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Psoriasis Club › HealthHealth Boards › Prescribed Treatments For Psoriasis v
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My Journey with TREMFYA

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My Journey with TREMFYA
jiml Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 47,972
Threads: 357
Joined: Oct 2013
Gender: Male
Location: Norwich England
Psoriasis Score: 3
Treatment: Skilarence 5x120mg a day
#21
Thu-21-09-2017, 11:21 AM
(Thu-21-09-2017, 10:47 AM)fragil3 Wrote: hi
Thanks for sharing your experience.
I am also affected by plaque psoriasis, and methotrexate is my treatment med.
your feedback is giving me new hope because methotrexate is not proving useful much.
Please keep updating us.
hope I will get this med in Pakistan soon.
can you aslo inform how much per dose it cost you if dont mind.thanks

Hi Fragil3

I found the annual cost in America is around $58,000 ....but most of that is covered by insurance

Hopefully there will be something approved in Asia / Pakistan that is a biosimilar that might be affordable
How does your Heath service work? Do you have to pay for your drugs , do you have insurance ....or will the state pay some

Hopefully aecrawford will know the cost in Texas and can help you more
Jim
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aecrawford1 Offline Author
Member


Posts: 13
Threads: 2
Joined: Aug 2017
Gender: Female
Location: Texas
Treatment: Stelara Otezla
#22
Thu-21-09-2017, 16:26 PM
(Thu-21-09-2017, 11:21 AM)jiml Wrote:
(Thu-21-09-2017, 10:47 AM)fragil3 Wrote: hi
Thanks for sharing your experience.
I am also affected by plaque psoriasis, and methotrexate is my treatment med.
your feedback is giving me new hope because methotrexate is not proving useful much.
Please keep updating us.
hope I will get this med in Pakistan soon.
can you aslo inform how much per dose it cost you if dont mind.thanks

Hi Fragil3

I found the annual cost in America is around $58,000 ....but most of that is covered by insurance

Hopefully there will be something approved in Asia / Pakistan that is a biosimilar that might be affordable
How does your Heath service work? Do you have to pay for your drugs , do you have insurance ....or will the state pay some

Hopefully aecrawford will know the cost in Texas and can help you more
Jim

Actual cost I am not sure of, Janssen put me on a program since my insurance initially denied the medicine that covers the entire cost of the medicine 100% for 1 year. So I am not currently paying for it. However, should insurance approve it next year, Janssen also has a copay assistance program to which I would only ever pay $5 a shot.
Quote
Swannieq Offline
Novice


Posts: 8
Threads: 1
Joined: Feb 2018
Gender: Female
Location: 158 wickford st e
Treatment: Tremfya
#23
Sun-11-02-2018, 23:44 PM
Hello, has anyone had severe diarrhea occur as a result of tremfya?
Quote
jiml Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 47,972
Threads: 357
Joined: Oct 2013
Gender: Male
Location: Norwich England
Psoriasis Score: 3
Treatment: Skilarence 5x120mg a day
#24
Sun-11-02-2018, 23:48 PM
I can't help with your query but just thought I will say hi and welcome Swannieq
Quote
Swannieq Offline
Novice


Posts: 8
Threads: 1
Joined: Feb 2018
Gender: Female
Location: 158 wickford st e
Treatment: Tremfya
#25
Mon-12-02-2018, 00:29 AM
Thank you very much for that welcome!
Quote
jiml Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 47,972
Threads: 357
Joined: Oct 2013
Gender: Male
Location: Norwich England
Psoriasis Score: 3
Treatment: Skilarence 5x120mg a day
#26
Mon-12-02-2018, 00:40 AM
(Mon-12-02-2018, 00:30 AM)Swannieq Wrote: Thank you very much for that welcome!
Enjoy your time here and it might be seen better if you started  a new thread here Prescribed Treatments For Psoriasis

I hope some members who have been on tremfya will see your post and reply but it's quite new and I'm not sure how many members are on it


I will mention it in our next free newsletter which goes out to more members that  don't always log in

If you want to subscribe so you can see the latest news you can do that by clicking Groups and clicking on join group
Quote
aecrawford1 Offline Author
Member


Posts: 13
Threads: 2
Joined: Aug 2017
Gender: Female
Location: Texas
Treatment: Stelara Otezla
#27
Mon-12-02-2018, 01:12 AM
(Sun-11-02-2018, 23:44 PM)Swannieq Wrote: Hello, has anyone had severe diarrhea occur as a result of tremfya?

Hello!!!! And welcome! 

Personally, I have had zero side effects with the Tremfya. And It has been working great!!! I'm pretty clear. 

It has been wonderful so far!!! 

Thanks!
Quote
jiml Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 47,972
Threads: 357
Joined: Oct 2013
Gender: Male
Location: Norwich England
Psoriasis Score: 3
Treatment: Skilarence 5x120mg a day
#28
Mon-12-02-2018, 01:25 AM (This post was last modified: Mon-12-02-2018, 01:26 AM by jiml. Edited 1 time in total.)
Thanks for your reply aecrawford ...it's good to hear that it's working well for you without side effects  Thumb
Jim
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Turnedlight Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 6,105
Threads: 62
Joined: Apr 2015
Gender: Female
Location: Uk
Treatment: Skyrizi
#29
Tue-13-02-2018, 10:18 AM
Ooh good news we like that Big Grin
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Swannieq Offline
Novice


Posts: 8
Threads: 1
Joined: Feb 2018
Gender: Female
Location: 158 wickford st e
Treatment: Tremfya
#30
Tue-13-02-2018, 11:02 AM
Thank you everyone for your responses. Tremfya  has worked fabulously for me and I’m about 99% clear. No side effects thus far. However, I did my third injection  A week and a half ago and I’ve had diarrhea now for nine straight days.  I’m still waiting for the results of all the task, but we’re thinking it may be a reaction to Tremfya.  It is listed as one of the most common side effects.
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