Tremfya for psoriatic arthritis Fred's journey

[Fred]

damn I replied to this last night but couldn't have posted it

Sorry to hear it seems to be failing you Fred I hope they can do the shots closer together to give you longer on the tremfya as it was going well for you .
There aren't that many options open to you as they don't like you going back to a treatment once it's failed ...I hope at your next appointment they will suggest a way forward although there aren't many you haven't tried
But good luck with the quest for a long term fix

Fat fingers again Jim 

Yes it was going well, but this is a big hit at the moment. And no she has said if I went on to Tremfya I couldn't go back to Cosentyx. 

Oh bugger. That is not good news at all.
Two questions; can you reduce the time period between shots? and where can you go from here?

Self medication Mmmmmm .........

Yes John we could try a reduction in weeks, I have done that with most bio's in the past ........................ it may work.

Where do I go from here? Good question, the other options available for me are either another IL 17 or IL 23. But I have tried those in a different brand, so ................................. I'm not sure.

As for self medication: Nooooooooo Only fools and Bill do that, and don't even ask me about diet or lifestyle change. 

Sorry to hear that Fred, have you been overdoing it lately such as to much gardening .
I know that the weather does effect the sodding thing and it's a bugger.
I hope that it settles down a bit , time to put your feet up for a while.
Have a couple extra , I know that not sleeping starts to really catch up with you,it does me.
Take care and hopefully it's just a glitch.

I did wonder if I had done too much recently, I have been getting another veggie patch going. But I don't usualy get this much pain. 

I'm going to rest up for the rest of this week and keep positive to see if I can win, but yes a good sleep would be nice. I usually sleep very well, but at the moment it's not good.

Had this damn thing for around 40 years now and it never stops popping back to remind you it's still your buddy. .................... Ha I need Merlot.

[KatT]

I'm hoping it's just a little bump in the road because you overdid it    

Do you wait for your doctor's okay to reduce the weeks or just do it?

Can the dose (not weeks) be increased?  I ask this because I was discussing with the Cosentyx person and I asked since it's not working and she said it is possible in certain circumstances (severe cases)....

[Fred]

I'm hoping it's just a little bump in the road because you overdid it    

Thank you KatT, I'm keeping my fingers crossed ............................... well I would if I could cross them. 

Do you wait for your doctor's okay to reduce the weeks or just do it?

Yes I would have to wait till I speak to her, but I'm due my next shot in a couple of weeks and then I see her before week 8 so it's something we could try.

Can the dose (not weeks) be increased?  I ask this because I was discussing with the Cosentyx person and I asked since it's not working and she said it is possible in certain circumstances (severe cases)....

Good point I did increase the dose with Stelara, that may be worth asking. 

[artemie]

hi Fred, sorry to hear Tremfya not working and you are not comfortable with the pain.

[Fred]

hi Fred, sorry to hear Tremfya not working and you are not comfortable with the pain.

Thank you Artemie 

My shoulders seem to have calmed down a bit which is nice, and I got some decent sleep 

Wrists and hands are still bad, but I'm feeling like I can get them moving again.

I will have to check my psoriatic arthritis score and see how it's doing.

[Fred]

Note for reference: 02 July 20.

I'm pleased to say that the pain is easing in my shoulders and I managed to get some decent sleep.

The psoriatic arthritis score shot up to 21, but it's dropped down to 14.

I'm not sure what is going on and the only way I can explain it is that the psoriatic arthritis feels like it's draining away through my hands. My hands are still very painful, but I'm getting some movement back.

I can only assume I had some sort of psoriatic arthritis flare, but I've never experienced so much pain to come on so quick.

Hopefully it will go as quick as it came.

[D Foster]

I will keep my fingers crossed for you Fred , just take it easy and let Mrs Fred do the work under supervision.

[jiml]

I'm glad it's improving Fred and you managed to get some decent sleep let's hope it continues to improve and leaves your hands soon and hope it was a temporary blip (they happen)

[Fred]

I will keep my fingers crossed for you Fred , just take it easy and let Mrs Fred do the work under supervision.

Thank you Dave. No chance of that she has a wonky shoulder too.

I'm glad it's improving Fred and you managed to get some decent sleep  let's hope it continues to improve and leaves your hands soon and  hope it was a temporary blip (they happen)

Thank you Jim, I'm not able to cross my fingers yet but I'm willing it to go away.

[jiml]

I'll send healing vibes  that should do the trick