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Dilema with Psoriasis on Penis and Meds

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Dilema with Psoriasis on Penis and Meds
Lookingforhelp Offline
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Posts: 32
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#1
Sat-30-09-2017, 19:52 PM (This post was last modified: Sat-30-09-2017, 19:56 PM by Lookingforhelp. Edited 2 times in total.)
Hi.  

I have had red spots on my penis for over a year now.  I went to a primary care doctor who said it looked like psoriasis and recommended trying Lamisil and Hydrocortisone 1%.  Neither of those had an effect and he referred me to a dermatologist.  

The dermatologist also said it looks like psoriasis.  He gave me hydrocortisone 2.5% ointment and triamcinolone ointment.  I used those for a few months with not much help, although 5-10% of the area did clear.  When I went back he said that I could continue using the ointment but it may take years and there wasn't much more he could do.  I discontinued using the hydrocortisone 2.5% and triamcinolone.  

I've also had STD testing done to rule out this being an STD.  The STD testing was negative. 

I decided to get a second opinion from another dermatologist.  He said he could not be sure that it is psoriasis without doing a biopsy.  He gave me mometasone ointment and protopic ointment to try first before doing a biopsy.  I used these ointments for 10 days only because they burned REALLY bad.  I went back and told him and he said they shouldn't burn and told me to just try the mometasone and give it one more try.  I tried it once and it burned so badly I had to take a shower after 30 mins to get it off.  I only used it the one time (the second time around).

He gave me another prescription and said if the mometasone burned too bad to try Clobetasol.  However I have googled Clobetasol and it says it is one of the most potent corticosteroids.  I am extremely reluctant to try any more ointments on my penis at this point, let alone a potent one.  It has been 3 months since I used the mometasone/protopic for the 10 days and my penis still hurts.  It hurts now when I masturbate.  I am fearing longterm damage.  

I'm pretty upset at this point and unsure exactly what to do, which is why I am writing this out.  I'm wondering if any members of this community have tried Clobetasol or have an opinion on wether that is safe to put on the penis or not.  

I am thinking I will see a 3rd dermatologist and ask wether these meds (mometasone, protopic, clobetasol) were ok to use on the penis or not.  Also the derm I was seeing said if these don't help the next step is a biopsy to confirm what exactly the red spots are.  He said it is the last resort though because it will leave permanent scarring.  

I'm pretty upset and unsure what to do.  I suppose I will find another dermatologist to get a 3rd opinion before trying ANY more ointments and before doing a biopsy.  I'm also unsure wether doing a biopsy is worth it or not. 

Anyone have any advice on what to do for someone in my situation?  Help! 
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Fred Offline
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#2
Sat-30-09-2017, 20:06 PM
I don't know about Clobetasol, but I would be very careful about what you use on the penis. It does sound to me like you'e not having much luck with dermatologists, surely they know what it is. Confused

Have you tried a good quality virgin coconut oil? It's great stuff and certainly won't cause any problem on the penis. *However if you use condoms be warned that coconut oil can make them fail.

Apart from that I would say, get yourself another dermatologist.
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Lookingforhelp Offline Author
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#3
Sat-30-09-2017, 20:20 PM
(Sat-30-09-2017, 20:06 PM)Fred Wrote: I don't know about Clobetasol, but I would be very careful about what you use on the penis. It does sound to me like you'e not having much luck with dermatologists, surely they know what it is.  Confused

Have you tried a good quality virgin coconut oil? It's great stuff and certainly won't cause any problem on the penis. *However if you use condoms be warned that coconut oil can make them fail.

Apart from that I would say, get yourself another dermatologist.

Yeah I'll get another dermatologist.  

I use to use raw coconut oil in the shower from head to toe.

Thanks for the response.
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Fred Offline
I Wanted To Change the World But Got Up Far Too Late.
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Posts: 66,981
Threads: 3,888
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Location: France
Psoriatic Arthritis Score: 1
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Treatment: Bimzelx / Coconut Oil
#4
Sat-30-09-2017, 20:23 PM
(Sat-30-09-2017, 20:20 PM)pid=\122679' Wrote:
(Sat-30-09-2017, 20:06 PM)Fred Wrote: I don't know about Clobetasol, but I would be very careful about what you use on the penis. It does sound to me like you'e not having much luck with dermatologists, surely they know what it is.  Confused

Have you tried a good quality virgin coconut oil? It's great stuff and certainly won't cause any problem on the penis. *However if you use condoms be warned that coconut oil can make them fail.

Apart from that I would say, get yourself another dermatologist.

Yeah I'll get another dermatologist.  

I use to use raw coconut oil in the shower from head to toe.

Thanks for the response.

Good luck. I would try coconut oil after your shower and use it twice a day.

Also it could be worth trying loose fitting cotton underwear.
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Lookingforhelp Offline Author
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Posts: 32
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#5
Sun-01-10-2017, 05:11 AM
(Sat-30-09-2017, 20:23 PM)Fred Wrote: Good luck. I would try coconut oil after your shower and use it twice a day.

Also it could be worth trying loose fitting cotton underwear.

Thanks
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D Foster Offline
“You only live once, but if you do it right, once is enough.”

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#6
Sun-01-10-2017, 13:05 PM
Hi worth a try but it could be something setting it off like thrush or yeast based problem so try Canesten cream as it's not expensive and it may be the answer to whats causing it to break out ,I would be extremely careful about what high strength treatments I used if I was you.
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jiml Offline
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#7
Mon-02-10-2017, 11:42 AM
Hi and  Welcome  to the club ....I hope you get an answer to your problem soon, it seems strange if you don't have psoriasis anywhere else that it would appear first on your penis, the usual places are knees and elbows ...however if it is psoriasis do be very careful treating it with steroid creams, the last place you want thin skin is there
I hope you get a correct diagnosis soon and get yourself clear

Good luck
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Fred Offline
I Wanted To Change the World But Got Up Far Too Late.
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Posts: 66,981
Threads: 3,888
Joined: Aug 2011
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Location: France
Psoriatic Arthritis Score: 1
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Treatment: Bimzelx / Coconut Oil
#8
Wed-01-11-2017, 12:16 PM
If you are looking for a new post here it has been removed for breaking our No Link Policy.
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Lookingforhelp Offline Author
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Posts: 32
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#9
Mon-27-11-2017, 02:15 AM (This post was last modified: Mon-27-11-2017, 02:15 AM by Lookingforhelp. Edited 1 time in total.)
To update this thread, I had a biopsy done, and my diagnosis is Lichen Planus.  So it turns out I do not have psoriasis.  Thanks everyone for the replies and help though.
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jiml Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 47,972
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Psoriasis Score: 3
Treatment: Skilarence 5x120mg a day
#10
Mon-27-11-2017, 03:16 AM
(Mon-27-11-2017, 02:15 AM)Lookingforhelp Wrote: To update this thread, I had a biopsy done, and my diagnosis is Lichen Planus.  So it turns out I do not have psoriasis.  Thanks everyone for the replies and help though.

Good that you have a diagnosis .... you must be pleased it’s not Psoriasis I hope they can treat you successfully Thumb at least its not a for life disease
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