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Cosentyx for psoriatic arthritis Fred's journey

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Cosentyx for psoriatic arthritis Fred's journey
Grizzly Bear Offline
I’m a born again lesbian & proud of it !

100 + Member I Just Cant Stop !
Posts: 10,064
Threads: 108
Joined: Dec 2014
Gender: Male
Location: Exmoor
Psoriasis Score: E = mc²
Psoriatic Arthritis Score: A = mc²
PQOLS: 69
Treatment: Carbolic Acid & Neat Bleach
#211
Sun-23-07-2017, 20:58 PM
Have you been using Mrs Fred's ladyshave to do your legs ?




Seriously, that doesn't look good at all Fred. Confused

Keep your chin up mate Thumb



Rub some neat Merlot on your patches s29
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Fred Offline Author
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 66,981
Threads: 3,888
Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#212
Sun-23-07-2017, 21:10 PM
(Sun-23-07-2017, 20:58 PM)Grizzly Bear Wrote: Have you been using Mrs Fred's ladyshave to do your legs ?

No I don't need to. The hair never grew back after having my veins removed, so no more shaving for me.  Big Grin

(Sun-23-07-2017, 20:58 PM)Grizzly Bear Wrote: Seriously, that doesn't look good at all Fred. Confused

Keep your chin up mate  Thumb

Rub some neat Merlot on your patches  s29

I will do GB. Cheers.
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Bill Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 1,624
Threads: 6
Joined: Dec 2012
Gender: Male
Location: Queensland
Treatment: Dimethyl fumarate
#213
Mon-24-07-2017, 08:27 AM
I am glad that the inflammatory marker and arthritis scores are nil, Fred. Without them psoriasis really does become a few annoying spots. Are there topicals you would use other than a steroid? Even when I was covered I was not tempted.

Cheers
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Fred Offline Author
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 66,981
Threads: 3,888
Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#214
Mon-24-07-2017, 09:32 AM
(Mon-24-07-2017, 08:27 AM)Bill Wrote: I am glad that the inflammatory marker and arthritis scores are nil, Fred. Without them psoriasis really does become a few annoying spots. Are there topicals you would use other than a steroid? Even when I was covered I was not tempted.

Cheers

Hello Bill, the diprosone did help but I decided to come off and wait till I see my dermatologist. Though I wouldn't want to use them long term it may be worth trying to get it back on track to let the cosentyx keep it down.

There is something going on as I woke up with a cold sore this morning and now my right hand looks like it's swelling up, not sure what is going on there as it doesn't hurt and I haven’t knocked it.

So maybe the flare up and the cold sore are related and there is something going on inside. Don't know if it's to do with the swelling, but I'll keep an eye on it.
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Bill Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 1,624
Threads: 6
Joined: Dec 2012
Gender: Male
Location: Queensland
Treatment: Dimethyl fumarate
#215
Mon-24-07-2017, 10:08 AM
It could be viral, Fred. With the cold sore virus you can get herpetic whitlows. At least you can get it checked.

Cheers
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Fred Offline Author
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 66,981
Threads: 3,888
Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#216
Mon-24-07-2017, 11:32 AM
(Mon-24-07-2017, 10:08 AM)Bill Wrote: It could be viral, Fred. With the cold sore virus you can get herpetic whitlows. At least you can get it checked.

Cheers

Yes I'm up there next Monday Bill so will mention it then. Thumb
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Fred Offline Author
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 66,981
Threads: 3,888
Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
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Treatment: Bimzelx / Coconut Oil
#217
Mon-31-07-2017, 20:46 PM
Back from dermatology, and oops I forgot to mention about my hand swelling up and the cold sore because they have gone now.

Anyway good news. She said she was happy to give me another six months supply of Cosentyx and was impressed with the psoriatic arthritis. As for the psoriasis flare up, it has started going down on it's own so she has given me some more Diprosone to help get back on top of it. This time she has given me an open prescription so I can get some as and when I need it, so I won't have to blag some from my pharmacie.  

Psoriasis score down to 4 it seems to be calming down.

Psoriatic arthritis score still at 1, but to be honest it could be zero since my last shot as I don’t feel any psoriatic arthritis at all.

10 Months now and no problems or side effects, and all bloods are perfect.

Next shot this Saturday 5 August.
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jiml Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 47,972
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Gender: Male
Location: Norwich England
Psoriasis Score: 3
Treatment: Skilarence 5x120mg a day
#218
Mon-31-07-2017, 21:01 PM
Great you're keeping on the Cosentyx as it's working so well for the arthritis ....and it's good to hear the psoriasis has calmed down and you have got some cream to help .....what is diprosone ?
Here's to your long term clearance Thumb
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Caroline Offline
You must hurry if you ever want to catch a chicken...
*
Forum Helper
Posts: 26,521
Threads: 113
Joined: Nov 2011
Gender: Female
Location: In between the tulips
Psoriasis Score: 3
Psoriatic Arthritis Score: 3
PQOLS: 4
Treatment: Got back to DMF slow release
#219
Mon-31-07-2017, 21:04 PM
You’re doing well Fred.
I'm glad everything is going down again. Keep on going like that. !
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Fred Offline Author
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 66,981
Threads: 3,888
Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#220
Mon-31-07-2017, 21:10 PM
(Mon-31-07-2017, 21:01 PM)jiml Wrote: Great you're keeping on the Cosentyx as it's working so well for the arthritis ....and it's good to hear the psoriasis has calmed down and you have got some cream to help .....what is diprosone ?
Here's to your long term clearance  Thumb

Thank you Jim.

Diprosone comes in cream or gel available on prescription. I prefer the cream, it's a mild corticosteroid and I find it helps knock down a flare up.

Ingredients:
Chlorocresol
Sodium dihydrogen phosphate dihydrate
Phosphoric acid
White soft paraffin
Liquid paraffin
Cetomacrogol 1000
Cetostearyl alcohol
Sodium hydroxide
Purified water

Edit: @Caroline thank you I intend doing so. Smile
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