Posts: 4,813
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(Thu-11-10-2018, 11:03 AM)Fred Wrote: (Thu-11-10-2018, 10:49 AM)Maryam Wrote: I think that, as ageneral rule you can say that when they call it a “chinese herbal cream” you can assume that it contains steroids.
Yep. 
Re: "Is it worth compiling a thread with name of known scam lotions and potions?"
No it would be a bad idea, for the following reasons.
#1 Any advertising is good advertising, even bad can help the offending product/website get found.
#2 Google will start to punish us for spamming our own content, we have built up a good reputation for good reliable content and although it may seem a positive thing to list the scams it would be looked on as a swing away from what we are known for.
#3 Psoriasis Club is not a place to use for slagging off other products/websites. All members are welcome to comment on something if a question is asked such as in this thread, but we don't want to be known for slagging off other places even if they are scammers.
#4 There are far to many to list and a lot of them just change their names. There are probably more scams out there than real treatments.
#5 If we start slagging off another product/website we are asking for retaliation. This could be by an influx of spam or even a possible DDOS attack, we can fight back but we ask them to leave us alone and most do so it would be unfair to start a war.
There is one site that does list some and I think he has had a lot of hassle, it's not been updated for a while and as I'm not allowed by my own rules to post links you will have to search for it yourself or let me know and I will PM a link.
I think it's best that we carry on the way we are and let our members offer their personal opinions on a question. We are better off giving good quality information and support rather that shaming others.
I agree Fred, slagging off these so called cures could be corrosive. I have always felt a little uncomfortable watching American adverts slagging off the competition.
Information and education is king
.
Posts: 1,624
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Agree totally. Better to maintain a truce rather than declare war on scumbags. Who wants to waste a life arguing with such people? Not me.
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I didn't want to argue with anybody - just wondered aloud was all!
Posts: 1,624
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Joined: Dec 2012
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Treatment: Dimethyl fumarate
I certainly have no quibble with you CB. Fred has established a wonderful support site with a focus on personal experience. There are no gurus here telling you what to do, just many kind people with a history of p and psa wanting to help you. Enjoy yourself here.
Cheers
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(Mon-15-10-2018, 10:34 AM)cbleahen Wrote: I didn't want to argue with anybody - just wondered aloud was all!
(Mon-15-10-2018, 11:10 AM)Bill Wrote: I certainly have no quibble with you CB. Fred has established a wonderful support site with a focus on personal experience. There are no gurus here telling you what to do, just many kind people with a history of p and psa wanting to help you. Enjoy yourself here.
Cheers
Cbleahen please don't think anyone was arguing with you, Bill is right none here have a problem with you or you posts it's just our opinions and we certainly were not arguing.
Call it what you like disagreeing, voicing an opinion, etc. But I don't think you will see our members arguing with each other.
*If you do ever feel uncomfortable you can always contact me or a
Staff
Posts: 71,229
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Update to this thread.
You may be interested in this: [thread=6009]
Posts: 10
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Psoriasis Score: 30
Treatment: lotions, potions & phototherapy
(Wed-19-12-2018, 19:30 PM)Fred Wrote: Update to this thread.
You may be interested in this: [thread=6009]
Hi Fred
thanks for sharing. I did assume it contained something unregulated! I did try a tube of it on a particularly stubborn patch on my foot, very sparingly as that was 3 months ago and I've still got some left in the tube - it seems to have cleared up the patch, and I'm weaning off it, hoping that it doesn't flare up badly as a result. Not on any other steroids from my dermatologist thankfully!
Catherine
Posts: 71,229
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(Mon-07-01-2019, 17:07 PM)cbleahen Wrote: (Wed-19-12-2018, 19:30 PM)Fred Wrote: Update to this thread.
You may be interested in this: [thread=6009]
Hi Fred
thanks for sharing. I did assume it contained something unregulated! I did try a tube of it on a particularly stubborn patch on my foot, very sparingly as that was 3 months ago and I've still got some left in the tube - it seems to have cleared up the patch, and I'm weaning off it, hoping that it doesn't flare up badly as a result. Not on any other steroids from my dermatologist thankfully!
Catherine
Always a good idea to slowly wean yourself of any steroid creams slowly.
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