more the itching, flaking and soreness that bothers me.. I'm not sure what helps, I think warmer weather but direct sun and uvb are no good. Less stress would probably help too - unfortunately that's not possible with all that's going on in my life right now lol!

Yes, TL, there are things to avoid when you have psoriasis. There is also a list of food to avoid, did you know that ?
An example below in Dutch, I can translate for you if you want to, but no time right now, this is a quicky.


TE VERMIJDEN VOEDINGSMIDDELEN zijn de volgende omdat deze pyrodruivenzuur ofwel pyruvaat bevatten. Deze stof zit in (de schil van) bepaalde VRUCHTEN zoals druiven en citrusvruchten, dus ook voedingsmiddelen en vloeistoffen die hiervan afgeleid zijn, in OOSTERSE KRUIDEN met inbegrip van peper en paprika (Hongaars voor peper) en in bepaalde NOTEN.
VRUCHTEN:
Schillen van druiven en citrus, dus ook machinaal bereide sappen en alcoholische dranken waarin deze verwerkt zijn zoals:
WIJN:
Alle soorten.
DRANKEN:
Brandewijn, cognac, champagne, sekt, samos, vermout, sherry, malaga, port en oranjelikeur.
OOSTERSE KRUIDEN en SPECERIJEN:
Peper, nootmuskaat, kruidnagel, mosterd, kummel, anijs, kaneel, paprikapoeder en alles waarin deze zijn verwerkt, zoals kant-en-klaar specerijen, worst, paté, soep uit blik of uit pakjes, bouillonblokjes, kerrie, sausjes, mayonaise en dergelijke.
NOTEN:
Pinda’s (en dus ook pindasaus en pindakaas) en alle met pindaolie (arachideolie) bewerkte en gebrande noten zoals cashewnoten, pistachenoten, en ook slaolie.

Rough translation:

FOODS TO AVOID the following because they contain either pyruvate pyruvic acid. This substance is in (the hull) certain FRUITS such as grapes and citrus fruits, including foods and liquids that are derived from it, in ORIENTAL SPICES including pepper and paprika (Hungarian for pepper) and certain NUTS.

FRUIT:
Peel of citrus and grapes, including machine-made juices and alcoholic beverages in which they are incorporated, such as:

WINE:
All types of.

DRINKS:
Brandy, cognac, champagne, sparkling wine, Samos, vermouth, sherry, malaga, port and orange liqueur.

ORIENTAL HERBS and SPICES:
Pepper, nutmeg, cloves, mustard, cumin, anise, cinnamon, paprika and everything in which they are incorporated, such as ready-to-eat spices, sausage, pate, soup, canned or packets, bouillon cubes, curry, sauces, mayonnaise and the like .

NOTES:
Peanuts (and thus peanut sauce and peanut butter) and all with peanut oil (peanut oil) processed and roasted nuts like cashews, pistachios, and salad oil.

[Caroline]

And if you search google for: specific drugs to avoid when you have psoriasis

Then you will find a number of drugs to avoid.

[svp3058]

Hello All
I have read all your posts, thank you very much!
And I wish you to go to remission  as soon as possible (if you are not yet)
I was seeing a doctor today, what she suggested - light therapy, and that was it.
I asked for a cream and got it, but the oral pills she also prescribed as i requested - scary side effects, i did not buy them in the pharmacy and try to avoid it for now (Soriatane=Acitretin).


She also told me I can continue with my beta blocker - I was almost nonfunctional for a few days, when I stopped take my small pill (it is not a narcotic of any kind, just controls adrenalin, and as i feel very anxious in the mornings - i need them:((( very small dosage though, don't think it can really be harmful, but it helps a lot to start the day.
I have an appointment to a dermatology clinic that specializes on PS. So will see what options i have except light treatment and if i really need any...
Also wanted to ask you - my husband found some lamp that can be used home for light therapy (Amazon), ans people;s reviews are very positive - instead of going three times a week - you have at home. Anybody have any experience? Something like this :UVB 311nm Phototherapy
It is special psoriasis treatment lamp.
(I will check all info when he comes home, just told by phone, haha, he is searching the internet for my condition all the time and he already became an expert

And the bath with Dead sea salt is in any help?

Thanks again.
Appreciate your responses.

[svp3058]

Hi, nice to meet you! Sorry psoriasis has come as a shock, it can be hard to accept but you do get used to the idea in the end.
I hope you can overcome your fears of people seeing it, mine is all over my arms and legs and I just wear what I want, I have given up caring what people think. I don't think they are really looking as much as we feel they are. If you get the chance and feel brave enough you should try exposing it to a bit of sun as it might help to clear your skin up.
It's great that your boss is being kind, hopefully you can get things under control soon.

For now - no chance for me to go to the beach, it looks so bad on my legs, hands and arms and torso and continue to spread :((( I planned X-Mas vacations for us, but i can't even think normally now, just frustrated  and depressed looking at myself.
And my favorite beta blocker that made my mornings acceptable more or less - are in the list that not good to take with PS, so I can't stop to vibrate and not able to drive being on very high level of anxiety ( I have it for years and beta blocker helped me to go thru the morning and bring myself to work in one piece) and PS just added more anxiety :((
It is a shock...:((((
How is your PS doing? What helps you?
Thanks!

Interesting you have a list of drugs to avoid with psoriasis - I don't know if we have that here in uk
I guess you run it as an experiment, if coming off them doesn't seem to change your skin then maybe you will end up taking them again.
My ps is quite extensive right now, it's my back, my front, my arms and my legs, and starting up my chest and neck which I don't like. But I'm not so bothered about how it looks, it's more the itching, flaking and soreness ton hat bothers me.. I'm not sure what helps, I think warmer weather but direct sun and uvb are no good. Less stress would probably help too - unfortunately that's not possible with all that's going on in my life right now lol!

Sorry to hear that your PS is bad now... Mine is bad too, same body parts - my back, my front, my arms and my legs (mostly) and hands. Less stress is not possible these days - work, work faster-better-etc, and I do mistakes sometimes that makes me even more stressed...
Warm weather - winter in Canada is the worst winter i ever seen, but as i mentioned above - no chance to show up on the warm and sunny Caribbean beach in my current condition...I am trying to get along with it, but very little success so far, i feel broken and lost...It is lifetime sentence :
And i like to have a glass of wine some time in the evening - looks like no wine any more... and one - two sigs in traffic in the car - also - no anymore... so many my favorite things are not allowed  (cause yoga is not my favorite thing :((( .. ) How to enjoy life...?

[svp3058]

Bonjur sp.

Let's hope that the dermatologist you see is good and most importantly, you get treatment svp.

I'm sure I can speak on behalf of us all on here, you're in our thoughts svp  

I know it's easy to say this and I know that you're new to psoriasis but try not to worry to much, the treatment will help you so much, honestly svp.

Be brave svp  

Thank you very much... I posted below - the visit was pretty much useless, i will go to a good derma clinic next week...