You found a cure for psoriasis

[Fred]

You have had psoriasis for a number of years and have tried all the prescribed treatments, you have tried all the over the counter drugs, you have tried a diet and life style change, you even fell for the con artist out there and parted with your hard earned cash trying to be rid of psoriasis.

One day you wake up with an idea buzzing around your head that you think could work. After all these years you hadn’t noticed that the cure for psoriasis was staring you in the face! You go about collecting the things you need to mix up a potion and after a few failed attempts; you think you have finally got it right.

OK let’s not get too carried away with it all. You have to try it first before telling anyone. So you start using your potion in small doses as well as keeping a diary of the trials. This goes on for about a year and you haven’t said a word to anyone.
So your potion works. After 2 months you were completely clear and had stopped taking the potion. You can’t believe it yourself so you share your potion with a trusted friend who also gets clear in two months.

You both remain clear and for around 5 years and decide you must share this with the world. But where to start? Should you form a company, should you get a patent, should you even try Dragons Den? Damn all this worry is enough to bring on a flare up. But it doesn’t, you are both still clear.

The cure that everyone has been looking for exists and you and your friend have it. You want to share it with the world for free, it’s easy to make at home and anyone with your instructions could make it. Your friend however wants to sell it and make lots of money; after all it’s got to be worth anyone with psoriasis paying €100 to be clear for the rest of their life.
Luckily you and your friend still get on very well and you both decide to sit down and discuss it. After a few days your friend tells you he has contacted four of the big drug manufacturers to ask if they would be interested in a psoriasis cure. You are livid; you wanted it to be free to the world and just wanted to see everyone cured of psoriasis. 

Within a few days you have offers from the big four drug companies, they are all interested but they all want it removed from the market. They have sent you and your friend an offer of One Hundred Million to remove it from the market, destroy any notes, and never talk about it again. If you break the contract they will take you to court for Two Hundred Million.

So what do you do? Would you say no to One Hundred Million, if you did could you trust your friend? Or would you just give it to the whole world for free and watch the big four drug manufacturers run it into the ground with false allegations about how your potion can kill people!

P.S No I haven’t developed a potion. If I had do you think I would be sitting here typing this with my stiff flaky fingers?

[Caroline]

What would I do?
Well I would say no to the hundred million. You know why? It does not make you happy, it will only make you greedy for more. This can easily be seen if you look at the people that make all these bonuses, they only hunger for more. And will even try to censor free speech or shutdown the internet (see ACTA) in order to make more money.
While in comparison a few thankful words of someone you have helped can make me very very happy and proud.

So what would I do... Maybe carefully spread the word ? On forums or so ? Trying to help in my limited way, the people that really work on making the cure available to the greater public.

[Hanna]

thats a tough one,

I hate to say it but I would go for the money ..... simply because everyone with psoriasis is told there is no cure, we have all seen pic's of before and after using this cream or that shampoo etc and been ripped off.
so if we were offered this "cure" we think it's all a load of bull....and most people wouldn't even try it!!

I would love to say sod the money I wanna help people, but would the message get accross now???

[Caroline]

Slowly slowly it will Hanna.
Don't ever give up. I am watching Expedition Robinson on my iPad. A dutch television series where a number of people are dropped on some islands in order to survive. Only one of the 14 can finally be the real Robinson. And again this year it turned out, it became the one that never gave up even in the worst situations.

So I said to myself: "never give up".
At least I found my cure, or more the way it makes my psoriasis livable. And it is not a product of the industry, but a rather simple product. Luckily it is easy available in the Netherlands. Luckily there is a patientorgansation that supports it. Luckily they chase a scientific research. Luckily assurance pays it. And luckily it works for me.
Signals are that it works for many people, use is growing in the Netherlands. Patients support each other on the forum, just like on this forum. So why not mention it over here also?

