In a way good to hear Cheryl. Hope you can continue. And remember, if you can, do think of the intermittent taking of the pills.

Hi Cheryl hope you had a great holiday
Noticed you replying to your award And thought I would ask how's your psoriasis and what are you using now, is it still fumaderm ?

It's been a while so I thought I should up date my journey.

I am currently on 1 tablet a day. I have no side effects currently and so far my bloods have stayed at a level that is reasonable.

My psoriasis has returned on my hands, not much, but enough for me to notice it. It's frustrating, but I am not going to let it get to me as I feel this will only make it worse.

I have to have my bloods taken next week, a little late as I was on holiday, but fingers crossed they will show I can continue on the medication for the time being.

Just on another note......my daughter who is 23, has psoriasis also. She doesn't seem to let it phase her. She has it on her knees, elbows and her face. She knows my struggle, but she says that although it itches at times she doesn't want any treatment for it. Anyone else have children that also have psoriasis?

Good to hear you are still on fumaderm and it's keeping it in check, one tablet a day is good if you can manage on that.
I hope your bloods have improved when you have your test, over 1 would be great

Neither of my 2 girls have got psoriasis ( thankfully) but I think your daughter has a great attitude towards psoriasis and as long as she's happy and coping without drugs or creams. I say good for her   and wish I had felt like that when I was young but unfortunately I  let it get me down

Good luck and thanks for the update

Good to keep a positive attitude, if you let it get you down it will get worse. So keep it up, we all get blips but keeping positive about it will help immensely.

Re your Daughter. I don't have children but I would say to her at that age if she can cope with it then keep going that way. Save the treatments for when you really need them. I would also suggest she gives Virgin Coconut Oil a try, it's a great moisturiser for psoriasis.

Good luck with the bloods.

Hi Cheryl,

Good to hear you are still on DMF.
And only with one tablet, great !

It is not to be expected that the bloods will be bad. At least the normal behavior of your body looking at the lymphocytes is that they tend to go back to normal.
Like seen below.



So the only thing that could go wrong is the kidneys. But with your dose that is not to be expected.

Anyway good luck and we would like to hear the results.

That is very interesting, Caroline. It makes me wonder how many cases could have been continued with better dosage management? Not sure how low I went as I probably did not test enough. Then again I had to use two antibiotics concurrently to beat my latest cold with a lymphocyte count above 1.0. The two week DMF holiday shows me how much my disease has been reduced by this powerful drug. Much less regression this time compared to previous abstinences.

Cheers,

Bill

(Tue-07-06-2016, 10:00 AM)Bill Wrote: That is very interesting, Caroline. It makes me wonder how many cases could have been continued with better dosage management? Not sure how low I went as I probably did not test enough. Then again I had to use two antibiotics concurrently to beat my latest cold with a lymphocyte count above 1.0. The two week DMF holiday shows me how much my disease has been reduced by this powerful drug. Much less regression this time compared to previous abstinences.

Cheers,

Bill

The dosage regime is very important Bill, at least that says the real expert on DMF over here in the Netherlands. The doctor who developed Psorinovo.
Specifically the very slow build up is important that prevents as much as possible the dip. That is where tecfidera is going wrong in the MS cases to my opinion. They build up way to fast.
Once used you can play around, just like you are doing and the intermittent use is very good.

I think it is weird that you have those colds, I am using it much longer than you and I hardly ever have a cold.
Cheers,
Caroline

I have noticed this effect from early in my treatment, so it is probably not due to the large doses. A combination of doxycycline and amoxicillin seem to be an effective counter measure.