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Info on Fumaderm

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Info on Fumaderm
michael-mcc7 Offline
Newbie


Posts: 2
Threads: 1
Joined: May 2017
Gender: Male
Location: Clare, Ireland
Treatment: Fumaderm
#1
Wed-10-05-2017, 01:36 AM
Hi lads, completely new to this so bare with me when I ask basic questions  Blush Im 20 and have had psoriasis for nearly 4 years, just started Fumaderm after many other methods such as light treatment and Otezla. I have been on it for 7 weeks now and my dose is 360mg a day until Saturday in which my dose will be 480mg a day. I have seen no change in my skin and am getting a lot of the side effects which are making re-think staying on the tablet. Is there a reason that it is not working yet or is it just standard? 
All the best,
Michael
jiml Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 47,972
Threads: 357
Joined: Oct 2013
Gender: Male
Location: Norwich England
Psoriasis Score: 3
Treatment: Skilarence 5x120mg a day
#2
Wed-10-05-2017, 01:48 AM
(Wed-10-05-2017, 01:36 AM)michael-mcc7 Wrote: Hi lads, completely new to this so bare with me when I ask basic questions  Blush Im 20 and have had psoriasis for nearly 4 years, just started Fumaderm after many other methods such as light treatment and Otezla. I have been on it for 7 weeks now and my dose is 360mg a day until Saturday in which my dose will be 480mg a day. I have seen no change in my skin and am getting a lot of the side effects which are making re-think staying on the tablet. Is there a reason that it is not working yet or is it just standard? 
All the best,
Michael

Hi Michael Welcome to the forum .... I'm also on fumaderm it does take time to work and it's not unusual... you say you are getting the side effects that's a good sign, your body is reacting to the drug.... if you can hack the side effects it should clear you and give long term clearance .... I've been clear 6 years and we have members who have 10 years on fumaderm .... so don't give up, it is slow to work but if it does work it will be worth it
I'm just on my way to bed at the moment but will give you some tips tomorrow when I wake

Jim Thumb
Bill Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 1,624
Threads: 6
Joined: Dec 2012
Gender: Male
Location: Queensland
Treatment: Dimethyl fumarate
#3
Wed-10-05-2017, 09:38 AM
Hi Michael,

I find that taking the drug with plenty of food and fluid helps alleviate the tummy upset. Milk is good. I have also found that pre-dosing with a few grams of l-cysteine about an hour before dosing helpful. That being said, the drug got much easier for me to take after a few months.

Cheers and welcome,

Bill
Caroline Offline
You must hurry if you ever want to catch a chicken...
*
Forum Helper
Posts: 26,501
Threads: 113
Joined: Nov 2011
Gender: Female
Location: In between the tulips
Psoriasis Score: 3
Psoriatic Arthritis Score: 3
PQOLS: 4
Treatment: Got back to DMF slow release
#4
Wed-10-05-2017, 10:06 AM
Hello Michael,

Welcome to Psoriasisclub.

Fumaderm is a slow one, but the chance that is will work is high, between 70-80%.
If you have the flushes, then that is a signal that it is going the right way.

Follow Bills suggestions.

Do give it enough time to get it working.

Cheers,
Caroline
jiml Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 47,972
Threads: 357
Joined: Oct 2013
Gender: Male
Location: Norwich England
Psoriasis Score: 3
Treatment: Skilarence 5x120mg a day
#5
Wed-10-05-2017, 10:08 AM
Hi again Michael Bill is right, take the tablets with a good meal, and at least a pint of  fluid milk is good although I take mine with anything I fancy water, tea or coffee and they all work to minimise the side effects.

After a few months on the tablets the side effects will get less as your body accepts the tablets. I rarely get a stomach cramp, but I still get hot flushes but they are not unpleasant

See my thread Jims continued use of Fumaderm

See this thread Fumaderm continued success about Williams  long term success

Also Bills use of DMF is a good read as Fumaderm isn't available to him, he has written his experience here Bill's pure dimethylfumarate thread

I look forward to hearing more of your journey on Fumaderm



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Fred Online
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 66,925
Threads: 3,887
Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#6
Wed-10-05-2017, 11:53 AM
Hello Michael Welcome to Psoriasis Club.

I see you have met the DMF Gang so I'll leave you to them, but just wanted to say hello as you have made an intro.

Regards.

Fred.

*We have Girls here too. Even ones on Motorcycles. Big Grin
michael-mcc7 Offline Author
Newbie


Posts: 2
Threads: 1
Joined: May 2017
Gender: Male
Location: Clare, Ireland
Treatment: Fumaderm
#7
Wed-10-05-2017, 13:15 PM
Nice one guys,  even though im among millions I still have always dealt with this on my own Confused Really happy to have found this and thanks for your replies. Have a good day  Big Grin
jiml Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 47,972
Threads: 357
Joined: Oct 2013
Gender: Male
Location: Norwich England
Psoriasis Score: 3
Treatment: Skilarence 5x120mg a day
#8
Wed-10-05-2017, 13:39 PM
(Wed-10-05-2017, 13:15 PM)michael-mcc7 Wrote: Nice one guys,  even though im among millions I still have always dealt with this on my own Confused Really happy to have found this and thanks for your replies. Have a good day  Big Grin

You might be one of millions of sufferers but here, you are among friends, we are happy to share and are all treated as individuals and not just like annonymous posters
The site is not huge, but we have members around the world and probably have  more hands on experience of the disease than many of the health professionals, and know how it affects us psychologically  there is no better place to learn and mix with  fellow sufferers

Jim
KyPrincess Offline
I'm a little flakey

100 + Member I Just Cant Stop !
Posts: 408
Threads: 9
Joined: Jan 2012
Gender: Female
Location: Danville, Kentucky
Treatment: Triamcinolone Acetonide Cream, Methotrexate
#9
Thu-18-05-2017, 01:09 AM
Hi Michael, Welcome to the club.
Kat Offline
Take my advice; I don't use it anyway.
*
Forum Helper
Posts: 9,829
Threads: 84
Joined: Aug 2014
Gender: Female
Location: GA
Psoriasis Score: 3
Treatment: Clobetasol Topical
#10
Mon-22-05-2017, 13:36 PM
Welcome Michael!

*This thread is closed. All introductions are closed after 90 days to save confusion.
You are welcome to start new threads in any other sections of your choice.
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