New treatment Otezla ?????????

[phil]

Hi Phil I normally take it abt 8:30 when I get in from work xx

I take mine straight after my evening meal around
about the same time as you.

[Tracey]

Hi guys wee update on otezla was back at dermatologist in RAH and consultant said it was my choice to stay on it or come off and go back on methotrexate hmmm in the 2 weeks iv been on it iv got insomnia and had a major cold as part of the side effects iv decided to keep going on it for another 3 weeks and see how I go I'm hoping it's worth it as iv been really not well with this cold and got a weeks supply of sleeping pills from doc not to get long term advice very addictive lol I see a big difference in my hands doc fingers crossed it's working how's yous guys doing with it.

Tracey xx

[Fred]

Hello Tracey, I can't speak for the others but I'm fine thank you.  

It's a shame they said continue with otezla or go back on methotrexate. Doesn't sound like much of choice to me It could be worth asking about Fumaderm or a Bio to see what their reaction is.

I hope your cold gets better soon.

[Tracey]

Thanks Fred I never really bother with a cold I just get up and get on as us women do but I swear it's man flu as I have been ill in bed dying!!!! Lmao   Will keep that in mind when I go back to see consultant she wasn't very helpful if I'm honest more or less  the balls in your court it's up to you but then again her clinic was running 3 hrs behind thought i had went to A&E Not dermatology last lol 

Tracey (cough cough splutter )

[jiml]

Hi Tracey shame you are getting these side effects, hopefully they will improve as your body gets used to it, I don't blame you sticking with it as it's starting to show an improvement, that will give you confidence to try to stick with it ....
Hope the cold fades quickly and the sleeping pills help with the insomnia.
As fred said I think you were wise not to go for the methotrexate, but he also mentioned you could ask for the treatment I'm on Fumaderm. We have several members from Scotland that are on Fumaderm... so could be worth asking about, I have been clear 5 years on it

Good luck and thanks for the update

[Fred]

Thanks Fred I never really bother with a cold I just get up and get on as us women do but I swear it's man flu as I have been ill in bed dying!!!! Lmao  

Oh just get on with it you'll live.

[Tracey]

FHi thanks for the reply I will keep the fumaderm up my sleeve and continue for now with otezla just need to put my big girl pants on and suck it up lol   Xx
Thanks for your encouraging words

[Tracey]

 Nice one wise guy lol

[jiml]

You can always come here and you will always get encouragement

Sorry about the man flu, us men know how hard to bear it is ...

[phil]

Hi Tracey.
you still on Otezla how are you sleeping.
although I have been on them for some time now
over the last month or so I have started to have problems sleeping.
getting off to sleep is fine but around 3 am every night I just wake up and cant
get back to sleep.

Phil