Ilumetri for psoriatic arthritis Fred's journey

[Fred]

This will be my new thread for my journey on Ilumetri (Ilumya in the USA)

This is my 7th try on a Bio and although most have done well for psoriasis, I have never found one that can keep the psoriatic arthritis under control long term. You can read my last try of Tremfya here Tremfya for psoriatic arthritis Fred's journey which will also point you to my other threads about my journeys if you are interested.

Ilumetri is only prescribed for psoriasis in France at the moment but I will be one of the first trying it for psoriatic arthritis. The recommended dose is 100mg but I'm starting straight off with 200mg as I'm 95Kg and it's been found that those over 90Kg or with a very high PASI score benefit from a double dose.

Though not yet recommended for psoriatic arthritis we are hoping the double dose will kick in fast, so it's two shots followed by another two shots at week four then a maintenance dose of two shots every 12 weeks.

I have also signed up for a trail to evaluate the safety and efficacy of Ilumetri and because I'm using it for psoriatic arthritis it may help them seek approval for treating that in the future.

Thanks to Tremfya I only have a few small patches of psoriasis on my shins and one hand, but it's handy that this annoying little patch on the side of my belly has flared up this week as I will be able to see how Ilumtri deals with it. (I won't be using anything else apart from coconut oil as a moisturiser)



Today I would score the psoriasis at: 3

Now for the psoriatic arthritis. It is flaring again at the moment and to be honest it's getting me down a little so again it will be good to see how Ilumteri works.

I'm going to have to score the psoriatic arthritis today at: 18

Here is a picture of one shot, I will be using two of these and it's no big deal as I've been injecting Bio's for a long time now.




*To note before I get going, I have been feeling very tired recently, my dermatologist said it was do to the high inflammation I have going on.

Job done one shot each side of the belly well away from the belly button, no problems and my journey begins.

Watch this space, members are welcome to comment if they wish in this thread but I will also be keeping a locked copy in the members only boards of my posts for easy reference here: [Group Specific]

[Caroline]

Good luck Fred…

[Fred]

Good luck Fred…   

Thank you Tiger

[jiml]

Great to read Fred I hope the double dose works well for you and it clears the little bits of psoriasis you still have but more importantly I hope it works for psoriatic arthritis ( there's no reason why it shouldn't as they are psoriasis related ) I have my fingers crossed and will follow with great interest.
It's good that you have signed up for the trial and hope your input helps others and also hope if it works on the arthritis that it may help it get approval

[D Foster]

All the best Fred , I hope that it works out well for you.

[KatT]

Good luck Fred!  Hope it works quickly

[Fred]

Great to read Fred I hope the double dose works well for you and it clears the little bits of psoriasis you still have but more importantly I hope it works for psoriatic arthritis ( there's no reason why it shouldn't as they are psoriasis related ) I have my fingers crossed and will follow with great interest.
It's good that you have signed up for the trial and hope your input helps others and also hope if it works on the arthritis that it may help it get approval

All the best Fred , I hope that it works out well for you.

Good luck Fred!  Hope it works quickly

Thank you all

[Bill]

Do you expect it to work like Stelara Fred?

[Fred]

Do you expect it to work like Stelara Fred?

We are hoping like Tremfya as it's much the same, but with Ilumetri I can try the double dose Bill.

[Wooley]

Good luck Fred - fingers crossed this works for you