(Tue-01-03-2016, 17:02 PM)Turnedlight Wrote: I asked if I might have it, and they said I did based on the fact I have had Achilles tendinitis, plantar fasciitis, and I have carpal tunnel as well though I can't remember if that counts.. Anyway, they said yes, I did have it just based on those things, no swollen joints as yet.
I asked if they could test to confirm and they said no, it was a 'clinical diagnosis' and I could take it as confirmed.

Ooo, but that is interesting. I did a lot of running before I got the PsA, and indeed my achilles also gave me trouble, that might have been an early warning !!

(Tue-01-03-2016, 18:06 PM)Turnedlight Wrote: Who says I walked home..  

Is that why the shrubbery next to the entrance is doing so well ?

(Tue-01-03-2016, 18:06 PM)Turnedlight Wrote: Who says I walked home..  

whaaaaaaaat

(Tue-01-03-2016, 18:22 PM)Caroline Wrote:

(Tue-01-03-2016, 17:02 PM)Turnedlight Wrote: I asked if I might have it, and they said I did based on the fact I have had Achilles tendinitis, plantar fasciitis, and I have carpal tunnel as well though I can't remember if that counts.. Anyway, they said yes, I did have it just based on those things, no swollen joints as yet.
I asked if they could test to confirm and they said no, it was a 'clinical diagnosis' and I could take it as confirmed.

Ooo, but that is interesting. I did a lot of running before I got the PsA, and indeed my achilles also gave me trouble, that might have been an early warning !!

I remembered we had this if it helps: Achilles tendon ultrasonography may detect early features of psoriatic arthropathy

(Tue-01-03-2016, 19:21 PM)Fred Wrote:

(Tue-01-03-2016, 18:22 PM)Caroline Wrote:

(Tue-01-03-2016, 17:02 PM)Turnedlight Wrote: I asked if I might have it, and they said I did based on the fact I have had Achilles tendinitis, plantar fasciitis, and I have carpal tunnel as well though I can't remember if that counts.. Anyway, they said yes, I did have it just based on those things, no swollen joints as yet.
I asked if they could test to confirm and they said no, it was a 'clinical diagnosis' and I could take it as confirmed.

Ooo, but that is interesting. I did a lot of running before I got the PsA, and indeed my achilles also gave me trouble, that might have been an early warning !!

I remembered we had this if it helps: Achilles tendon ultrasonography may detect early features of psoriatic arthropathy

quite interesting. That maybe is why this problems also disappeared by the use of DMF.

My ankle to my shin area was swollen because of this. My feet also grow at the rate of about 2 inches per year (flatten out).

Just had a reply after my appointment with the rheumatologist which suggests I have a form of arthritis
The reply is as follows

Quote:The ultrasound scan of your hands has shown no active inflammation , but you had erosions on the X-rays of your feet. This suggests there has been inflammation here, if not now then certainly in the past. I know your preference was to increase your Fumaderm dose before considering other medications . As you are aware Fumaderm isn't something I am familiar with, but I know you are due to see Dr **** again in clinic in a couple of weeks time so you could discuss increasing the dose then. I would point out however that there is no good data for using Fumaderm in psoriatic arthritis, and my preference would be to give you methotrexate.
Please let me know if this is something you would go back on . Otherwise I'll see you again in clinical planned

I haven't replied yet as I will try to gather information on Fumaderm supporting me staying on it before I respond
But there's no way I will go back onto the Methotrexate as I have had that experience and got over it

I look forward to any comments

(Thu-03-03-2016, 14:22 PM)jiml Wrote: I look forward to any comments

Does that mean without the DMF Gang jumping down my throat.  

First off Well done for not going back on Methotrexate. I do wish these people would get over the old days of throwing poison at people with psoriasis. Yes it can work but 8/10 times it just makes people feel worse than they did with the psoriasis and they end up giving up and don't go back.  

Next I think you know my next answer. I'm still not convinced that Fumaderm is good enough for treating psoriatic arthritis. I don't know about Caroline's Psorinovo or Bills Pure DMF and I'm only going by my own research from when I considered using Fumaderm. My conclusions were that there just didn't seem to be enough evidence from studies and people I know that have used it that it would help me any better than the Bio's.

We all get pationate about a treatment that works for us. I'm the same with Stelara and want to hang onto it as long as I can, but some say it doesn't help psoriatic arthritis. Whilst I agree it's not as good as the others it's been the best for me as an all round treatment. I don't want to stop using it, but I'm now considering Cosentyx as I do think our bodies get used to one treatment and they stop being so effective.

You asked for comments, I'll go now before the rest of the DMF Gang arrive.  

(Thu-03-03-2016, 15:26 PM)Fred Wrote:

(Thu-03-03-2016, 14:22 PM)jiml Wrote: I look forward to any comments

Does that mean without the DMF Gang jumping down my throat.  

First off Well done for not going back on Methotrexate. I do wish these people would get over the old days of throwing poison at people with psoriasis. Yes it can work but 8/10 times it just makes people feel worse than they did with the psoriasis and they end up giving up and don't go back.  

Next I think you know my next answer. I'm still not convinced that Fumaderm is good enough for treating psoriatic arthritis. I don't know about Caroline's Psorinovo or Bills Pure DMF and I'm only going by my own research from when I considered using Fumaderm. My conclusions were that there just didn't seem to be enough evidence from studies and people I know that have used it that it would help me any better than the Bio's.

We all get pationate about a treatment that works for us. I'm the same with Stelara and want to hang onto it as long as I can, but some say it doesn't help psoriatic arthritis. Whilst I agree it's not as good as the others it's been the best for me as an all round treatment. I don't want to stop using it, but I'm now considering Cosentyx as I do think our bodies get used to one treatment and they stop being so effective.

You asked for comments, I'll go now before the rest of the DMF Gang arrive.  

I won't jump down you throat I welcome all comments and will dismiss consider them all  

I have been looking all over for "evidence" that Fumaderm will work for PsA but so far have been unable to find anyone on the drug who has the disease, I don't understand any of the German literature I have seen but will keep looking.
I personally believe my arthritis would be much worse without Fumaderm ... But it's difficult to prove  

I will not dismiss bio drugs although they do tend to scare me more than Fumaderm as I say I'm open to all suggestions and I have till July until I see the rheumatologist again, and I think I can persuade my dermatologist that my plan of action is right for the time being

If anyone shoots you down Fred I will give them a good  

(Thu-03-03-2016, 15:37 PM)jiml Wrote: If anyone shoots you down Fred I will give them a good  

Thank you Big Jim.  

I will say though don't be scared of the Bio's. We can all read bad things about all treatments, do your homework and have a plan just in case.