Newbie Intro SadieMae1

[SadieMae1]

Awwwww thank you everyone. I’m so blessed with all of your welcomes. Please help me out here. I don’t know how to get around these boards yet. Please feel free to private message me if I don’t answer your questions. I want to be involved. ?

[jiml]

Awwwww thank you everyone. I’m so blessed with all of your welcomes. Please help me out here. I don’t know how to get around these boards yet. Please feel free to private message me if I don’t answer your questions. I want to be involved. ?

The easiest way to see what's going on is each time you come here and want to read  posts is to look at the portal, which has  in the right hand column the latest activity on the forum and to get involved ( which we would love you to) just click on last post if anything makes you curious and you will be whisked away there to read the post which you can answer or just read you can get to the portal which has a button at the top of this page or by clicking Portal

[Kat]

I actually just click on the word Forum at the top of the page. Then click around on the boards I want to visit, plus there is an icon to show if a thread has new posts since my last visit.

The portal is a nice way to get around as Jim said. I've just always clicked on the forum and visit that way so thought I'd mention it.

[JohnB]

Hi SadieMae I'm a little late but welcome to our club.

I'm going to be no use to you as I have not got to the good stuff (bios) yet. I'm stuck on methotrexate at the moment

Good to hear you would like to get involved I was also a forum virgin when I joined but everybody made me so welcome. It will come to you fairly quickly. Just note that some boards are off limits until you have made sufficient posts. It not many but it does stop the Ne're do wells from corrupting what Fred has spent a lot of time creating - a safe environment to discuss our affliction and dont forget there is also an Off Topic section for more frivolous banter.
Enjoy your stay with us and dont be afraid to ask any questions

John

[SadieMae1]

Thank you John. I’m thrilled that I have someone to talk to about our affliction. 
It is a horrible painful disease. Everyone I know does not understand .... especially the emotional toll it takes on us. I am so happy to find a support group where everyone truly cares.

[Caroline]

Thank you John. I’m thrilled that I have someone to talk to about our affliction. 
It is a horrible painful disease. Everyone I know does not understand .... especially the emotional toll it takes on us. I am so happy to find a support group where everyone truly cares.

Hi SadieMae,
Not only do you have someone... you have a whole bunch of people who you can talk to. All with the same types of experiences.
Over here we exactly understand what you are feeling.


Cheers,
Caroline

[SadieMae1]

Thank you so much Caroline. Yes.... this whole group of supporters is such a blessing to me. 
I’m struggling today since I’ve only had 1 Cosentyx shot so far which was last Friday. I’m not sure why my Rhemy only started me out with 150 mg. I called her office and her nurse knew nothing about the loading doses   I’ll see my Rhemy on the 20th to find out. Again.... thanks for all of the support this group offers! Cheers!

[Kat]

Thank you so much Caroline. Yes.... this whole group of supporters is such a blessing to me. 
I’m struggling today since I’ve only had 1 Cosentyx shot so far which was last Friday. I’m not sure why my Rhemy only started me out with 150 mg. I called her office and her nurse knew nothing about the loading doses   I’ll see my Rhemy on the 20th to find out. Again.... thanks for all of the support this group offers! Cheers!

According to the Cosentyx website "for some people, a dose of 150 mg may be acceptable."

If I had to guess (and that's all it is) then I would guess she wants to see if the lower dose is enough for you and then go higher if needed. Best to ask her of course.

[D Foster]

Hi and welcome SadieMae to the club, sorry to hear that you are having problems with the Cosentyx but it could be just a reaction until your body gets used to it , did you have any problems with the methotrexate at all . I am on a bio but that is Stelara however my dermatologist is looking to move me on to  Cosentyx so I am very interested in anyone moving on to it, mind you as Fred said we are all different and have different reactions to the treatments .
Have a good look around and ask any questions as they will be answered by people who have the same problems so will be based on experience. No adverts or con merchants tying to sell rubbish we do have however the nuttiest people you can come across but these same people are the friendliest  you will find and they support one another with a vengeance.

[Fred]

Interesting and Kat could be right, but looking at this Cosentyx (secukinumab)  (which I made from the official guidance) it says:

Quote:

---

The recommended starting dose of Cosentyx for adult patients is 300 mg at weeks 0, 1, 2, 3, and 4. After the starting dose, the recommended maintenance dose of Cosentyx for adult patients with psoriatic arthritis is 300 mg every 4 weeks. (Some patients may be on 150 mg maintenance dose)

The way I read it is that 300 would be the starting dose for all, but the maintenance could be reduced to 150 if it is only for treating psoriasis. So my thinking is that you should be on 300mg and not 150 mg to get you going.