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Psoriasis Score

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Psoriasis Score
Fred Online
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 66,954
Threads: 3,888
Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#1
Lightbulb  Thu-08-09-2011, 23:48 PM
I made the Psoriasis Score page to help me keep track of how my treatment is helping my psoriasis. Please note it is not the pasi score used by dermatologists but it will help you keep track of how you are doing. It can be used by Members and Guests. you can find it on the menu bar above.

Answer the questions on coverage and severity, ranking them from 0 - 4
0 = None / 1 = Low / 2 = Medium / 3 = High

After you answer all the questions push the score button, a window will pop up with you score. (if you get a score NaN it's because you missed a box, you need to tick all the box's)

It's private and no record is kept, so keep a note of your score to compare with your next visit.

Members can put scores in their profiles by clicking "User CP" / "Edit profile" / "Additional Information"
You can also post your score on this thread if you want and share how well you are doing.

We also have the Psoriatic Arthritis Score here: https://psoriasisclub.org/psoriaticarthritisscore.php

If you want more information about PASI see this thread What is the PASI score my dermatologist uses ?
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Fred Online Author
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 66,954
Threads: 3,888
Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#2
Thu-15-05-2014, 12:14 PM
If you're looking for a post in this thread by Moogoo it has been moved to a new thread here Hello from Moogoo
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kh924 Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 261
Threads: 31
Joined: Jul 2014
Gender: Female
Location: Boston, MA (USA)
Treatment: Acitretin/Soritane
#3
Tue-08-07-2014, 23:44 PM
Fred my score is 23. I want to crawl under a rock right now.
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jiml Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 47,972
Threads: 357
Joined: Oct 2013
Gender: Male
Location: Norwich England
Psoriasis Score: 3
Treatment: Skilarence 5x120mg a day
#4
Tue-08-07-2014, 23:52 PM
(Tue-08-07-2014, 23:44 PM)kh924 Wrote: Fred my score is 23. I want to crawl under a rock right now.

NoNo no hiding under rocks, stay strong that score will come down Five
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kh924 Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 261
Threads: 31
Joined: Jul 2014
Gender: Female
Location: Boston, MA (USA)
Treatment: Acitretin/Soritane
#5
Wed-09-07-2014, 01:44 AM
I am doing the WORST possible thing to cope with this- having a martini - after 9 days of no sugar, alcohol, or bad food. F_CK it.
I will hate myself in the morning when my face is angry red and you can all say we told you so
SO frustrated!!!!!
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kh924 Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 261
Threads: 31
Joined: Jul 2014
Gender: Female
Location: Boston, MA (USA)
Treatment: Acitretin/Soritane
#6
Wed-09-07-2014, 01:48 AM
Who gets this stuff on their face of all places?! I must have done something very bad in a previous life. The irony of starting a successful modeling career at age 50 and 4 months later being covered in psoriasis on my face is - I DONT EVEN HAVE WORDS!!!!
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jiml Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 47,972
Threads: 357
Joined: Oct 2013
Gender: Male
Location: Norwich England
Psoriasis Score: 3
Treatment: Skilarence 5x120mg a day
#7
Wed-09-07-2014, 01:53 AM
(Wed-09-07-2014, 01:48 AM)kh924 Wrote: Who gets this stuff on their face of all places?! I must have done something very bad in a previous life. The irony of starting a successful modeling career at age 50 and 4 months later being covered in psoriasis on my face is - I DONT EVEN HAVE WORDS!!!!

Kelly stop beating yourself up nobody on here will say I told you so, have another martini and calm down
Just get over this hurdle and start modelling again
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kh924 Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 261
Threads: 31
Joined: Jul 2014
Gender: Female
Location: Boston, MA (USA)
Treatment: Acitretin/Soritane
#8
Wed-09-07-2014, 01:53 AM
Maybe I can be the poster child for the face of psoriasis!!! Mother of God. I was not this angry when I was told I had stage III cancer for Pete's sake.

SORRY FOR MY BAD BEHAVIOR AND SELF PITY FOLKS. THIS IS ALL VERY NEW TO ME AND I AM STILL ADJUSTING. I am not a weak individual by any means but honestly, can a girl catch a break?
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Caroline Offline
You must hurry if you ever want to catch a chicken...
*
Forum Helper
Posts: 26,513
Threads: 113
Joined: Nov 2011
Gender: Female
Location: In between the tulips
Psoriasis Score: 3
Psoriatic Arthritis Score: 3
PQOLS: 4
Treatment: Got back to DMF slow release
#9
Wed-09-07-2014, 05:03 AM
(Wed-09-07-2014, 01:48 AM)kh924 Wrote: Who gets this stuff on their face of all places?! I must have done something very bad in a previous life. The irony of starting a successful modeling career at age 50 and 4 months later being covered in psoriasis on my face is - I DONT EVEN HAVE WORDS!!!!

The irony of that is indeed devastating. No wonder you are angry and sad at the same time, I had the same when the rheumatologist said to me that I might end up in a wheel chair.
Fighting back, controlling yourself is the only option. You are quite on your way with that, I admire your approach.
The problem (was really writing something else, but you are not allowed to curse on this forum Rules) of psoriasis, but especially of the way treating it, is that it all is slow moving with no guarantees.
Don't worry for now, just go on, and believe in yourself. Perhaps you don't think so, but there still are backup treatments.
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sazcarrie Offline
Novice


Posts: 6
Threads: 1
Joined: Jun 2014
Gender: Female
Location: Montrose Scotland
Psoriasis Score: 51
Treatment: photo therapy and dovabet
#10
Wed-09-07-2014, 05:29 AM
(Tue-08-07-2014, 23:44 PM)kh924 Wrote: Fred my score is 23. I want to crawl under a rock right now.
my score is 51 lass n i shall still hold my head up high Thumb
no crawling under rocks hun you are beautiful regardless of what shallow minded people may say Bigarm
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