Bill's pure dimethylfumarate thread

[Fred]

Hi Caroline,

I suspect that dmf works better without supplements, or at least without NAC. I will take it less frequently (three doses of about 530mg a week). If I get a blood test with a lymphocyte count of less than 1 I will cease taking dmf and instead take a daily supplement of nac, glutamine and creatine until I have another blood test about a month later. That is my plan, so hopefully it will work.

Cheers

Good luck with your approach Bill 
It feels as a very controlled and solid approach.

Yes good luck Bill

[Bill]

Thanks Fred.

The one certainty with any psoriasis treatment is uncertainty.

Cheers

[Fred]

Thanks Fred.

The one certainty with any psoriasis treatment is uncertainty.

Cheers

[jiml]

Good luck Bill hopefully your lymphocytes will stay above one or hover around that so you don't have to stop the DMF and your small psoriasis patches will disappear as little flares can come and go spontaneously

[Bill]

Thanks Jim. I think it will drop, but I want to try as I think it will be simpler to do. As long as I have regular blood counts I should be okay.

Cheers

[Bill]

Time to update.



No big changes. I haven't taken any supplements with my doses so I have been dosing about twice weekly as a precaution. I might start dosing three times a week as I have developed a few more square centimeters of psoriasis on the reduced dose. Of more annoyance to me is the variable itch of my scalp and around an eye post shingles a few years ago. For this I have been giving myself b1/b12 injections, but the benefit is small and requires daily injections over several days.

I hope everyone at pc is well. It gets very hot in Brisbane at this time of year.

Cheers

[Fred]

All good here thank you Bill, enjoy your summer it's still winter here.

Good to see you are still doing well and thank you for the update.

[Caroline]

Of more annoyance to me is the variable itch of my scalp and around an eye post shingles a few years ago. For this I have been giving myself b1/b12 injections, but the benefit is small and requires daily injections over several days.

I hope everyone at pc is well. It gets very hot in Brisbane at this time of year.

Cheers

Thanks Bill.

I recognise that itch on the scalp as a result of shingles. I use Vit B complex and I got recommended form a doctor to use R-alfalipon acid, as this helps in repairing the nerves. Don’t know if it really works but very very slowly my problems due to the shingles are diminishing.

[Bill]

Thank you Fred and fingers crossed that your latest bio will keep you out of trouble for a good while.


"I recognise that itch on the scalp as a result of shingles. I use Vit B complex and I got recommended form a doctor to use R-alfalipon acid, as this helps in repairing the nerves. Don’t know if it really works but very very slowly my problems due to the shingles are diminishing. "

Yes, I might try the multi B again, but otherwise I agree with your sentiments Caroline.  Antihistamines help a bit, and if it gets really annoying I use a cold pack, else lots of patience.

Cheers