Kat's Skyrizi Journey Part 2

[Fred]

I found some bio's make things worse than others, or sometimes things get worse after a while on them. They do after-all weaken the immune system, I would say take your last one then ask about trying another.

But it's your choice, hope you get better soon ................................ I've been missing my morning coffee, and your in-tray is full.

[Caroline]

So a quick update.  I would say psoriasis is about the same, at a standstill some days are good, others are itchy and I can't say Skyrizi has helped, but I also haven't gone backwards so perhaps it is keeping things stable.  I do feel the shampoo helps.

I have noticed this has been a year of sickness for me.  Nothing major or bad but quite a few cold/sinus etc events, some sore throats etc and honestly things I usually managed to avoid getting in the past has caught up with me this year.  Bascially if someone in the house is sick, I'll follow.  I can't help but wonder if Skyrizi is to blame for my increased lack of immunity to things going around.  I guess there is no sure way to know, but right now my thought is to just come of off it honestly.  I have one more injection this year before re-evaluating whether to see if I'm eligible for another year or not on their patient program but as of now I'm thinking I just want to be done with it honestly. 

Anyway, this cold is breaking up and I was just starting to feel better but now it's a bit worse.  Sorry I haven't been around much this past week.

With you having a sickness year it is like with my mum.. She also is in a continuous stream of, luckily, little problems. She now is in a coughing phase…

Anyway.. wishing you good recovery.

[Kat]

Thanks Caroline!

Fred, I just filed all the stuff in my inbox. Oh, speaking of which, the trash can is full and should be taken out.

As for coffee...... there's a cafe just a few threads away..............

[Fred]

Thanks Caroline!

Fred, I just filed all the stuff in my inbox. Oh, speaking of which, the trash can is full and should be taken out. 

As for coffee...... there's a cafe just a few threads away..............

[mataribot]

So a quick update.  I would say psoriasis is about the same, at a standstill some days are good, others are itchy and I can't say Skyrizi has helped, but I also haven't gone backwards so perhaps it is keeping things stable.  I do feel the shampoo helps.

I have noticed this has been a year of sickness for me.  Nothing major or bad but quite a few cold/sinus etc events, some sore throats etc and honestly things I usually managed to avoid getting in the past has caught up with me this year.  Bascially if someone in the house is sick, I'll follow.  I can't help but wonder if Skyrizi is to blame for my increased lack of immunity to things going around.  I guess there is no sure way to know, but right now my thought is to just come of off it honestly.  I have one more injection this year before re-evaluating whether to see if I'm eligible for another year or not on their patient program but as of now I'm thinking I just want to be done with it honestly. 

Anyway, this cold is breaking up and I was just starting to feel better but now it's a bit worse.  Sorry I haven't been around much this past week.

See what else are options and move along… I think you have given it a fair try.

[Kat]

So a quick update.  I would say psoriasis is about the same, at a standstill some days are good, others are itchy and I can't say Skyrizi has helped, but I also haven't gone backwards so perhaps it is keeping things stable.  I do feel the shampoo helps.

I have noticed this has been a year of sickness for me.  Nothing major or bad but quite a few cold/sinus etc events, some sore throats etc and honestly things I usually managed to avoid getting in the past has caught up with me this year.  Bascially if someone in the house is sick, I'll follow.  I can't help but wonder if Skyrizi is to blame for my increased lack of immunity to things going around.  I guess there is no sure way to know, but right now my thought is to just come of off it honestly.  I have one more injection this year before re-evaluating whether to see if I'm eligible for another year or not on their patient program but as of now I'm thinking I just want to be done with it honestly. 

Anyway, this cold is breaking up and I was just starting to feel better but now it's a bit worse.  Sorry I haven't been around much this past week.

See what else are options and move along… I think you have given it a fair try.

I think so too. Something tells me my dermatologist is going to disagree. Last time I "hinted" at stopping and was told that Skyrizi is the best option for scalp psoriasis. And she wanted to give me injections on my plagues. I didn't like that idea, not because of getting injections, although the idea didn't thrill me, but the injecting meds that she admitted was a short term solution and could need repeating over and over again just was a no from me. I'm expecting our next conversation to be very similar to that one.

[Turnedlight]

So a quick update.  I would say psoriasis is about the same, at a standstill some days are good, others are itchy and I can't say Skyrizi has helped, but I also haven't gone backwards so perhaps it is keeping things stable.  I do feel the shampoo helps.

I have noticed this has been a year of sickness for me.  Nothing major or bad but quite a few cold/sinus etc events, some sore throats etc and honestly things I usually managed to avoid getting in the past has caught up with me this year.  Bascially if someone in the house is sick, I'll follow.  I can't help but wonder if Skyrizi is to blame for my increased lack of immunity to things going around.  I guess there is no sure way to know, but right now my thought is to just come of off it honestly.  I have one more injection this year before re-evaluating whether to see if I'm eligible for another year or not on their patient program but as of now I'm thinking I just want to be done with it honestly. 

Anyway, this cold is breaking up and I was just starting to feel better but now it's a bit worse.  Sorry I haven't been around much this past week.

See what else are options and move along… I think you have given it a fair try.

I think so too.    Something tells me my dermatologist is going to disagree.  Last time I "hinted" at stopping and was told that Skyrizi is the best option for scalp psoriasis.  And she wanted to give me injections on my plagues.  I didn't like that idea, not because of getting injections, although the idea didn't thrill me, but the injecting meds that she admitted was a short term solution and could need repeating over and over again just was a no from me.  I'm expecting our next conversation to be very similar to that one. 

As you know I’m also on Skyrizi.
Years ago I had scalp p for a while. I’ve not had any since.. until now, on Skyrizi.
I’ve also developed inverse p - which I’ve never had before.
I am seeing the derm soon, I know she wants me to stay on it.
I’m getting a bit fed up with their one drug fits all attitude, if it’s not working why are we being made to feel like we’re not ‘trying’ hard enough?

[Caroline]

As you know I’m also on Skyrizi.
Years ago I had scalp p for a while. I’ve not had any since.. until now, on Skyrizi.
I’ve also developed inverse p - which I’ve never had before.
I am seeing the derm soon, I know she wants me to stay on it.
I’m getting a bit fed up with their one drug fits all attitude, if it’s not working why are we being made to feel like we’re not ‘trying’ hard enough?

It is recognisable over here.
Recently there was a congress, the EADV congress, of dermatologists and other. Over there they were talking about all the choices that were there, advanced treatments and the state of medics.
I heard there was also a patient, telling the real situation and who said that all those great presentations on new drugs and patient centric treatments, but the real world was still the old fashioned way of trying everything so you could finally find the right treatment for yourself…..after…. 10 years or so.

[Forest Walker]

Do you think the dermatologist is thinking mainly about getting skin to clear (translates to success of treatment, success for doctor) and not considering the patient's quality of life? 

I hope you feel better soon, Kat.  And also hope Caroline's mother feels better soon.

[Kat]

This forum has always been a great place that shows it's not a "one size fits all" treatment for psoriasis. Some here have huge successes with one treatment while others do not. TL, I do think some doctors just have their favorites and think it's supposed to work and just stubbornly can't admit they prescribed something that isn't helping. Maybe it's an ego thing, who knows??

This "cold" is a stubborn one. Some days my nose runs all day long, other days - like today, I'm all stuffed up! It's been week for me. Over a month easy for Mr. Kat. I'm not sure how much is weather related with the seasonal changes but sheesh, it's like it's never going to end!!