[Fred]

What would I do?
Well I would say no to the hundred million. You know why? It does not make you happy, it will only make you greedy for more. This can easily be seen if you look at the people that make all these bonuses, they only hunger for more. And will even try to censor free speech or shutdown the internet (see ACTA) in order to make more money.
While in comparison a few thankful words of someone you have helped can make me very very happy and proud.

So what would I do... Maybe carefully spread the word ? On forums or so ? Trying to help in my limited way, the people that really work on making the cure available to the greater public.

But if you carefully spread the word someone could steal your idea!

thats a tough one,

I hate to say it but I would go for the money ..... simply because everyone with psoriasis is told there is no cure, we have all seen pic's of before and after using this cream or that shampoo etc and been ripped off.
so if we were offered this "cure" we think it's all a load of bull....and most people wouldn't even try it!!

I would love to say sod the money I wanna help people, but would the message get accross now???

If you could show the proof then people would start to believe!

One each so far, interesting.

[Caroline]

But if you carefully spread the word someone could steal your idea!

Don't be chicken Fred.
Haha that is already impossible.
There is a guideline for dermatologists in the Netherlands.
www huidarts.info/documents/uploaded_file.aspx?id=552
Page 87 and onward tell about the successes that are already made with DMF, since 1994.
But now there is the possibility to have even a better medication, supported by one of the leading dermatologists in NL. I think the patients organisation can make a difference.
Proof will come. At least I believe in that.

oops feel flush coming up. Hihi. Getting a hot head.

[Djohnsonjr]

thats a tough one,

I hate to say it but I would go for the money ..... simply because everyone with psoriasis is told there is no cure, we have all seen pic's of before and after using this cream or that shampoo etc and been ripped off.
so if we were offered this "cure" we think it's all a load of bull....and most people wouldn't even try it!!

I would love to say sod the money I wanna help people, but would the message get accross now???

If you could show the proof then people would start to believe!

One each so far, interesting.  

How would you show proof Fred? As Hanna said "we have all seen pics of before and after......." What would you suggest as a way to show undoubtable proof of its effectiveness?

[jiml]

Ooooh David I hadn't read this for ages it will be interesting to see what Fred thinks

I tend to agree with Caroline , but of course there is the problem of my friend, but hey it was my idea, I will patent it so the big pharma companies can't squeeze it out of existence.... When I have my patent I would offer the patented recipe to the members here to try at no cost. Then stand back and watch the ripples spread out. I know there will be science trying to discredit it. And show "proof" that it's dangerous .
But I would point to the fact that all the ingredients are in all our pantrys and it's just the combination that has the curing effect.
Word would get around and I would be happy reading the testimonials on here and in the newspapers .

* jiml but sadly this is just fantasy it won't happen in my lifetime  
But David I wouldn't worry about proof after 5 years clear for several people and no fails. People could make up their own minds
Before and after pictures don't prove much apart from someones in remission ..... It's the long term after picture that counts

[Bill]

Why dont you just follow DP's lead and write a TV series or two? Psoriasis does wonders for the imagination. Successful treatment is usually a matter of suck it and see, and mix and match. Thankfully I dont have to try the house wine first or fight with insurance companies. I doubt that anyone else would make my choices, but they are my choices and they work for me. In contrast the con artists all seem to have a "This will cure all sufferers forever." approach. I am glad you show them the door, Fred.

Cheers,

Bill

[Fred]

How would you show proof Fred? As Hanna said "we have all seen pics of before and after......." What would you suggest as a way to show undoubtable proof of its effectiveness?

Good question. In the scenario I did say "both remained clear and for around 5 years" is that a cure ? I'm not sure but I was using it as an example. A cold can be cured in a couple of weeks, even cancer can be cured in 5 years. But for me a cure is when every person in the world is rid of psoriasis and no longer needs any treatment, that also has to continue for ever which means it is eradicated.

But like Jim said. I can't see it happening in my time.

@Bill Thank you I enjoy and always will enjoy throwing them out the door.