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Psoriasis Club › HealthHealth Boards › Prescribed Treatments For Psoriasis v
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Stelara round two

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Stelara round two
jiml Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
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Joined: Oct 2013
Gender: Male
Location: Norwich England
Psoriasis Score: 3
Treatment: Skilarence 5x120mg a day
#291
Wed-14-10-2015, 19:23 PM
(Wed-14-10-2015, 19:00 PM)Fred Wrote:
(Wed-14-10-2015, 16:21 PM)Kat Wrote: I hope you get good news on the lumps Fred.  It's worrisome but sometimes fluid builds up more than other times from what I understand so perhaps that is why she could feel them.

Aha so it could be just a build up of Merlot.  91

Thank you Kat.  Smile

Good option I'll go with that ...it's a strong maybe Tongue
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Fred Online Author
I Wanted To Change the World But Got Up Far Too Late.
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Gender: Male
Location: France
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#292
Wed-14-10-2015, 19:24 PM
(Wed-14-10-2015, 19:23 PM)jiml Wrote:
(Wed-14-10-2015, 19:00 PM)Fred Wrote:
(Wed-14-10-2015, 16:21 PM)Kat Wrote: I hope you get good news on the lumps Fred.  It's worrisome but sometimes fluid builds up more than other times from what I understand so perhaps that is why she could feel them.

Aha so it could be just a build up of Merlot.  91

Thank you Kat.  Smile

Good option I'll go with that ...it's a strong maybe  Tongue

15
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Caroline Offline
You must hurry if you ever want to catch a chicken...
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Forum Helper
Posts: 26,525
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Joined: Nov 2011
Gender: Female
Location: In between the tulips
Psoriasis Score: 3
Psoriatic Arthritis Score: 3
PQOLS: 4
Treatment: Got back to DMF slow release
#293
Wed-14-10-2015, 19:38 PM
Mmm, i am not happy with your message Fred, but anyway quick action is following.
I will be walking on my toes for you until there is more news. And will pray to the Flying Spaghetti Monster for a solution for you. Confused
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Fred Online Author
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Treatment: Bimzelx / Coconut Oil
#294
Wed-14-10-2015, 19:55 PM
(Wed-14-10-2015, 19:38 PM)Caroline Wrote: Mmm, i am not happy with your message Fred, but anyway quick action is following.
I will be walking on my toes for you until there is more news. And will pray to the Flying Spaghetti Monster for a solution for you.  Confused

Thank you Caroline, just don't go stepping on my toes. Smile
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mataribot Offline
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#295
Thu-15-10-2015, 04:24 AM
Sorry to hear this Fred. Hope it is nothing. Just one question... Are all your labs normal?
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Bill Offline
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Location: Queensland
Treatment: Dimethyl fumarate
#296
Thu-15-10-2015, 13:30 PM
Sorry to hear that, Fred. At least it sounds like you are receiving excellent care. I would chime in with Matari though and ask if there is a diagnosis, or at least whether the Stelara has been ruled out as a potential cause? If there is an infectious cause it may be a good thing to be so far from your last dose.

Best wishes,

Bill
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Fred Online Author
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#297
Thu-15-10-2015, 13:54 PM
(Thu-15-10-2015, 04:24 AM)mataribot Wrote: Sorry to hear this Fred. Hope it is nothing. Just one question... Are all your labs normal?

(Thu-15-10-2015, 13:30 PM)Bill Wrote: Sorry to hear that, Fred. At least it sounds like you are receiving excellent care. I would chime in with Matari though and ask if there is a diagnosis, or at least whether the Stelara has been ruled out as a potential cause? If there is an infectious cause it may be a good thing to be so far from your last dose.

Best wishes,

Bill

Thank you both.

@Matari. Yes everything has come back fine not only my usual bloods but also from the weeks worth of tests.

@Bill yes it's one of the top training hospitals so I get very well looked after. They have taken all my results from my week in hospital and are holding meetings with all the top doctors to try and work out what is going on. So far they are not linking it with Stelara, but my dermatologist says she wants to be sure before she will rule it out.
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Fred Online Author
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#298
Sun-03-01-2016, 14:14 PM
Just a little update:

Dermatology appointment this coming Wednesday so will have a better update then, but for now I'm just making a note so I have something to look back on.

Psoriasis Score has gone up from 1 to 3. Mostly an increase in the stubborn patches on the front of my lower legs, but I'm still happy as it's week 12 and I've been a bit wound up lately about the operation. (Looks I like they will give me the results on Wednesday, at least they haven't phoned so it must be goodish news)

Psoriatic Arthritis Score has remained at 3 so I'm very pleased with that and that's even with doing a lot of work sorting the poly tunnel out.

Here's hoping the results are good enough for me to stay on Stelara as I now seem to be doing well again since settling down on the 90mg.
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jiml Offline
100 + Member I Just Cant Stop !

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Posts: 47,972
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Location: Norwich England
Psoriasis Score: 3
Treatment: Skilarence 5x120mg a day
#299
Sun-03-01-2016, 14:17 PM
(Sun-03-01-2016, 14:14 PM)Fred Wrote: Just a little update:

Dermatology appointment this coming Wednesday so will have a better update then, but for now I'm just making a note so I have something to look back on.

Psoriasis Score has gone up from 1 to 3. Mostly an increase in the stubborn patches on the front of my lower legs, but I'm still happy as it's week 12 and I've been a bit wound up lately about the operation. (Looks I like they will give me the results on Wednesday, at least they haven't phoned so it must be goodish news)

Psoriatic Arthritis Score has remained at 3 so I'm very pleased with that and that's even with doing a lot of work sorting the poly tunnel out.

Here's hoping the results are good enough for me to stay on Stelara as I now seem to be doing well again since settling down on the 90mg.

Great stuff Fred as you say about the hospital if they don't phone it usually means there's nothing much to report ... Good luck Wednesday ...let's hope you can stay on Stelara Thumb
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Fred Online Author
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Treatment: Bimzelx / Coconut Oil
#300
Sun-03-01-2016, 14:36 PM
(Sun-03-01-2016, 14:17 PM)jiml Wrote: Great stuff Fred as you say about the hospital if they don't phone it usually means there's nothing much to report ... Good luck Wednesday ...let's hope you can stay on Stelara  Thumb

Smile
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