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Julie's Introduction

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Julie's Introduction
Juls2 Offline
Newbie


Posts: 1
Threads: 1
Joined: Feb 2017
Gender: Female
Location: Austin, TX
Treatment: Cosentyx
#1
Tue-21-02-2017, 06:10 AM
Hey Guys ... totally found you by accident today.  This morning I did my second loading dose of Cosentyx and I was googling info on how long it took for people to see results and found this board.

My psoriasis started in my teens and I've had a pretty nasty go with it.  I developed PsA in my early 30's and was slammed so badly, I thought my life would be lived in agony from a wheelchair.  At that point, I was put on MTX and did infusions for close to a decade, I moved to Simponi and that was ok, but my body got used to it.  Apremilast (Otezla) does less than zero for both my skin and joints, and last Monday I did my first loading dose of Consentyx.  This morning was my 2nd loading dose (I'm doing 300 mg.).

Popped on here before for the first time and started looking around to see how this has worked for people.  I think my skin is actually reacting already. My joints are still abominable - my coccyx, at the base of my spine is a painful mess. 

Can't wait for some relief!  Will let you all know how I do.  I didn't take pics last week, but I think I'll start doing that and posting.

Julie
Caroline Offline
You must hurry if you ever want to catch a chicken...
*
Forum Helper
Posts: 26,518
Threads: 113
Joined: Nov 2011
Gender: Female
Location: In between the tulips
Psoriasis Score: 3
Psoriatic Arthritis Score: 3
PQOLS: 4
Treatment: Got back to DMF slow release
#2
Tue-21-02-2017, 08:24 AM
Hello Julie,

Welcome to Psoriasisclub, the most extra ordinary club on the web. Smile
Very nice that you have found us, we are a friendly bunch of psoriasis sufferers.

There is some very positive experience on the board on Cosentyx, Fred is using it, and he will come on line as soon as he is awake, but he can be late in the mornings. Anyway it is still night at your side of the ocean, so you will find it when you wake up.

It is very good to create your own Journal, inclusive pictures on how you are doing. It gives you very much overview later on.
We have possibilities to include pictures in a post, Jim will show you how.

We also have an off topic section, where we do play around a bit with all kinds of non psoriasis related subjects, a really fun section that is.

Make yourself comfortable with us and enjoy yourself.

Caroline
jiml Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 47,972
Threads: 357
Joined: Oct 2013
Gender: Male
Location: Norwich England
Psoriasis Score: 3
Treatment: Skilarence 5x120mg a day
#3
Tue-21-02-2017, 10:00 AM
Hi Julie and a big Welcome to the forum ...I'm glad you found us, you will find we are a very active club, with members sharing their experiences in a friendly environment. There is a great wealth of knowledge to be found here and members are happy to answer any questions you may have ....Fred has amassed a great amount of literature about the disease and it's treatment plus current news about the latest drugs

It sounds as if you have had a rough time with the psoriatic arthritis and have been almost crippled with the pain, it's good to read that methotrexate did so well for you over a long period, but now you have started Cosentyx, it's a great drug and we hear many good reports on how well it works

I hope it has the same result for you, it sounds as if your skin is already responding, I hope that the arthritis begins to ease soon

You say you are thinking of posting pictures of your progress, that's a great idea, we have a tutorial which will show how whether you are on a PC or a tablet/ iPad here [Group Specific]


Another way to stay in touch with what's happening here is to subscribe to our free monthly newsletter Groups


I look forward to following your progress on Cosentyx
Good luck
Jim
Fred Offline
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 66,958
Threads: 3,888
Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#4
Tue-21-02-2017, 14:02 PM
Hello Julie  Welcome to Psoriasis Club.

Pleased you found us, we don't make it easy.  Wink

Yes I have recently move on to Cosentyx after 6+ years on Stelara and it's amazing. You can find my thread here Cosentyx for psoriatic arthritis Fred's journey

I also recommend you start a thread in Prescribed Treatments For Psoriasis as it will help you keep track of your journey and your input could help others.

Also if you put Cosentyx in Search you will find a vast amount of information.

Regards.

Fred.
Turnedlight Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 6,112
Threads: 62
Joined: Apr 2015
Gender: Female
Location: Uk
Treatment: Skyrizi
#5
Tue-21-02-2017, 14:03 PM
Hi Julie! Lovely to meet you Smile
Kat Offline
Take my advice; I don't use it anyway.
*
Forum Helper
Posts: 9,829
Threads: 84
Joined: Aug 2014
Gender: Female
Location: GA
Psoriasis Score: 3
Treatment: Clobetasol Topical
#6
Tue-21-02-2017, 14:44 PM
Welcome Julie!

This is a great place for info and just being around people who understand. Good luck with Cosentyx!
D Foster Offline
“You only live once, but if you do it right, once is enough.”

100 + Member I Just Cant Stop !
Posts: 25,164
Threads: 17
Joined: Dec 2014
Gender: Male
Location: East Yorkshire
Treatment: Stelara 90mg and G&T
#7
Tue-21-02-2017, 16:35 PM
Welcome Julie , you have found probably the most information on P and PsA that exists , young Fred has done a fantastic job and you can read anything on here knowing that there is nobody trying to con you with treatments that for X amount will cure everything you have wrong with you including the black death, just in case!! .
Have a good look around and ask any questions you want as you will get answers from people who have the problem not heath professionals reading from books.
I am very interested in how you are going on with Cosentyx as I am on Stelara at the moment but I am going on to Cosentyx the next time I inject so I will keep a good look out for your posts .
The thing to bare in mind is that what works for one does not necessarily work for another and that goes for the side effects as well.
Have a good look around and you will find all the inmates friendly if a bit barmy, some of us do have to be sensible though.
All the best Seaside Dave.
KyPrincess Offline
I'm a little flakey

100 + Member I Just Cant Stop !
Posts: 408
Threads: 9
Joined: Jan 2012
Gender: Female
Location: Danville, Kentucky
Treatment: Triamcinolone Acetonide Cream, Methotrexate
#8
Tue-28-02-2017, 17:02 PM
Hello Julie. Welcome to Psoriasis Club.

*This thread is closed. All introductions are closed after 90 days to save confusion.
You are welcome to start new threads in any other sections of your choice.
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