Hoping you get some pain relief soon Yvon

Good luck with the next one Yvon, I was the same, Humira only worked briefly with me but when I moved to Cosentyx the change was dramatic

(Tue-21-12-2021, 19:54 PM)Turnedlight Wrote: Hope you get a new bio - humira didn’t work on me at all, but the next one did.

(Tue-21-12-2021, 21:31 PM)Raxyl Wrote: Good luck with the next one Yvon, I was the same, Humira only worked briefly with me but when I moved to Cosentyx the change was dramatic

Thanks 

(Tue-21-12-2021, 20:57 PM)Wooley Wrote: Hoping you get some pain relief soon Yvon

Yvon, you could try to find the rheumatologist that is in one of the webinars of the PN. He is a relative expert on PsA, as far as I know.

Alternative is the Maartenskliniek, where there is also a good expertise.

Sorry I am reacting so late .. was occupied.


Caroline

(Sun-26-12-2021, 21:11 PM)Caroline Wrote: Yvon, you could try to find the rheumatologist that is in one of the webinars of the PN. He is a relative expert on PsA, as far as I know.

Alternative is the Maartenskliniek, where there is also a good expertise.

Sorry I am reacting so late .. was occupied.


Caroline

No worry's, thank you for your reaction and advice

My Reumatoligist is at the Maartenskliniek, i'm still there. But my experience also in this clinic is that not all Reumatoligist have experience with PsA. The first one in this clinic, but this was in 2016, said i could not have PsA because there was no visable redness and swelling 

So thats why i looked up a Reumatoligist at this clinic with expertise in PsA, and he said that even without visable redness and swelling i realy had PsA. So that's why i won't go to a Reumatoligist who hasn't experience with PsA, because it hard to diagnose and for 10 years i have been send away with "fibromyalgia". That's not gonna happen again.
I've found two other Reumatoligist with expertise in PsA at this clinic, and asked if i can consult them instead of the one they wanne send me to.
And still waiting for their awnser....
If they don't call me today, i will phone them again tomorow...

(Mon-27-12-2021, 12:28 PM)YvonS Wrote:

(Sun-26-12-2021, 21:11 PM)Caroline Wrote: Yvon, you could try to find the rheumatologist that is in one of the webinars of the PN. He is a relative expert on PsA, as far as I know.

Alternative is the Maartenskliniek, where there is also a good expertise.

Sorry I am reacting so late .. was occupied.


Caroline

No worry's, thank you for your reaction and advice

My Reumatoligist is at the Maartenskliniek, i'm still there. But my experience also in this clinic is that not all Reumatoligist have experience with PsA. The first one in this clinic, but this was in 2016, said i could not have PsA because there was no visable redness and swelling 

So thats why i looked up a Reumatoligist at this clinic with expertise in PsA, and he said that even without visable redness and swelling i realy had PsA. So that's why i won't go to a Reumatoligist who hasn't experience with PsA, because it hard to diagnose and for 10 years i have been send away with "fibromyalgia". That's not gonna happen again.
I've found two other Reumatoligist with expertise in PsA at this clinic, and asked if i can consult them instead of the one they wanne send me to.
And still waiting for their awnser....
If they don't call me today, i will phone them again tomorow...

Yes, that is the way to go I guess.
It is very difficult that sometimes we as patients really have to fight for our rights and for the right treatment.

I couldn't wait anymore... i phoned myself.
I got a appointment with the Reumatoligist i requested   ... 
They made the first appointment for 10th of February 
So i told about my pain etc.... and if i still have to inject the Humira..
"I don't know, we will call you back, hopefully within five workdays" is the awnser i got..

So i will wait again, but i'm glad i got the Reumatoligist i requested. Like Caroline said "Fight for our rights", that's one thing i'm becoming very good at 

(Mon-27-12-2021, 14:29 PM)YvonS Wrote: I couldn't wait anymore... i phoned myself.
I got a appointment with the Reumatoligist i requested   ... 
They made the first appointment for 10th of February 
So i told about my pain etc.... and if i still have to inject the Humira..
"I don't know, we will call you back, hopefully within five workdays" is the awnser i got..

So i will wait again, but i'm glad i got the Reumatoligist i requested. Like Caroline said "Fight for our rights", that's one thing i'm becoming very good at 

Very good action..
well done Yvon!