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Psoriasis Club › HealthHealth Boards › Psoriasis And Psoriatic Arthritis Topics v
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Éyelid fold help

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Éyelid fold help
Caroline Offline
You must hurry if you ever want to catch a chicken...
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Forum Helper
Posts: 26,480
Threads: 113
Joined: Nov 2011
Gender: Female
Location: In between the tulips
Psoriasis Score: 3
Psoriatic Arthritis Score: 3
PQOLS: 4
Treatment: Got back to DMF slow release
#11
Sun-01-04-2018, 14:48 PM
(Sun-01-04-2018, 14:33 PM)Turnedlight Wrote: I would say, don’t use the 1% on and off when you remember it, try and use it a couple of times a day without missing a dose for up to whatever time you’ve been told (maybe more than 1 week) to see if it clears, then taper off rather than suddenly stopping.

I’ve been told it’s fine on the face too, but I guess where eyelids are already thin skin you need to be careful. That was advice given to me, but I would always say to follow advice given to you on steroids by your own doc/derm.

Also, might it be the sun triggering the psoriasis? I was given light treatment years back, though I told them it was a bad idea, and where it burned my skin I got psoriasis.

Hihi TL,
In one sentence you say, always follow the advice of the derm/doc.
And in the next you follow this advice, contradictory to your intuition and it has a bad result.

It is one of my reasons to always be very critical with doctors. And always trying to find if it is correct and logical what they are saying. Which also implies very critical reading of articles and opinions on the Internet.
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Turnedlight Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 6,076
Threads: 62
Joined: Apr 2015
Gender: Female
Location: Uk
Treatment: Skyrizi
#12
Sun-01-04-2018, 17:13 PM
(Sun-01-04-2018, 14:48 PM)Caroline Wrote:
(Sun-01-04-2018, 14:33 PM)Turnedlight Wrote: I would say, don’t use the 1% on and off when you remember it, try and use it a couple of times a day without missing a dose for up to whatever time you’ve been told (maybe more than 1 week) to see if it clears, then taper off rather than suddenly stopping.

I’ve been told it’s fine on the face too, but I guess where eyelids are already thin skin you need to be careful. That was advice given to me, but I would always say to follow advice given to you on steroids by your own doc/derm.

Also, might it be the sun triggering the psoriasis? I was given light treatment years back, though I told them it was a bad idea, and where it burned my skin I got psoriasis.

Hihi TL,
In one sentence you say, always follow the advice of the derm/doc.
And in the next you follow this advice, contradictory to your intuition and it has a bad result.

It is one of my reasons to always be very critical with doctors. And always trying to find if it is correct and logical what they are saying. Which also implies very critical reading of articles and opinions on the Internet.

Yes - ironic isn’t it? I knew it was a bad idea but I couldn’t proceed to the next treatment until uvb had been proven not to work for me.

I’m always very aware that relating what a derm has said to me must be followed by saying ‘this was the advice given to me, and you need to go and get your own advice tailored to you..’
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The-SillyAk Offline Author
Member


Posts: 15
Threads: 6
Joined: Apr 2018
Gender: Male
Location: Sydney
Treatment: 1% corticosteroids
#13
Sun-01-04-2018, 22:23 PM
(Sun-01-04-2018, 14:33 PM)Turnedlight Wrote: I would say, don’t use the 1% on and off when you remember it, try and use it a couple of times a day without missing a dose for up to whatever time you’ve been told (maybe more than 1 week) to see if it clears, then taper off rather than suddenly stopping.

I’ve been told it’s fine on the face too, but I guess where eyelids are already thin skin you need to be careful. That was advice given to me, but I would always say to follow advice given to you on steroids by your own doc/derm.

Also, might it be the sun triggering the psoriasis? I was given light treatment years back, though I told them it was a bad idea, and where it burned my skin I got psoriasis.

I have heard of a thing called weekend therapy where you use it twice a day a week to keep it at bay. That shouldn't do long term damage.

I was prescribed an eye ointment version of the 1%. So no biggie if it goes into my eye. I think I may stop using it on my eye and just keep it constantly moisturized, I am worried about the effects of thinning. So I'll see if I can leave it for a week to 10 days, and if it's bad, try and use the ointment again.

I doubt the sun. In summer I was at the beach often and my psoriasis got better! I didn't do anything and over time it seemed to have cleared. 
I am trying to be in the sun for 10 mins a day minimum between 10 - 2 to get the UV. But, I am light skinned, so I could be potentially giving my self sunburn. Because I then go for a run in the later afternoon lol.
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