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Psoriasis Club › HealthHealth Boards › Prescribed Treatments For Psoriasis v
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Cosentyx odd side effect

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Cosentyx odd side effect
awesomeman Offline
Member


Posts: 23
Threads: 5
Joined: Oct 2017
Gender: Male
Location: florida
Treatment: Cosentyx
#1
Mon-16-10-2017, 15:55 PM
Hi everyone, While I dont have Psoriasis I do suffer from another form of rheumatoid arthritis.  So while our diseases are very different we do share a lot of the same medications.  I really hope no one minds me posting as Im really just searching for some answers.  For whatever reason I have had a difficult time finding some answers concerning my meds on other forums and just general searching.  It does seem like the psoriasis community has a significant amount more of experience with these medications which has led me to post.  Long story short I've now tried Humira and cosentyx.
Humira was somewhat effective however just left me with a sense of malaise that just made using that option not worth it.  I am now on Cosentyx and while for the most part I feel so much better on it.  However, I have this strange pressure sensation in both my thighs.  Its literally deep like almost pressure in my femurs.  Its not pain, but its damn uncomfortable. I do have a follow up next week, but just seeing if anyone that has used cosentyx has had a similar side effect or explanation why this is happening.  I am on the loading phase, so I am doing my best to see this through, but hopefully some one hear can elaborate for me.
Many thanks in advance.
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Fred Offline
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 66,926
Threads: 3,887
Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#2
Mon-16-10-2017, 16:00 PM
I have been on Cosentyx just over a year now but can't relate to the sensation you are describing. It's not a side effect I'm aware of either.

Sorry I couldn't help more, maybe someone else will be able to help.

Welcome to Psoriasis Club by the way. Wave

Regards.

Fred.
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awesomeman Offline Author
Member


Posts: 23
Threads: 5
Joined: Oct 2017
Gender: Male
Location: florida
Treatment: Cosentyx
#3
Mon-16-10-2017, 16:08 PM
(Mon-16-10-2017, 16:00 PM)Fred Wrote: I have been on Cosentyx just over a year now but can't relate to the sensation you are describing. It's not a side effect I'm aware of either.

Sorry I couldn't help more, maybe someone else will be able to help.

Welcome to Psoriasis Club by the way.  Wave

Regards.

Fred.

I appreciate the response.  For the most part it feels like a pretty decent med so far.  Just sucks that this weird sh!t is happening.
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Fred Offline
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 66,926
Threads: 3,887
Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#4
Mon-16-10-2017, 16:14 PM
(Mon-16-10-2017, 16:08 PM)awesomeman Wrote: I appreciate the response.  For the most part it feels like a pretty decent med so far.  Just sucks that this weird sh!t is happening.

If it helps, it's been the best thing I have ever had for psoriatic arthritis. Not looking so good for the psoriasis though at the moment, but that's another story.

Do keep us updated as your input could help someone in the future.
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awesomeman Offline Author
Member


Posts: 23
Threads: 5
Joined: Oct 2017
Gender: Male
Location: florida
Treatment: Cosentyx
#5
Mon-16-10-2017, 18:29 PM
(Mon-16-10-2017, 16:14 PM)Fred Wrote:
(Mon-16-10-2017, 16:08 PM)awesomeman Wrote: I appreciate the response.  For the most part it feels like a pretty decent med so far.  Just sucks that this weird sh!t is happening.

If it helps, it's been the best thing I have ever had for psoriatic arthritis. Not looking so good for the psoriasis though at the moment, but that's another story.

Do keep us updated as your input could help someone in the future.

Its funny I see so many people with R.A. fight taking these meds.  In my case yes they have side effects, but life is much much better on them.  Believe it or not I've been sick less often since I started these meds(cosentyx isnt my first one) over a year ago.
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jiml Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 47,972
Threads: 357
Joined: Oct 2013
Gender: Male
Location: Norwich England
Psoriasis Score: 3
Treatment: Skilarence 5x120mg a day
#6
Mon-16-10-2017, 19:38 PM
Hi awesomeman just popped in to say Welcome to the club....I can't help with your question but just thought I would wish you luck on your quest....I don't remember reading your problem as a side effect here, but hope the problem will pass as your body gets used to the drug

Good luck
Jim Thumb
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Caroline Offline
You must hurry if you ever want to catch a chicken...
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Posts: 26,501
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Gender: Female
Location: In between the tulips
Psoriasis Score: 3
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PQOLS: 4
Treatment: Got back to DMF slow release
#7
Mon-16-10-2017, 20:50 PM
Hi A.W.E. Someman,   Wink

Welcome to psoriasisclub.

It is very interesting that you use the same type of medication. But in a sense it comes down to blocking one of the receptors of a cell that causes the inflammation. Apparantly that sometimes, even often is equal to Psoriasis medication,

Your description of this feeling sounds quite strange.

Did you take a look at the leaflet of Cosentyx. Does it mention such kind of side effect?

Wave
Caroline
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Fred Offline
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 66,926
Threads: 3,887
Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#8
Mon-16-10-2017, 21:02 PM
(Mon-16-10-2017, 20:50 PM)Caroline Wrote: Did you take a look at the leaflet of Cosentyx. Does it mention such kind of side effect?

It doesn't
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Caroline Offline
You must hurry if you ever want to catch a chicken...
*
Forum Helper
Posts: 26,501
Threads: 113
Joined: Nov 2011
Gender: Female
Location: In between the tulips
Psoriasis Score: 3
Psoriatic Arthritis Score: 3
PQOLS: 4
Treatment: Got back to DMF slow release
#9
Mon-16-10-2017, 21:04 PM
(Mon-16-10-2017, 21:02 PM)Fred Wrote:
(Mon-16-10-2017, 20:50 PM)Caroline Wrote: Did you take a look at the leaflet of Cosentyx. Does it mention such kind of side effect?

It doesn't

I want to know what A.W.E. Someman did. Rolleyes
Could you anywhere find some link to that ?
Have you already contacted the distributor of Cosentyx?
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Fred Offline
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 66,926
Threads: 3,887
Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#10
Mon-16-10-2017, 21:11 PM
(Mon-16-10-2017, 21:04 PM)Caroline Wrote:
(Mon-16-10-2017, 21:02 PM)Fred Wrote:
(Mon-16-10-2017, 20:50 PM)Caroline Wrote: Did you take a look at the leaflet of Cosentyx. Does it mention such kind of side effect?

It doesn't

I want to know what A.W.E. Someman did.    Rolleyes
Could you anywhere find some link to that ?
Have you already contacted the distributor of Cosentyx?

Are you asking me ? If so:

I have a 32 page pdf.
No I haven't contacted Cosentyx.
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