Psoriasis Club
  • Forum
  • Home
  • Portal
  • Member List
  • Psoriasis Score
  • PQOLS
  • What is psoriasis
  • Search
  • Help
Hello Guest, Welcome To The Psoriasis Club Forum. We are a self funded friendly group of people who understand.
Never be alone with psoriasis, come and join us. (Members see a lot more than you)
wave
Login Register
Login
Username:
Password:
Lost Password?
 
Psoriasis Club › HealthHealth Boards › Psoriasis And Psoriatic Arthritis Topics v
« Previous 1 … 7 8 9 10 11 … 24 Next »

Found new website

Threaded Mode
Found new website
Kersty Offline
Member


Posts: 10
Threads: 2
Joined: Oct 2015
Gender: Female
Location: Ontario
Treatment: every topical known to man/woman; just started Tremfya one week ago
#1
Thu-01-12-2016, 02:09 AM
Has anyone ever had a look at this website?  I found it somewhat informative.  Just posting in case it is helpful to someone.  
I'm having a hard time with the psoriatic arthritis today (if that's really what it is...), damn knee won't stop throbbing.  Might just be old age or a faulty knee, but because my psoriasis is so bad, the doc thinks it MAY be psoriatic arthritis.  Great, now I get to have both!

Anyway, here's the website that a friend forwarded to me today.  I had not seen it myself.  LINK REMOVED  

Of course, the only REAL positive and helpful site of LASTING value, is right here, folks!  Step right in!!!!  (And thanks to all of you that talk and listen and post and reply and help and encourage and make others laugh...)

I don't often have time to get online, but I must admit that I do love THIS site...the psoriasis club!



Edit By Fred: Link removed. We have a no link policy at Psoriasis Club which is mentioned in the sign up agreement.
Quote
Caroline Offline
You must hurry if you ever want to catch a chicken...
*
Forum Helper
Posts: 26,484
Threads: 113
Joined: Nov 2011
Gender: Female
Location: In between the tulips
Psoriasis Score: 3
Psoriatic Arthritis Score: 3
PQOLS: 4
Treatment: Got back to DMF slow release
#2
Thu-01-12-2016, 07:36 AM
(Thu-01-12-2016, 02:09 AM)Kersty Wrote: Has anyone ever had a look at this website?  I found it somewhat informative.  Just posting in case it is helpful to someone.  
I'm having a hard time with the psoriatic arthritis today (if that's really what it is...), damn knee won't stop throbbing.  Might just be old age or a faulty knee, but because my psoriasis is so bad, the doc thinks it MAY be psoriatic arthritis.  Great, now I get to have both!

Anyway, here's the website that a friend forwarded to me today.  I had not seen it myself.  < we have a no-link policy >  

Of course, the only REAL positive and helpful site of LASTING value, is right here, folks!  Step right in!!!!  (And thanks to all of you that talk and listen and post and reply and help and encourage and make others laugh...)

I don't often have time to get online, but I must admit that I do love THIS site...the psoriasis club!

Kersty,

I understand your willingness to give a link to a seemingly sensible site, but we have a no link policy. So please don't do that. You can always describe how to find the site in google or write a Private Message to the ones who request for the site.

I took a look at it and it looks very comprehensive though it already starts wrong "Psoriasis is a common chronic skin disorder...." .
- it is not common, and
- it is no skin disorder but an auto immune disease.

It mentions a lot, but the section on DMF is far too small and limited. In terms of numbers it is an "F".
Certainly overall it is informative.
The copyright section is idiotic. It states that nothing may be copied from this site, only after requesting admission, while all that is on the site is free information findable everywhere on the internet only scattered around. So their claim is invalid.

Conclusion: a strange site made by non-sufferers.

And of course I agree with you on PsoriasisClub, nothing better than this site !! Five

Indeed your knee might be an indication of PsA. Normally PsA is findable in the smaller joints, like your fingers and your toes, but it may extend to the bigger joints. Seldomly it starts in the bigger joints, so it still may be something else.
Quote
Fred Offline
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 66,863
Threads: 3,885
Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#3
Thu-01-12-2016, 11:32 AM
Hello Kersty I have removed the link you posted and sent you a PM to explain.

But for future reference and to remind others. Like Caroline said in her post "We have a no link policy"

This keeps Psoriasis Club free from advertising / scams and makes us the only totally independent psoriasis website out there.

pcpl  

And thank you for the kind words about Psoriasis Club. Smile
Quote
« Next Oldest | Next Newest »


Possibly Related Threads…
Thread Author Replies Views Last Post
  You found a cure for psoriasis Fred 30 42,621 Thu-27-06-2024, 12:57 PM
Last Post: Fred
  Parabens what I found out ! Fred 4 14,756 Wed-26-06-2024, 19:23 PM
Last Post: Trampledrosie



Users browsing this thread: 1 Guest(s)
    About | Contact us | Login | Register | Home | Cookies/GDPR | RSS Syndication | Portal | Types Of Psoriasis | Psoriasis Score | Members Only Boards
    Copyright © 2010 - 2025 Psoriasis Club | All Rights Reserved | Founded May 2010 | Psoriasis Club Is Self Funded Without Sponsors Or Donations | Software by MyBB | Social
Linear Mode
Threaded Mode