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Psoriasis Club › HealthHealth Boards › Prescribed Treatments For Psoriasis v
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Acitretin journey!

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Acitretin journey!
fingers Offline Author
Member


Posts: 58
Threads: 4
Joined: Aug 2015
Gender: Male
Location: UK
Psoriasis Score: 30
Treatment: Otezla!
#71
Fri-23-10-2015, 22:30 PM
(Fri-23-10-2015, 22:28 PM)jiml Wrote: Hi fingers you say you start on Monday, is that with Fumaderm initial ?
yes Jim starting on 1 daily to 3 daily over 3 weeks... then start the big boys!!!!
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Caroline Online
You must hurry if you ever want to catch a chicken...
*
Forum Helper
Posts: 26,504
Threads: 113
Joined: Nov 2011
Gender: Female
Location: In between the tulips
Psoriasis Score: 3
Psoriatic Arthritis Score: 3
PQOLS: 4
Treatment: Got back to DMF slow release
#72
Fri-23-10-2015, 22:42 PM
(Fri-23-10-2015, 22:30 PM)fingers Wrote:
(Fri-23-10-2015, 22:28 PM)jiml Wrote: Hi fingers you say you start on Monday, is that with Fumaderm initial ?
yes Jim starting on 1 daily to 3 daily over 3 weeks... then start the big boys!!!!

I am very curious if you get flushes and what you think of them Big Grin
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fingers Offline Author
Member


Posts: 58
Threads: 4
Joined: Aug 2015
Gender: Male
Location: UK
Psoriasis Score: 30
Treatment: Otezla!
#73
Fri-23-10-2015, 22:49 PM
(Fri-23-10-2015, 22:42 PM)Caroline Wrote:
(Fri-23-10-2015, 22:30 PM)fingers Wrote:
(Fri-23-10-2015, 22:28 PM)jiml Wrote: Hi fingers you say you start on Monday, is that with Fumaderm initial ?
yes Jim starting on 1 daily to 3 daily over 3 weeks... then start the big boys!!!!

I am very curious if you get flushes and what you think of them  Big Grin
Lol!!!...something to look forward to!!!! Confused
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Bill Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 1,624
Threads: 6
Joined: Dec 2012
Gender: Male
Location: Queensland
Treatment: Dimethyl fumarate
#74
Sat-24-10-2015, 03:50 AM
Good luck, Fingers. I think that cysteine might make my DMF experience a little easier by taking about a gram twice a day. I am due for a dose of DMF tomorrow, so I hope it works.

Cheers,

Bill
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fingers Offline Author
Member


Posts: 58
Threads: 4
Joined: Aug 2015
Gender: Male
Location: UK
Psoriasis Score: 30
Treatment: Otezla!
#75
Thu-28-01-2016, 21:10 PM
Hi everyone!!.. Well I haven't posted for a while! I was hoping to be able to put a picture up clear!!!!....but alas no,
The fumaderm has made a slight improvement ....but after this long it's not enough to continue on it!!...sooo my favourite Dermatologist is putting me on Otezla!!!...the pharmacy doesn't get it in until Monday so I am on a weeks break from all medication.
I hope I can keep you all informed of any progress on Otezla as I know not many members have used it!!!! I think my Psoriasis is determined to stay!!!.....so I am back at the start........like snakes and ladders!! :-)
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Fred Offline
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 66,930
Threads: 3,887
Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#76
Thu-28-01-2016, 21:15 PM
Yep snakes and ladders sums it up well.

But don't give up hope it can take a while to get something that works for you, but even then it can fail at any time.

Otezla has had mixed results, but let's hope it helps.

Don't hesitate to start a new thread. I just noticed this one says Acitretin but you are talking about Fumaderm  Wink

Good luck with your new journey.
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fingers Offline Author
Member


Posts: 58
Threads: 4
Joined: Aug 2015
Gender: Male
Location: UK
Psoriasis Score: 30
Treatment: Otezla!
#77
Thu-28-01-2016, 21:21 PM
(Thu-28-01-2016, 21:15 PM)Fred Wrote: Yep snakes and ladders sums it up well.

But don't give up hope it can take a while to get something that works for you, but even then it can fail at any time.

Otezla has had mixed results, but let's hope it helps.

