Methotrexate side effects advice

[Janice Y]

Hello everyone, I’m new at this so I might get it wrong so bear with me. I’ve been reading about the Methotrexate, I was given the leaflet yesterday by the derm, I hadn’t seen her before but I originally went to say I would start the Fumaric acid Easter’s, I think that’s spelt right . I came home and researched Methotrexate and I didn’t like the side effects it gave ie, stay out of sun, very little alcohol and also hair thinning or loss!, my hair isn’t very thick any way so I don’t want that added embassesment. Can anybody throw any more light on this please?.

[Fred]

You can read more about Methotrexate here Methotrexate

Also if you use the Search you will find a lot of threads with mixed feelings about it.

Welcome to Psoriasis Club by the way.  

Fred.

[Janice Y]

Hi Fred, thanks for your reply and moving my post. I will try to work out how to use the club properly ha ha . I’m not good at these things. Thanks again, Janice x

[jiml]

Hi Janice and   I was on methotrexate for a while and didn’t get on with it as it made me nauseous and generally unwell, but it didn’t thin my hair and I’m sure while I was on it I never had a blood test, and never eased up on my drinking ..... not that I’m alcoholic   but do enjoy a drink

As for FAEs in the form as Fumaderm which I take or Skilarence the new kid on the block.... I thoroughly recommend them as they have given me a new lease of life for the last six years, with virtual clearance and no side effects apart from a little flushing... I won’t lie and say it works quickly but if it does work you can look forward to a long term clear future ... to start the side effects can be difficult but worth sticking with

[Caroline]

Hi Janice,

You bumped into the Psoriasisclub members who don’t have so much positive feelings for MTX. And also i think that you better could try to start with the Dimethylfumarates first.
The advantage is that they are not toxic, certainly Skilarence isn’t, and that there is a good chance that it will work for you. It also has its side effects but these are very much less than those of MTX and the last is absolutely toxic.

Over here in the Netherlands, I’m Dutch as you might suspect, the DMF are more and more getting the preferred starting medication. It can be a long working medication without generating damage for your body.

There will be some people who do also very good on MTX, but most of them finally have to stop.

Have fun on psoriasisclub.
Cheers,
Caroline.

[Janice Y]

Thank you guys for your information, it is lovely to be able to talk  to other people with the same horrible problem as me!!! I have had a blood test taken today and an appointment in two weeks time to see my original derm, so hopefully I will get some treatment and answers. Very friendly club, hope you all are getting at least some relief from psoriasis x

[JohnB]

Hi Janice and welcome to the club .

You will only ever get honest replies off those that have been there. As you have noted we are friendly and we'll do our best to help or point you in the direction of information to help you make the best decision. Ask away we don't bite. Don't forget there is an active 'OFF Topic' section for a little light entertainment.

JohnB

[Fred]

Hi Fred, thanks for your reply and moving my post. I will try to work out how to use the club properly ha ha . I’m not good at these things. Thanks again, Janice x

You are welcome Janice, and it's no problem. There is always someone around to help out if you get stuck, so just shout out.

We also have Staff if you need more help getting settled in, but our members are very friendly too and will always help you find your way around.

So dive on in. I can recommend the [Group Specific] board if you want to get to know our members, I'm the sensible one in there by the way.  

[Grizzly Bear]

Janice to the funny farm


Glad you found us Janice


I’m the only insane one on this site, trust me, I’m a real bear, honest

All the others on here are stark raving bonkers I can tell you !

Ask any questions you may have, we will all do our best to answer and help you.

Now, visiting hours for you to visit me in my padded cell is from 00.01 until 23.59.

Oh yes Janice, here’s a great BIG hug