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Hi. I am new to posting here but have been using the site for some time. I have seen a few posts re fumaderm and wanted to post my personal story. I was diagnosed with pustular Psorassis 2 years ago and have tried many treatments. I was using methotrexate until 4 weeks ago but this took its toll on me with horrible side effects - I lost most of my hair, was sick 3 days a week and needed blood and platelet transfusions. I moved to fumaderm 4 weeks ago and wow what a difference. My skin is now clear for the first time in 2 years. I have not suffered any side effects and am taking 4 tablets a day. This drug is awesome and just wish I had been prescribed it sooner!!! I feel human again, no one has to follow me around with a hoover and I don't need to sweep the bed in the morning.xx

(Mon-10-10-2016, 11:24 AM)Vicky3177 Wrote:

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Hi. I am new to posting here but have been using the site for some time. I have seen a few posts re fumaderm and wanted to post my personal story. I was diagnosed with pustular Psorassis 2 years ago and have tried many treatments. I was using methotrexate until 4 weeks ago but this took its toll on me with horrible side effects - I lost most of my hair, was sick 3 days a week and needed blood and platelet transfusions. I moved to fumaderm 4 weeks ago and wow what a difference. My skin is now clear for the first time in 2 years. I have not suffered any side effects and am taking 4 tablets a day. This drug is awesome and just wish I had been prescribed it sooner!!! I feel human again, no one has to follow me around with a hoover and I don't need to sweep the bed in the morning.xx

Hi Vicky and a huge to the club ....I'm glad you have been visiting the site and I'm even more pleased you have decided to join us and tell your story

I had a very similar journey with methotrexate ...( not a drug that agreed with me ) I'm so glad you are now on a Fumaderm ...it's the medication I have been on for nearly 5 years ...I'm so glad it's done it's magic on you so soon, and without the side effects that are often encountered

You say you have been on 4 weeks ...so are you still on Fumaderm initial? ( white tablets)
Or are you on 4 full strength 130mg tablets a day ? ( blue tablets)

I hope that as a member you will enjoy the site and perhaps at some time you may venture into the off topic section where you will find everyone very friendly

Hello Vicky,

Welcome to Psoriasisclub, and also a welcome to the DMF-gang.
As you perhaps know by now the working substance of Fumaderm is DMF (Dimethylfumarate). It is already an "old" medication. In the Netherlands it is already used for more than 25 years in a different package from Fumaderm. Fumaderm itself is also already quite old and much used in Germany.

Personally I hate Methotrexate. I really do not understand that dermatologists have to nerves to prescribe it to patients, even while it is in the protocol, it is a very dangerous drug. Specifically for people that are sensitive for it. (Still there are people whose body can deal with it).
But the use of DMF to start with is in fact so much better, that they should swap this around in the protocols.
Apparently you are one of the people where DMF works really well. Super ! about 70% of the people who start with it will have a reduction of their Psoriasis.
Unfortunately there are quite some people who cannot deal with the side effects, though they harmless, they can be very inconvenient.
There is only one drawback to DMF, and that is that you will have to keep an eye on your lymphocytes, as DMF can lower that and it may not get too low. But you know about that of your MTX-time, as MTX is even worse there.

I really am happy that it works so good for you and that you took the time to report on it. And we over here are also very happy that you joined psoriasisclub.
Have a good time over here with us and enjoy yourself.

Cheers,
Caroline

Hello Vicky to Psoriasis Club.

It's up to you, but you are welcome to start a thread in Prescribed Treatments For Psoriasis to about your journey on Fumaderm if you wish.

Good luck with it, it's nice not leaving a trail behind you. Long may it continue.

Regards.

Fred.

Vicky3177

Good to see you have something that works for your P.

I think we can all relate to you having too hoover & clear the snow storm out of the bed etc lol.

I'm the insane one on here, trust me, i'm a real bear

Enjoy yourself on here Vicky and ask anything about P questions you may have, there is a wealth of information on here and we will endeavour to answer you.

GB

OHi Caroline 
Thank you for your reply. I am taking the white tablets  am back at the hospital on Friday but am so happy with the progress so far. I no longer have to hide away or wear gloves out and about. It's awesome!

I am so sorry. I was looking at the wrong post for your name. Sorry xxxx

Hi Caroline. 

Thank you for your kind welcome. I am just so glad it is working well for me xxx

(Mon-10-10-2016, 12:28 PM)Fred Wrote: Hello Vicky   to Psoriasis Club.

It's up to you, but you are welcome to start a thread in Prescribed Treatments For Psoriasis to about your journey on Fumaderm if you wish.

Good luck with it, it's nice not leaving a trail behind you. Long may it continue.

Regards.

Fred.

Hi fred. Thank you for your warm welcome. I will set up a new thread tomorrow when I have a bit of time as I think it isn't so helpful to other sufferers to know that there is light at the end of a tunnel and although it is working well at the moment, I am all to aware that things change quickly xxxx

Hi G Bear. 
Thanks for your very warm welcome. People have been so nice.  I a man sure I will have some questions at some point. It just great to have somewhere to get some answers.  
Xx