Don't hesitate to start a new thread. I just noticed this one says Acitretin but you are talking about Fumaderm  Wink

Good luck with your new journey.
Thanks Fred!!...I hope Otezla works also!!.....lol when i started the the thread I was just starting Acitretin... then I went on Fumaderm.... and now Otezla!!!......one day I will find the answer!!!!!!!!!
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Fred Offline
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 66,930
Threads: 3,887
Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#78
Thu-28-01-2016, 21:31 PM
(Thu-28-01-2016, 21:21 PM)fingers Wrote: Thanks Fred!!...I hope Otezla works also!!.....lol when i started the the thread I was just starting Acitretin... then I went on Fumaderm.... and now Otezla!!!......one day I will find the answer!!!!!!!!!

We all keep searching mate, been doing it for about 35 years and still not 100% sure I have it sussed. I'm the best now that I have ever been so there is hope, but I know it can bite back any time and I'm always looking to what to try next.

You're welcome to start as many threads as you like and you don't have to keep to this one. Maybe start a new one and put a link to it from here. But it's not obligatory and it's your choice. (Well unless someone volunteers to come around and give you a good beating)  Big Grin
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jiml Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 47,972
Threads: 357
Joined: Oct 2013
Gender: Male
Location: Norwich England
Psoriasis Score: 3
Treatment: Skilarence 5x120mg a day
#79
Thu-28-01-2016, 21:44 PM
(Thu-28-01-2016, 21:10 PM)fingers Wrote: Hi everyone!!.. Well I haven't posted for a while! I was hoping to be able to put a picture up clear!!!!....but alas no,
The fumaderm has made a slight improvement ....but after this long it's not enough to continue on it!!...sooo my  favourite Dermatologist is putting me on Otezla!!!...the pharmacy doesn't get it in until Monday so I am on a weeks break from all medication.
I hope I can keep you all informed of any progress on Otezla as I know not many members have used it!!!!  I think my Psoriasis is determined to stay!!!.....so I am back at the start........like snakes and ladders!!  :-)

Hi fingers nice to see you again, shame about the Fumaderm I had high hopes for that to do the trick for you . But you gave it a fair go you started at the end of October and I'm assuming you went right up to six a day with the tablets. And it had made a slight improvement ... Do you mind me asking how long you have been on the full dose?
It's known to take a while to get going and I wish I could remember how long it was before I got clearance. Others on here have taken a while to clear,

I wish you luck with otezla and like Fred I hope it will work well for you .
And please do keep us posted as you say we haven't got many on otezla here and your experience could help others
Quote
fingers Offline Author
Member


Posts: 58
Threads: 4
Joined: Aug 2015
Gender: Male
Location: UK
Psoriasis Score: 30
Treatment: Otezla!
#80
Thu-28-01-2016, 22:00 PM
(Thu-28-01-2016, 21:44 PM)jiml Wrote:
(Thu-28-01-2016, 21:10 PM)fingers Wrote: Hi everyone!!.. Well I haven't posted for a while! I was hoping to be able to put a picture up clear!!!!....but alas no,
The fumaderm has made a slight improvement ....but after this long it's not enough to continue on it!!...sooo my  favourite Dermatologist is putting me on Otezla!!!...the pharmacy doesn't get it in until Monday so I am on a weeks break from all medication.
I hope I can keep you all informed of any progress on Otezla as I know not many members have used it!!!!  I think my Psoriasis is determined to stay!!!.....so I am back at the start........like snakes and ladders!!  :-)

Hi fingers nice to see you again, shame about the Fumaderm I had high hopes for that to do the trick for you . But you gave it a fair go you started at the end of October and I'm assuming you went right up to six a day with the tablets. And it had made a slight improvement ... Do you mind me asking how long you have been on the full dose?
It's known to take a while to get going and I wish I could remember how long it was before I got clearance. Others on here have taken a while to clear,

I wish you luck with otezla and  like Fred I hope it will work well for you
And please do keep us posted as you say we haven't got many on otezla here and your experience could help others
Hi Jim and thanks for the good wishes!!!.... I was on the full dose of Fumaderm for about 10 weeks!!...but had a few small new patches appear also!!...so that tipped the scale to trying Otezla! I will keep you all posted!!!!!
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