Posts: 47,972
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Joined: Oct 2013
Gender: Male
Location: Norwich England
Psoriasis Score: 3
Treatment: Skilarence 5x120mg a day
(Wed-26-11-2014, 19:42 PM)LadyBug Wrote: times passes fast, it has been 10 weeks since I started, weekly increasing I am up to this now... You think it might be too fast?
It is hard to find any doctor to know anything about this drug... So far she is controlling my blood and body, but not really sure about the dosis. We were going mostly as Fumaderm scheduled, just 2 times / day instead of 3.
the schedule was 30 / 60 / 90 / 120 daily for each week, t hen increase of 120 every week...
J.
Joane I'm not sure it just seemed fast to get to a high dose Caroline should be able to tell more when she is online. It may be fine I'm on Fumaderm and the dosing is different
Jim
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Location: Queensland
Treatment: Dimethyl fumarate
Hi Ladybug,
I would agree with Jim and skip the odd dose if things get a bit tough. From my experience with the drug 720 mg would be doing far more than 240 mg, but the pharmacology of the raw drug may be a little different as I get its effects quite quickly.
Cheers,
Bill
Posts: 28,484
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Joined: Nov 2011
Gender: Female
Location: In between the tulips
Psoriasis Score: 3
Psoriatic Arthritis Score: 3
PQOLS: 4
Treatment: Got back to DMF slow release
I agree with Bill and Jim, you could take a breath in the speed of building up. Keep it steady for a while.
I have my doses also in the morning and in the evening.
Indeed there can be delayed effects. In the sense that when taking the evening portion I sometimes wake up and realize I had a flush.
And also my intestines can be quite busy in the night, but I can deal with that immediately the next morning.
Your derm could contact dokter Kunst or dr. Van Loon in the Netherlands to get building up information.
Posts: 66
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Joined: Sep 2014
Gender: Female
Location: Poland
Treatment: started Psorinovo
(Thu-27-11-2014, 08:55 AM)Caroline Wrote: I agree with Bill and Jim, you could take a breath in the speed of building up. Keep it steady for a while.
I have my doses also in the morning and in the evening.
Indeed there can be delayed effects. In the sense that when taking the evening portion I sometimes wake up and realize I had a flush.
And also my intestines can be quite busy in the night, but I can deal with that immediately the next morning.
Your derm could contact dokter Kunst or dr. Van Loon in the Netherlands to get building up information.
Definitely I am keeping it stable from now on and keeping it steady.
The delayed effect is slow release, I am just surprised how slow release it is, but it is nice.
73rd day today...
J.
Posts: 66
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Joined: Sep 2014
Gender: Female
Location: Poland
Treatment: started Psorinovo
95th day,
question - anyone had remissions during using Fumaderm / Psorinovo? I mean... It all seems to be getting a bit better, however new patches still coming out... The worst thing is they come out within 3 days and take 1 month to get better... Neverending battle...
happy Holidays to all!
J.
Posts: 28,484
Threads: 117
Joined: Nov 2011
Gender: Female
Location: In between the tulips
Psoriasis Score: 3
Psoriatic Arthritis Score: 3
PQOLS: 4
Treatment: Got back to DMF slow release
(Sun-21-12-2014, 16:54 PM)LadyBug Wrote: 95th day,
question - anyone had remissions during using Fumaderm / Psorinovo? I mean... It all seems to be getting a bit better, however new patches still coming out... The worst thing is they come out within 3 days and take 1 month to get better... Neverending battle...
happy Holidays to all!
J.
Hi Joana,
No, I did not have remissions. It just started to get better. Now with me the PsA is the most important, that may be a difference. What is the dose you are on now?
Caroline.
Posts: 47,972
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Joined: Oct 2013
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Location: Norwich England
Psoriasis Score: 3
Treatment: Skilarence 5x120mg a day
(Sun-21-12-2014, 16:54 PM)LadyBug Wrote: 95th day,
question - anyone had remissions during using Fumaderm / Psorinovo? I mean... It all seems to be getting a bit better, however new patches still coming out... The worst thing is they come out within 3 days and take 1 month to get better... Neverending battle...
happy Holidays to all!
J.
Hi Joane
Are you still on 960g a day? If so I would have expected to see some improvement by now..although I'm on Fumaderm like Carolune I have not had a flare up of any significance since I initally cleared the only flare up of the psoriasis was when I dropped my dose to just 2x120mg tablets a day I'm back up to three tablets now 360mg and am almost clear again. I don't know what the maximum dose of Psorinovo is but I believe you can go higher than that
Posts: 28,484
Threads: 117
Joined: Nov 2011
Gender: Female
Location: In between the tulips
Psoriasis Score: 3
Psoriatic Arthritis Score: 3
PQOLS: 4
Treatment: Got back to DMF slow release
(Sun-21-12-2014, 19:16 PM)jiml Wrote: (Sun-21-12-2014, 16:54 PM)LadyBug Wrote: 95th day,
question - anyone had remissions during using Fumaderm / Psorinovo? I mean... It all seems to be getting a bit better, however new patches still coming out... The worst thing is they come out within 3 days and take 1 month to get better... Neverending battle...
happy Holidays to all!
J.
Hi Joane
Are you still on 960g a day? If so I would have expected to see some improvement by now..although I'm on Fumaderm like Carolune I have not had a flare up of any significance since I initally cleared the only flare up of the psoriasis was when I dropped my dose to just 2x120mg tablets a day I'm back up to three tablets now 360mg and am almost clear again. I don't know what the maximum dose of Psorinovo is but I believe you can go higher than that
There is virtually no limit, as long as you keep a very good eye on your blood value, spefically on the lymphocytes and the liver functions.
Posts: 66
Threads: 1
Joined: Sep 2014
Gender: Female
Location: Poland
Treatment: started Psorinovo
Yes I am on 960, improvement is visible, although I also used a lot of sun that helped a lot (trip), and it used to help. Now almost clean, however there are new patches that I feel coming out ocasionally, especially when I am not exposed to sunlight for 1-2 days.... I am thinking maybe this dose is too small if it keeps growing again?
J.
Posts: 66
Threads: 1
Joined: Sep 2014
Gender: Female
Location: Poland
Treatment: started Psorinovo
Maybe different question then - before the pills started working - were there new patches coming out still?
J.
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