Tremfya for psoriatic arthritis Fred's journey

[Fred]

Concerned then instead of sympathy 

Nah don't be concerned Dave, I'm fine and can still make it to the Psoriasis Club Bar

As long as you don't get a taste for my gin.

No chance.

[D Foster]

Concerned then instead of sympathy 

Nah don't be concerned Dave, I'm fine and can still make it to the Psoriasis Club Bar

As long as you don't get a taste for my gin.

No chance.

I'm watching you.

[mataribot]

I’ve been wondering myself if there’s anything new on the market. Seems like it’s SSDD (last D is drug). I’m still waiting to see if I got approved, but not impressed so far.

[Fred]

Ok I took my usual shot on Saturday and it just doesn't seem to be kicking in again, if anything it's got a little worse for the psoriatic arthritis.

As before these are the worse areas:
Shoulders
Collarbone
Sternum
Elbows *This has got a little worse
left wrist
Most knuckles *These have got a little worse
Some toes

Tending to use paracetamol more often especially if I want to get stuff done, and often waking up with my shoulders and knuckles locked up.

Ankle problem whatever it is is still the same, got a scan for that next week.

I've taken the shot now so can't do anything for 8 weeks anyway. My next shot will be due 4 weeks before my next appointment, so I will have to think hard about taking it. 

Psoriasis score down from 2 to 1

Psoriatic arthritis score up from 14 to 16

EDIT: Just had a thought. Could covid vaccine affect efficacy of psoriasis treatments

[D Foster]

You may have a point Fred, I was reading an article about Covid and IL 6 and the biological drugs work by suppression of the specific Interleukins like with Stelara suppress IL12 and 23 and interacting with IL17. I know that ZOE had some input I believe in some research being done on the subject or at least one connected in some way.

[jiml]

Seems to be a link with the covid jab Fred let's hope you don't suffer to much between now and when you see the dermatologist

[Fred]

You may have a point Fred, I was reading an article about Covid and IL 6 and the biological drugs work by suppression of the specific  Interleukins like with Stelara suppress IL12 and 23 and interacting with IL17.  I know that ZOE had some input I believe in some research being done on the subject or at least one connected in some way.

I still don't have a clue what you are on about with this "ZOE" person Dave, but I'm sure there will be a lot of studies looking into it.

Seems to be a link with the covid jab Fred let's hope you don't suffer to much between now and when you see the dermatologist

It's not too bad at the moment Jim so not suffering, but it will be interesting to see what comes out later.

I will have a rethink in 8 weeks. 

[KatT]

Is it easy to move up appointments in France?  In case you change your mind!

[Fred]

Is it easy to move up appointments in France?  In case you change your mind!

I have done in the past, but my dermatologist is the top one at the hospital so very busy. Having said that I can talk to her on the phone if I feel the need.

[Caroline]

I will get my first jab next Saturday. Will pay attention on what happens.