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Psoriasis Club › HealthHealth Boards › Psoriasis In The News v
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Abrupt cessation of Siliq associated with rapid relapse of psoriasis

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Abrupt cessation of Siliq associated with rapid relapse of psoriasis
Turnedlight Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 6,104
Threads: 62
Joined: Apr 2015
Gender: Female
Location: Uk
Treatment: Skyrizi
#11
Mon-02-10-2017, 09:58 AM
Hi neutral - that's very interesting, glad to hear it worked for her.
Nice to meet you Wave
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Fred Offline Author
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 66,926
Threads: 3,887
Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#12
Mon-02-10-2017, 12:02 PM
(Mon-02-10-2017, 00:11 AM)neutral Wrote: I'm not sure what the concerns are that were raised here.

Mostly we were talking about the Suicide warning in this post: Siliq gets FDA approval for treating psoriasis

I can't talk for the others comments, but for me it is not something I would want to take as there are plenty of other treatments available that do not have those warnings.

It's just our thoughts and it's reassuring to read your post and thank you for taking the time to register and give an opinion. I prefer hearing people accounts of a treatment rather than any study and that is why we are here. We share our own experiences and your Sister has given a positive experience of this treatment and her input could help others with the decision.  

Tell your Sister thank you and here's to a long lasting relief after 20+ years.  Thumb

By the way welcome to Psoriasis Club. And tell your sister if she wants to join us she will be made very welcome. We are also happy to help her find her way around the forum if she wishes, we know it can be a bit daunting for some but we have a very friendly bunch of people always willing to help others settle in as well as Staff that can point new members in the right direction.

Regards.

Fred.
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Evan Offline
Novice


Posts: 7
Threads: 1
Joined: Nov 2017
Gender: Male
Location: California
Treatment: Siliq biologic, steroids
#13
Sun-12-11-2017, 06:38 AM
Hi, Just found this thread.  I've been on Siliq over four months now.  So far, it's been fantastic, 100% clearance and no side effects.   Smile
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Caroline Offline
You must hurry if you ever want to catch a chicken...
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Forum Helper
Posts: 26,501
Threads: 113
Joined: Nov 2011
Gender: Female
Location: In between the tulips
Psoriasis Score: 3
Psoriatic Arthritis Score: 3
PQOLS: 4
Treatment: Got back to DMF slow release
#14
Sun-12-11-2017, 07:52 AM (This post was last modified: Mon-13-11-2017, 08:56 AM by Caroline. Edited 1 time in total.)
(Sun-12-11-2017, 06:38 AM)Evan Wrote: Hi, Just found this thread.  I've been on Siliq over four months now.  So far, it's been fantastic, 100% clearance and no side effects.   Smile

Hello Evan,

Welcome to Psoriasisclub,

As you have seen a group of fellow sufferers, communicating about the various options we have on treating our Psoriasis.

Great that Siliq is working for you. That is another positive point for Silic.

Tell something more about yourself and enjoy on the forum.


Cheers,
Caroline
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Evan Offline
Novice


Posts: 7
Threads: 1
Joined: Nov 2017
Gender: Male
Location: California
Treatment: Siliq biologic, steroids
#15
Sun-12-11-2017, 17:05 PM
Thanks, Caroline.  I was an examiner with the SEC, the gub'mint, for 15 years.   Just moved from CA to PA a few years ago, got married, raising a baby daughter  Wink

She's the best thing that came along in my life, and I hope to god my psoriasis is not genetic for her sakes.  

I just wanted to post and encourage people to give Siliq a try, and find out if anybody else have also tried it so we can compare notes.  

So far my results have been really outstanding so I'm very excited atm.

There is a suicide warning on this drug, but I think people need to take it with a grain of salt.  I did the research and imo it was just staitiscal noise/bad luck during the study.  It blocks the IL17 same as Talz and Cosentyx so there really should be no difference other than degree of efficacy.

Let me know if anyone has tried it, it's only been available since this summer, so early days.
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neutral Offline
Newbie


Posts: 2
Threads: 0
Joined: Oct 2017
Gender: Male
Location: 3054 Cypress Creek Drive North
Treatment: siliq
#16
Sun-12-11-2017, 18:26 PM
Just received notification about a recent post, so thought I'd pop back in.  Clearly my sister hasn't made her way to joining/posting.  The last I spoke to her a month ago, she was still all clear.  I will see what else I can learn of her experience.  She is planning to join us at our family holiday gathering... which is encouraging, as she often finds reasons not to.  

Glad to hear there is at least another successful experience from it.  Congrats.
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